Tamoxifen - advice please !

[MargaretMountford]

Am going to be starting Tamoxifen shortly, was just wondering whether anyone else is on it and can tell me what it's like ! thanks !

Hi all

Me too - if anything is wrong with the pooter I always assume it is me! And it usually is...

All my bones ache - not sure if that is the tamoxifen or not. But am off to a wedding this weekend so i shall take paracetomol so I can party on!! ((Dd's first EVER sleepover away from us - going to her Gran's so we can stay away. She is 6 and a half What are we like??)

Hope SIL is OK KurriKurri.

Good weekend all!

aaaarrggghhh!! the link doesn't even work [cackle] BUT don't take that as an invitation to put any further links up- i was only checking the content before i report it to HQ again!

RWU - I reported it earlier as well- talk about persistant!!!

talk about not taking the hint some people must really enjoy being repeatedly booted up the arse!

Anyhow- will have a word with hq about any further 'suggestions' we seem to be the only thread she is bothering with- not sure if thats a good thing or not really.

Hope everyone is well and treatments are going fine- i remember someone was going away but can't for the life of me think who atm

hi !! am back after 3 days away visiting MIL and dh's family in Notts. V v nice to be home, though it was great seeing family,but sooo tiring. Am so sorry too about your DSIL KurriKurri - feel free to say however you feel here, am sure she will feel comforted that she has you to talk to - it just must bring everything back to you though - thinking of her and sending lots of good thoughts.
RWU hope you are doing ok with radio, Cakes with your tamox. and Morph,hope all is ok with you.
What on earth was the post from teatotal ? crikey
Feel slightly let down (probably childishly so) because not a single family member asked me how I was/how the tamox. was going - I don't count my SIL in this as we communicate very frequently and she is always very kind and thoughtful - it just stung me a bit that not even my MIL asked me. I feel very silly for feeling like this

welcome home! the teatotal post was probably more natural no-chemo shite- thankfully the link didn't work and i asked hq to politely advise her to go away and leave us alone (i did offer to do it in a less polite way but they got the hint that we weren't happy!)

Families! maybe they didn't know what to ask or say- my mil still expects bits of me to fall off if she hugs me too hard Hope you had a good weekend though, perhaps dh could mention that you felt a bit uncomfortable?

right, early night tonight as school run in the morning- no more 8am lie ins! sleep well all x

ds has INSET day today, but has to go in for his singing lesson,so up early,plus dh working from home today so not much chance to get on here...
I don't expect people to go over the top or anything but a word or two would have been nice,but never mind- told my SIL who was great - I think MIL is just very involved in her own situation.
Hope you all have a good week

Hi all

TT doesn't give up, does she? Sigh...

MAS - take comfort from the fact that you probably just look really well!

We were away for a wedding, first trip away together without DD (what are we like) - she had a blast and so did we!!

Feeling better on the tamoxifen now that I am taking it at night as they suggested, getting quite a few hot episodes, but not worried about that, could be much worse.

Back at school for the kids - yippee!

MAS - what is INSET?

And RWU - How is the radio going?

KurriKurri - hope SIL isd doing OK, do let us know.

Waves also the the currently silent MorphFan - hope you are feeling better - take it easy. Hope your consultant appt went OK.

xx

INSET is the teacher's training day in school and day off for kids...doesn't dd have those ? just peeking in while dh has lunch !!!!!

Oh, yes, she does - just not aware of the term, sorry. Not got one today, though - hooray!!

Hello all, meant to come on earlier this afternoon, but have had to make a couple of phone calls and they were the type that put you on hold for half an hour while playing chillax music in your ear.

Sounds as if the wedding was fun Cakes glad your DD had a good time too. Hope you're feeling ok now MAS, I think sometimes people aren't sure what to say, so end up saying nothing at all which can be worse.

I spoke to DSIL at the weekend. She's home from hospital now, and was in good spirits. The doctors seem v. hopeful that surgery will be enough and no other treatment necessary. It was caught very early, she went to GP about a lump, that was biopsied and turned out to be benign, but the mammogram showed up a couple of patches of (they think) precancerous tissue.So mastectomy was advised.

