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Original poster

Tamoxifen - advice please !

562 replies

MargaretMountford · 27/05/2009 11:20

Am going to be starting Tamoxifen shortly, was just wondering whether anyone else is on it and can tell me what it's like ! thanks !

OP posts:
MaryAmericanSmooth · 22/09/2009 12:26

!! Other people's blood I'd find difficult to tolerate...I fainted once during ds's blood test and was mortified - they'd tried to get blood without any success and the stress just finished me off.
ds -for all his being on his own,is wonderful at sharing his things and very considerate of others feelings and needs,which I am so happy about -would be very easy for him to be the opposite as he is the centre of everything at home,though I also think I temper things with being a bit stern !!

Cakesandale · 22/09/2009 12:32

Zero tolerance policy on bad manners here, also . With hindsight I may have been overly stern yesterday. Tough love!!

reallywoundup · 23/09/2009 18:18

hello ladies- how are we all today? I am fine!! Infact i'm quite bouncy now that the kids are in their rooms! My line is ok- was checked earlier neck wound is healing well, cuff wound is a little weepy but nothing to worry about, no pain, no nastiness even went to toddlers with DD!

MaryAmericanSmooth · 23/09/2009 21:03

oh that is good news RWU
fine here really, I waiver between fine and quite down - don't attribute it to tamoxifen though as I think it's my usual way !

reallywoundup · 23/09/2009 21:08

aw, keep smiling MAS make sure you look after yourself and have some time to wallow in self pity- i find that always helps a bit

MaryAmericanSmooth · 23/09/2009 21:54

thanks RWU - it's an ocd thing really,it bloody weighs things down- without it I'd be on a much more even keel I know. Am definitely going to go for more CBT if I am eligible.

Cakesandale · 24/09/2009 09:28

Morning all!

Great to hear you are doing so well RWU: but sorry to hear things are up and down for you, MAS.

I find a bit of reflexology works wonders - don't know if you have ever tried it, but it has me walking on air for about three weeks.

I am in my third week between treatments, so feeling pretty perky (and also trying to hold back time 'cos I don't want to go any more!)

A friend from school has just interrutpted my MN-ing to bring me flowers, and she burst into tears. Not quite the strong shoulder for me to cry on then . I have given her a conforting cuddle and sent her on her way

MaryAmericanSmooth · 24/09/2009 09:48

aww- sweet of your friend Cakes - a kind of you to make her feel better ! am glad you are feeling perky too !
I don't have much patience with things like massage etc - too jumpy/fidgetty ! (though a head massage at hairdressers is always unexpectedly lovely !) I am just naturally anxious which is a pain - I get anxious about nice things too as well as the things I'm not looking forward to..but it passes,,so shouldn't make a fuss !

Cakesandale · 24/09/2009 09:56

You have my sympathies - you sound very much like my DH. Anxiety is his middle name (well it's Hugh really, but I think that was an oversight by the priest).

I thought I was too fidgetty for this kind of stuff as well, but it becomes a bit hypnotic and does help. Anyway, just a thought!

I don't think we can change the way we are really, and we probably shouldn't try. WEveryone has their own way to deal with the challenges life throws up - mine is to ignore them and pretend they aren't there.

MaryAmericanSmooth · 24/09/2009 10:53

!

reallywoundup · 24/09/2009 11:07

hello! still feeling great here! That is probably due to the fact i am waiting in for dd's new dolls pram and playset for her xmas pressie I am heavily obsessed by prams (was my career before early retirement ) so it has taken ages to find something which was just right- but i finally found it here with a £20 off a £40 spend i got it for £20 delivered- and its a mini version of one of my favourite prams (and very like her current bugaboo!)

Must calm down or i shall jump on the poor delivery man right i'll go wash some nappies that will curb my excitement.

Hope you are all feeling ok- MAS remember no-one expects you to be the life and soul atm- take things in your own time and push for the CBT if you think it will help you out.

MaryAmericanSmooth · 24/09/2009 11:45

at your pram excitement !! Am glad you are feeling good too
I am fine -I have no reason to feel anxious really - I have a v nice weekend to look forward to -which is prob. why my anxieties are raised ! can't win really Have asked bcn to speak to my gp about CBT (these terms !)as I know I'd wimp out about it.

