Immune /natural killer cell treatment when ttc or pregnant (aka the 18th pred thread!)

[Hula2]

This is a thread for those diagnosed with high or very high natural killer cells and trying to concieve or are pregnant and taking steroids/intralipids etc

Newcomers very welcome

[billy15]

Thanks Hula yeah Im also worried about the SO! This was only my 3rd time on it but Im annoyed that I wasted an SO on this cycle (feel like my body can only take a few more) and also confused why the SO didn't have an effect this time (surely it shoulda forced my body to ovulate regardless??). I think I should lay off the SO for the next cycle to let my body get back to normal. I also had a 12 day period this cycle. Im wondering if Hydroxy could have any effect as it's the first proper cycle on it.
We do talk about things but like you I sometimes feel like I make things worse. It's been mainly around me wanting him to lay off the alcohol and coffee while Im taking these meds. But I end up feeling like a spoily! And you're right he probably is worried about the results but he doesnt mention it.
Im just so tired of it all atm. Will prob feel better when my cycle gets back to normal.
Are you still not trying/not protecting? Is your cycle getting back to normal? Do you take bbt?
Yes I'm so grateful to have found this group!!
xx

[Drttc]

Hey Billy! Not doing very well tbh. Have read so many horror stories online I'm finding it very hard to see this working out for us. I just can't believe I've finally got a seemingly healthy baby in there and it's under a physical threat. I've got a terrible headache from the new med Dr S gave me as well which he told me to expect. Absolutely shattered emotionally & physically.

That must be so frustrating about the SO and your cycle. I've been on hydroxy 2x daily since end of April though and it didn't affect my cycle. Are you on the lower dose of 2.5 letrozole? Maybe that has something to do with it? I can definitely see what a stress this situation can put on any relationship. It's such a roller coaster trying to stay positive then just surviving the devastating blows that seem to come your way. There's no 'answer' to it. We need to keep marching and have faith that we'll get there- as so many women have before us. There's certainly a lot to learn from this...

[Drttc]

Oh and I went through the exact same thing with DH about alcohol! It took ages for me to finally get him to lower his intake and it was really pissing me off. Finally he got the message (after so many BFNS & money wasted).... Just a few weeks before our BFP. Lol!

[Seekingmiracles]

Sorry you're struggling Billy, it's so hard when are cycles are normal let alone when they play havoc! Did you ask DrS why it hasn't seemed to work? Did he mention a higher dose next time?

Drttc - you know the rules around Google!! Don't go there!! Easier said than done though, you just want to see some positive stories to give you hope. Hang on in there. One day at a time.

I've been at my (ungreatfull, tactless, selfish) cousins baby shower today. Don't really know why I went. Apart from because I'm the bigger person. Two other smug pregnant (with number 3) girls there, who I could quite easily have choked with a cup cake!! Then I get home to news from dh that two of our friends are pregnant with number 2!! I'm definitely having a woe is me day.
AND the diet has gone out the window!!

[Drttc]

Seeking I do not envy your baby shower experience today. I'm so confused as to why some women/couples actually feel smug about their fertility?! Like 'haha I can create life and you haven't- looooser!' If they were to say it out loud they'd sound pretty awful. I often find myself wishing these people would gain some understanding/empathy about just how crushing this can be.

[Seekingmiracles]

I dont normally mind baby showers, I don't begrudge any one a healthy pregnancy, I just feel some people have no idea how hard getting pregnant and staying pregnant can be. And these girls bar my aunt and other cousin (bitches sister) were so oblivious.

[Drttc]

I couldn't handle a baby shower :( Just not there yet psychologically as I know it would hurt & make me anxious. I don't think I'd be missed either tbh!

I've only gotten a small taste of people acting that way and I can't wrap my head around it! I'm tempted to say something and I reckon 'one day' I will.