She had reconstructive surgery at the same time. She's got a bit of an infection - has to pop back to hosp. for IV antibiotics, but other than that seems to be doing well. So I'm feeling a lot better about things now, she was her usual cheerful self.

She said the first lump was small, and she was inclined to ignore it, but then imagined my naggy old voice in her ear saying 'go to the doctor, go to the doctor.....'

Went for a nice swim this morning, and got winked at by a rather dubious old man in the jacuzzi. Obviously I am a bit of a babe as far as the over eighties are concerned .

pssst! there's no subtle way of doing this, i have been thinking of how to for weeks- i need all of your postal addresses can you cat me pls- and don't ask questions, i'm not coming to your house or anything but i've been asked to help out santa

am just here briefly -RWU -I don't have CAT but could send you my email address and do it that way ?
Am glad things are looking better for DSIL KurriKurri - love the thought of your imagined nagging encouraging her to get it checked
Regarding family not saying anything -I suppose they think that it's all over and out of mind so not something to ask about any more - am just a bit surprised that MIL didn't seem remotely interested. When I had my diagnosis and op etc one of my BILs and SIL completely ignored the whole thing,which really shocked me as I'd never ever do that -no phone call,no card -nothing. Sadly he was the brother who was closest to dh which surprised me even more,you'd think he'd at least have offered some brotherly support. Now,and I know it's extremely infantile of me,I just feel very cool and bristly about him and her - I'm generally very forgiving and give people loads of chances but this really hurt..grrrr.

Hi all

MAS - all I can say is - sometimes people just do not know what to say. They are prob.just so scared of getting it wrong. I know it is not good, but they think that saying nothing is better than saying the wrong thing. Whereas of course, you'd forgive them saying the wrong thing -so try not to condemn them for this. Hard, I know. The people who blanked the issue after my Dad died (years ago) never quite recovered their place in my good books

RWU - I don't have CAT either, but use email address [email protected] - drop me an email and I'll very happily reply with proper name and address. I will recognise you when you write. All very mysterious but exciting...

And if I get one from teatotal I shall know what to do with it!

So pleased SIL is doing good KurriKurri - does sound like a promising prognosis: could have been worse if your nagging voice did not have a life of its own, however.

Am also very jealous you got admiring glances - has been a while in my own case (despairing emoticon)

my own latest health horror is more mundane but really annoying - have a recurrence of the trigger thumb thing I get from too much typing. Absolute agony, so is all strapped up and I am popping anti-inflammatories like Smarties. Pain right the way up my arm and into the neck. Was due to have it operated on when they found I had BC, so am now off the list and NOT keen to get back on - fed up with hospitals for a bit!

Sitting here trying to persuade DH we CAN'T go away again for the weekend - have been away for the last 2 but have just had an offer of a bargain rate for a cottage we sometimes go to. (In case we sound like we are made of money - we haven't had a proper summer holiday and so have been getting away where and when we can - cheaply )

Definitely can't go - poor neighbour will be sick of looking after our rabbits, that's for sure! X Factor weekend for us this time around! (Down with John and Edward - and up all the Over 25s - especially Ollie with his funny leg dance thing!!!)
xx

you are right of course Cakes - but still...can forgive MIL as she has had a hard time of it with her own health..crikey, I must sound very self obsessed..
so sorry to hear about pesky thumb too - sound horrid.
Weekend away sounds great !! you deserve it I'm sure
ok, sorry to be brief,have to dash out...back later...love to all xxx

Forgot to mention (just in case it sounded like it was all parties here) - first weekend away was with DH's elderly family - two of whom had to be taken to the toilet repeatedly, and fished out of other people's weddings (we were in a big hotel), and asked us the same questions repeatedly. So it was not all hedonism by any means..