Cakesandale · 24/09/2009 12:27

Also at the pram event! I feel the same about our wine delivery.

reallywoundup · 24/09/2009 21:00

Have just added some pics on my profile page need to sort some more of the boys out but there are a few of the new pram set

MaryAmericanSmooth · 24/09/2009 21:22

wow ! pramtastic ! I didn't realise you had 2 sets of twins !!

reallywoundup · 24/09/2009 21:32

i try not to make it a too well known fact- i get some strange looks

MaryAmericanSmooth · 24/09/2009 22:00

my dad was a twin so I wondered whether I might have them- just got the one though ! Your boys and dd have great names btw.

reallywoundup · 24/09/2009 22:09

Thanks! there are twins both sides of our family- i am a twin as is my mother as is my grandmother- so we knew there was a good chance but then we had difficulty getting any (now know it was dodgy hormones/ovaries etc) and ended up with two sets of clomid twins we shall find out in a week or so whether the 6yo are identical- we and the medics always assumed they were as they are pretty alike and only one placenta etc but a recent trip to the dentist has put it in question so we have had genetic testing done to find out for sure.

On the names front it always tickles me when people ask where i got the boys names.... the bible- you know best selling book of all time Millie was supposed to be Tabitha Matilda- but dh stepped in

Cakesandale · 25/09/2009 09:31

I love Tabitha and Matilda, lovely solid old-fashioned names. (Ours is Miranda, so a similar sort of theme going on.)

have a good weekend ladies - I am off to a client board meeting (groan). Sometimes I could ALMOST imagine myself as high powered.

Wonder what they'll make of my baldness - i haven't seen them since May, and don't exactly broadcast the fact that I have been having treatment....

MaryAmericanSmooth · 25/09/2009 12:52

Miranda is a lovely name My boy is Theo - short and simple !
Hope the meeting goes well Cakes - sounds impressive to me and am sure you'll manage the reactions with aplomb..take care both of you xxx

MorphFan · 25/09/2009 16:28

Hello - I hope you don't mind me butting into your thread - but I have been pointed in your direction.
I have been diagnosed this week with papillary carcinoma of the breast and will have surgery on 16th October - to be followed by chemo and radiotherapy. I'm 42 and have DD almost 3 and DS who was 1 on Monday.
I'm afraid I've only skimmed the thread so far - hope I'm in the right place.

reallywoundup · 25/09/2009 23:58

you are more than welcome- quick post as i'm off to bed but wanted you to get an answer! pull up a chair and make yourself comfy!

MorphFan · 26/09/2009 06:46

Thank you!
I'm off today for a long planned weekend away so I won't be able to catch up properly with your thread just yet - but at least I've found you...
Thanks again.

Cakesandale · 27/09/2009 11:22

Morphfan

Warm hello from me too - hope you enjoy your weekend away: come and talk to us when you are rested and refreshed!

I am not going to be about much myself for a day or two after today (more work related dullness and then another shot of chemo) but will catch up with you as soon as I can.

I am sure your diagnosis has come as a bit of a shock. Talk to us and we we will try to help you through any crappy bits, and just chat away through the rest.

Good that you have got away for a rest and a change of scene. I do that a lot!

MaryAmericanSmooth · 27/09/2009 16:39

hi morphfan and welcome - hope your weekend was lovely and relaxing, or as relaxing as it could be- look forward to chatting ! am sure you are still reeling a bit from the diagnosis but do share any frets and worries with us.
I am just back after a long- looked forward to posh weekend away with just dh -he suggested it when I was going through the beginnings of this and it's been such a lovely thing to contemplate - it has cost a small fortune but was worth it for the Egyptian cotton bedlinen,complementary vodka shots,lovely bathrobes,gorgeous scenery and fab food - am home again and into the washing/sorting for Monday -argh ! Didn't sleep too well the first night even though the bed was stunningly comfy -think it was too much food (grilled sea bream) ,then coffee and generally being hyped up (OCD makes going away not very straightforward) ...also have a horrid feeling that tamoxifen is making me overheat at night,because I woke up v hot -mind you,dh said that the duvet was much more plush than we are used to ! I hope it isn't night sweats -yuck yuck. I felt a bit knotted up inside on Saturday,but I think again this is ocd related as I take ages to unwind and relax...but it was fab fab fab !