[Seekingmiracles]

Oh I was very close at times. And I have snapped before, not massively just the odd sly dig with a hell of a lot of intention to it.
I've been to sooo many baby showers over the years I've got used to it. I just switch off from it generally. And normally it's fine because I love the person who's shower it is... But my cousin isn't in my good books anyway.
I keep thinking .... One day.... I better get the mother of all baby showers if/when it does happen. My friends and family have a lot of making up to do!

[Drttc]

Thank you for snapping on behalf of the rest of us!! Hahaha you so will have an amazing baby shower !!! :)

I actually don't think I'd want a baby shower anymore... Which is a bit funny because, being American, I always planned on having one. It's hard to switch my mentality from 'these are traumatic' back to 'yay!'. Time heals many things though- so who knows.

[Seekingmiracles]

Ahh I'm sure you'll change your mind when the time comes- Lord know you'd have deserved some spiking by then. But it is hard to even look that far ahead, I know. Also did not know you were American!

[billy15]

Thanks for the kind words ladies. Its nice to be understood! And to hear people are having similar situations and it's not that Im a loon!! It's so hard when all your friends are just having babies - just like that - and you can't really express how all this shit is effecting you!

Drttc I hope you're coping today? Did you stay off work? Please try not to look online (Im terrible at this!) There must be just as many positive stories as negative, but you prob dont hear about them. Have you been bleeding still? It's so difficult as you just WANT and NEED to know, and the waiting is torture! I think it requires the patience of a saint!! Did you decide what to do about the scan?

I was on the 7.5mg Letrozole! I just hope my period starts (it's due today but I actually hope its a bit late otherwise Ill be O when my dh goes away in Feb!). Ive not seen DrS about this yet, I spoke to Louise who just said it happens and see how this cycle goes. I should prob give her a call but Im not sure it'll change anything. The thing that worries me is Ive been bb temping for over 2 years and Ive never had this before! Am worried the SO has used up all my eggs!! (sounds dramatic I know!!)

Hello to everyone xx

[Snoopysimaginaryfriend]

drttc I didn't know you were American! I hadn't even heard of a baby shower until two weeks ago. And they have baby registers as well

seeking you're a very brave woman. I couldn't go to one, even now. I've just been told off by work colleagues because I haven't bought anything or made a list of what I need

drttc I hope you're in bed with lots of chocolate!

billy that's so annoying, you really don't need any added stress. Are you having scans with your SO, to see how big your follicles are getting?

hi hula

[Drttc]

Despite being American I'm currently in bed eating for England! Though I guess this does look like very fatty fatty bum American behavior

Snoopy- wow you'd never heard of one! Are you thinking about having one then? The reason why they pretty much ALWAYS do them in America is because as they don't have free health insurance (and having a baby costs some crazy amount of thousands of dollars) people pitch in to buy them the basics they'll need for the baby's arrival. I think it was frowned upon in England as an 'Americanism' for a while but it's gaining popularity... I know two people who HATE all things America yet they had baby showers. Think it will soon be a tradition here as well!

[Snoopysimaginaryfriend]

drttc I'm glad you're resting, no telling off for being a lazy daisy from us haha
I really had never heard of them before. I would love the idea of having one but I'm just not confident enough. I've just been told I should put my name forward for the detectives exam on the 7th June, I was kind of flustered for a few seconds but then I thought 'no, stop denying the jelly fish' and I pointed at my (fat) stomach and said 'if this one arrives on time I don't think I'll be doing any exams for a while' haha

[billy15]

Snoopy I did have a scan with this SO on day 11 and no follies and thin lining. This was my 3rd SO cycle. The first and second I had 2 mature follies and good thick lining - I got bfp with my second SO (ended in m/c). But the last 2 bfps were next to each other (i think, or maybe one af between- Aug and Oct), and this is my first af after the 5th m/c so hoping its just because of that. But my first and second pregnancies were only with one af inbetween and I didn't have a problem with my cycle after - and those pregnancies got to 14 and 10 weeks! Just seems like things are going downhill fast! (sorry if Im repeating myself, tiring day at work!) xx

