Immune /natural killer cell treatment when ttc or pregnant (aka the 18th pred thread!)

[Hula2]

This is a thread for those diagnosed with high or very high natural killer cells and trying to concieve or are pregnant and taking steroids/intralipids etc

Newcomers very welcome

[Drttc]

Thanks Snoopy! I've tried all the numbers and emails- they're well and truly unavailable today :( I'm finding conflicting views online with women saying they've been told to come off them immediately and others not to stop. I'm not on Facebook... On Instagram women are saying they were kept on them though some did have known clotting issues. I've taken my dose today in the hopes that it's the right decision... Also as the bleed is below the sac I'm hoping it wouldn't affect it anyway. Really hope the clinic responds first thing tomorrow... Not a nice feeling seeing so much blood! No clots or pain though. The roller coaster never ends! Hope you're all having a lovely break xx

[Drttc]

Thanks Seeking! Too late for today :( Though I'll skip my aspirin dose tonight. Ugh!!

[Snoopysimaginaryfriend]

Sorry you're going through this drttc, it always seems to be one thing after the other for women in our situations doesn't it? But haematomas are very common. Sorry I can't scroll back on the phone, do you have clotting issues?

[Drttc]

Hi Snoopy- nope no known clotting issues! Some doctors think blood thinners actually help SCH to bleed out, while others think that's s bad idea. So torn but hoping that 1 day either direction won't make a difference considering the position of the bleed. It really is one thing after another... Figures!

[Hula2]

Drttc - sorry you ve got this added stress of bleeding hun but so glad your little bean is still ok. I think you re right to skip the aspirin and my feeling would also be to hold on the next clexane you can spk to the clinic. Thinking of you. x

[Drttc]

Thanks Hula. I've been taking it really easy and staying hydrated so hoping that helps as well. I can't even believe it's possible to have lost that much blood yet have the been be unaffected by it- but there it was. Will be on pins and needles until I get through to the clinic.

[Drttc]

Bean be unaffected *

Xx

[Hula2]

Gosh poor you, this must be really stressful. Good idea to rest and drink plenty. Been having a goggle and there does seem mixed advice re the cleaxane. Seems those with definite clotting issues are often told to stay on it as clots forming in the placenta are a bigger worry and but seems also that others are told to stop. I think if you ve lost/are losing alot of blood i d still lean to stopping until you spk to the clinic and if it gets really bad or you feel ill/faint then don t be afraid to go to hospital as your body needs to stay strong too and they can always put you in iv fluids if needed. Sending a big hug and keeping everything crossed this stops very soon.

[Drttc]

Yes I think I agree. No more fragmin unless the clinic tells me... They better answer their phones tomorrow!! Feeling okay atm and no bleeding since this morning... Hoping it stays that way. Thanks so much for your encouragement - really helps.

[Hula2]

Ah great its stopped. We re all rooting for you and your little bean. Hope you get thru ok tomorrow as i know sometimes it can be a nightmare. They should be open. Have you emailed as well saying you need a call first thing ? i ve got an email for one of the other nurses (Lorna) who seems good at replying so can give u that if you want to try her too ?

[Drttc]

Yes I've emailed both Louise & Lorna (had to look her up in my inbox as Louise's out of office gives out an incorrect email address for Lorna that bounces back!). Thanks though :) Will keep you all updated and praying for things to start becoming less eventful from here on out...

[Seekingmiracles]

I know quite a few people who've had fairly big bleeds and all has been fine. I hope you manage to get through to the clinic tomorrow. Have you emailed Louise? Maybe she'll pick it up and respond even if phone is off??
Glad you're feeling ok and taking it easy. One thing after another with us lot isn't it?!!!

[Drttc]

Thanks Seeking. Yes I've emailed Louise as well but got an out of office- she's fine until the 4th! Also running very low on progesterone so will need a new prescription ASAP...! It all feels like a juggling act. While blindfolded

[Drttc]

She's gone until the 4th*

[Snoopysimaginaryfriend]

Keep us updated drttc. I wonder if you don't have any luck tomorrow would it be worth being really cheeky and calling professor quenby' office and asking what they would advise?

Another scan at the hospital tomorrow, really hope everything is ok because we have told people now!

[sunnyday01]

Sorry drttc I don't know, I was/still on asprin. Snoopy suggestions sound a good first point of call though

[sunnyday01]

Wrote my post but see more posts have now loaded!

[Drttc]

Hmmm cheeky but clever idea!

Good luck Snoopy- Bouncing baby will get to give you a wave hello before the new year!

[Drttc]

Thanks Sunny!

[Snoopysimaginaryfriend]

Hi drttc how is everything today?

I've already managed to cock up booking on at work, I swear I'm getting a bit dumber every day.

Hi sunny how are you?

[Hula2]

Drttc - hope you re not having a nightmare getting thru to the clinic. Thinking of you.

[Snoopysimaginaryfriend]

All good, thank goodness. She's so naughty during scans. They said I'll get an extra scan in April because of the thyroid but the sonographer was very happy.

[Hula2]

Ah great news Snoopy. x

[sunnyday01]

Fab news snoopy, how many weeks are you now?

[Snoopysimaginaryfriend]

20 weeks. Still pinching myself