With you all the way MAS - I def think you have every right to be p-eed off. Just didn't want it to blight all future get-togethers. I am a great one for harbouring a grudge, despite my best efforts, so am not criticising you there!

have a good day! xx

!

will sort out emails tomorrow ladies- need addy's by Sunday

glad everyone is ok- my radio is on hold atm- had horrific burns almost straight away and then caught some kind of fierce lurgy which made them re-think! So atm its chemo, swamp gloop and cardboard as my primary defence from cancer have a scan friday to see what's happening- they should be able to tell then whether the intensive approach is going to work- if not we shall be dropping the mega overload and reverting to plan b which is less yuck treatments and having fun

I'm in a grrrr mood today- not sure why, just feel like i want to fight the world think its best i take the drugs and go to bed (sleeping tablets and di-hydracodeine make for a GREAT nights sleep )

Which reminds me i had a meds review with GP today- i get all pain meds and general gumph from doc but other meds from multi-disclipinary team usually. Anyway the conversation went a bit like
Doc "Morning Mrs RWU, how are we doing these days"
RWU " have you read the file?"
Doc "hmm, i'm just catching up .... now ah, right, so its not been plain sailing then?"
RWU "no, could say that- i've only come to get my meds back on repeat- Boots are doing my head in"
Doc "Right so... yes..... there are a lot of them though, maybe we could cut a few out?"
RWU "which ones? i figure if i get through a prescription in 4 weeks then its all exactly as i need "
Doc "hmm, well what about staring with the painkillers, we have Di-hydracodeine, Co-codamol, and Tramadol- they are very strong- do you think we could work out a way of weaning you off them?"
RWU "maybe after christmas?"
Doc "hmm, also how about staring to remove the anti-depressants or sleep aids? Obviously we can't take away the calcium supplements and hormone therapy... But you must rattle when you walk at the moment haha"
RWU "Right so if you get your way i'll be depressed and in pain but i'll have lovely healthy bones- great what a great way to go"
Doc "sorry, i was just thinking of a long term solution"
RWU "WELL FECKING DON'T!"

Had to then try to speak with my usual lovely female doc who immediatly left everything as was and signed it off for six months before telling me to go and have a coffee and calm down Bloody Men!!!!

Just realise thats why i'm in the grrr mood !
Night all x

sheesh ! can see why you are in a grrrr mood... @ lovely,healthy bones
sorry to hear about burns and lurgy though
Am intruiged by this plot of yours,requiring addresses !

not really a plot of mine!- regarding a sticky thread on here think you all deserve a bit of mn xmas loving

Hi RWU

I am intrigued!
Gaaah!! at the burns and the lurgy - and the bloody doctor!!

RWU - No email received from you yet - not nagging, but just in case something has gone wrong addresswise...

Morning all. Sorry about your rotten day on Tues. RWU, and the RT, burns are v. nasty. Very best wishes for Friday.

Has any one else been called up for swine flu vacc? My surgery phoned and said my GP wants me to come in for it next Tuesday. My consultant at the hospital was scathing about it last time I saw him - swine flu is over-hyped, the vacc. won't work and He's not going to have it etc. - so am in two minds. I think I'm inclining towards it - a few people at DH's work have had SF. Anyway I'm having treatment this afternoon, so will ask one of the unit nurses about it. I'm sure they're sick of questions about SF.

Hope all is well with everyone else. DD is coming home for the weekend which will be good - we can watch strictly from Blackpool, and eat fatty stuff!! My DS has moved away for work until after Christmas, he's been living here over the summer. So house has been quite empty, just me and DH rattling around - drinking horlicks and going to bed early - old fogeys?, who us?

Ha ha - personally horlicks and early nights sounds like bliss to me!

I have not been called for the swine flu vaccine yet, and not sure if i will be, as I have already had the bug itself. If I am called, not sure whether to have it or not. My own experience of the bug was that it was horrid (like all flu) but no worse than that. It was mid chemo, so was in hospital for the duration (5days), but as a precaution, not because it was awful. But equally, I know that some people will get very ill on it, so it is a difficult one to call.

Hope your treatment goes OK Kurri Kurri, with less of the crap side effects than normal.

AND GOOD LUCK TO YOU FOR TOMORROW, RWU - Fingers and everything crossed here until we hear back!!

xx