[Snoopysimaginaryfriend]

Ah I see billy. It could be that your cycle is still a little erratic after the mc? I know some people say you're at your most fertile immediately after but I never ovulated directly after a mc and had to have at least one af. I hear you about those tiring days, just spent an hour trying to get on a train at Victoria

[Seekingmiracles]

I would say it's just an erratic cycle Billy, I too have never ovulated in the cycle immediately following a mc. I don't know where that myth comes from! Try not to let it play on your mind. Get positive for SO number 4

Glad your finally feeling even a little bit more confident about your little jellyfish! And you should definitely have a baby shower, by Lord you'd deserve it! I would prob want one as close to the due date as possible!! Haha!

Enjoy stuffing your face Drttc, as long as you're being looked after. Feet up, take it easy

[Hula2]

Drttc - glad to hear you re taking it easy, def a good plan..

Seeking - welldone for coping with a baby shower, can t imagine that was easy.

Snoopy - i was too nervous to get anything ready for ds till i was nearly too big to be able to get anything ready for him ! You ve just got to do what you re comfortable with.

Billy - i was on 10mg letrozole so i think as we get older we need a bit more. I d wonder if the mc has more to do with your cycle being off. My last SO cycle was after i d had a faint pos and i responded the worst of all the 6mns. Fingers crossed next cycle will settle back down, are you going to have a month of SO ?

Afm - day 10 and had some ewcm so feeling optimistic my cycle might be ok this month as usually ov day 12. In theory we re ntnp but we might just make sure we have some early nights this week ...!

[Drttc]

Thanks ladies.

Glad you're able to be more open about jelly fish, Snoopy!

Hehe yay Hula! Have fun ;)

I feel so bad for DH as with this hematoma all 'fun' is off limits...

[Snoopysimaginaryfriend]

drttc, this might be a bit tmi, but DH and I have only dtd once since bfp we're both too scared

How are you feeling today?

[Drttc]

Lol I totally get it Snoopy! Honestly- We're on strict orders not to- but if that gets lifted I'm not at all sure when we'll be feeling confident enough to. Too scary after everything that's happened.

I'm feeling okay. Bit nauseous as usual... Generally bit a little less anxious but still have little freak outs throughout the day. So powerless atm... Looking forward to my external scan on Friday. By 9 weeks a tummy ultrasound is pretty straightforward right?

How about you? When's your next scan?

[Snoopysimaginaryfriend]

I can't remember when they start doing the abdominals, but it is so much nicer than legs akimbo haha

No more scans until 37 weeks apparently but I have my 24 week appointment on the 25th January. I am a bit worried now that no one seems to be bothered about testing my thyroid but I have an appointment with the consultant on Feb 2nd. I'm a bit bamboozled that this hospital have deemed me low risk yet the hospital I went to with first pregnancy immediately said high risk.

[Drttc]

What does the 24 week appointment entail?

I didn't realize you had thyroid issues- are you on medication? I'd take it as a good thing that they classed you as low risk- it means everything is looking sooo normal :) And it has sounded like a very healthy pregnancy!

[Snoopysimaginaryfriend]

Yep, take thyroxine. I was diagnosed before I got married though.

I'm thinking it will be another urine test, blood pressure and maybe the Doppler? It's at the GP surgery though because of 'shared care'

Haha I really hope you're right. I can't believe how lucky I am.

What time is your scan on Friday and how far along will you be? I might need to call in sick because these office chairs are literally giving me a pain in the coccyx and I'm sick of waddling around. Then I can sit at home and wait for your good news!

[Drttc]

Ah right! Glad you've got your consultant booked in soon.

I'm booked in for 10am and according to my latest scans I'd be 9 weeks 1 day. I'm a bit worried though because I don't want an internal (concerned it'll irritate things & cause bleeding) yet I'm not sure how much they'll see abdominally. Can they even see bleeds abdominally? I don't know!

Definitely give yourself a break whenever your body asks- comfort is key :)