Immune /natural killer cell treatment when ttc or pregnant (aka the 18th pred thread!)

[Hula2]

This is a thread for those diagnosed with high or very high natural killer cells and trying to concieve or are pregnant and taking steroids/intralipids etc

Newcomers very welcome

[Tryingno1]

Happy new year guys!

Seeking glad u had a wonderful time away! Hope u switched off and enjoyed the drinking!!! Don't feel bad about it at all - relaxation and enjoyment is so imp on this long road! Fingers crossed for some good news from u soon.
Drttc wonderful news! Sorry re the bleeding but it sounds under control and nothing to worry about. Must have been amazing for u and dh to finally see the heartbeat.
Snoopy bless ur little feet!!! Hope u. Found some comfy shoes and so glad ur scan went wel. Hope ur enjoying the pregnancy now
Hula - sorry re ur cycle. What a pain. Dhea can be strong and also ur quite sensitive to meds? Maybe give it all a few months break so ur body can chill out. I hope ur feeling stronger about not trying anymore.
Sunny hope ur scan was ok
Welcome theru fingers crossed for u! We here to hear u vent and share ur concerns hope u find it useful!

I had a lovely holiday, just want I needed. Find out on Thursday when I start next cycle. Having mixed feelings of fear and worry but also want to get on with it now! Xxx

[sunnyday01]

Hi all - on my first day of maternity leave today - eek. Feels so strange not going to work! It's a stranger eeli ta as its something I've waited for, for so long! Unfortunately sleepless nights seem to have returned - woke up at 4.15 this morning!

Seeking and trying - glad you both had great holidays - it's good to get away from it all for a week or so. Hoping good news for both of you in 2016.

Snoopy - I found buying bigger shoes a funny side effect - however now I can wear my normal shoes again so my feet swelling must have been temporary!

Drttc - so glad your scan was a good one, just keep thinking positive, the early weeks seem to drift by so slowly. I feel like I've been pregnant for years - I think it's because those early weeks dragged so much - they seem to be whizzing by now though which is just as scary!

Welcome to the board theru, will have positive thoughts for you and feel free to share your hopes, fears and concerns here, we have all been on this rollercoaster of emotions and need support at various times.

[Snoopysimaginaryfriend]

Good to see you back trying, glad you had a good time. If they give you the go ahead Thursday do you start asap? Are you doing another fresh cycle?

Wow sunny seems like it has flown by, probably not for you though. I really hope they go back to normal, I can't afford new shoes!

[Seekingmiracles]

Wow the countdown is on now Sunny! Enjoy your mat leave, get plenty of rest and try to do something nice for yourself

Welcome back Trying, hope all goes well on Thursday and you can crack on with the next cycle adapt.

Snoopy - absolutely, I need someone to keep me on the straight and narrow! Just had my last indulgent meal - carbonara! Emptied the cupboards of any left over xmas treats and filled the fridge with healthy foods. I'm going to try to completely cut refined sugar and crappy carbs at least for Jan.

[Drttc]

Hi ladies! Totally missed these messages as my phone stuck on the last page! Thanks for the kind words :) Dr S actually told me to stay on the fragmin as apparently it works differently from aspirin. So I've only discontinued the aspirin- and I don't know how long for. TMI ALERT: I've had so much 'bleeding' lately... But it's not red, it alternates between brown and black! It's so weird and confusing :-/ Just want the bleed to go away! This wait is painfully slow and I'm soooo worried.

Seeking & Trying- so glad you've had lovely holidays!

Good luck on your healthy change Seeking :) The new year is a great time for that kind of thing!

Trying- that's so exciting! I know it's nerve wracking and scary but- we've got to take that leap of faith to get where we want to be don't we?

[Hula2]

Hey Drttc - sorry you re still getting bleeding but if its brown/black then it s just old/clotted blood that is now passing out rather than anything new. Def better than red blood. Have u got another scan with dr s fairly soon ?
Keeping everthing crossed.

Trying - glad to hear you had a great hol. Hope you can get cracking soon and start the 2016 bfps rolling !

[Drttc]

Hey Hula! I see Dr S on Saturday... Though I'm doing intralipids tomorrow & am having another scan then. I kept thinking about it and realized if I were to get bad news I'd rather know before going all the way down to Epsom. Basically I need a pre-scan scan to ease sc-anxiety! Sad I know! I'm pretty sure I've set a record for number of scans in this group... By Saturday it will be my 5th!! Though I am trying to keep an eye on what my hematoma is doing (she tries to justify herself)!

[Snoopysimaginaryfriend]

Wow drttc I though I had a bit of a scan addiction but you hve blown me out of the water haha

hula any more odd goings on? Do you think your cycle might have been calming down after the SO or does it not work like that?

seeking how's the healthy eating? I was doing well until I bought a croissant with my tea bags today
I have no money after Christmas so I have to start eating less haha

[Seekingmiracles]

Snoopy - so far so good, but I'm only half way through day 2! The real test will be when I'm back at work tomorrow - the girls I work with love cakes/biscuits/chic etc --
--
Wow Drttc, you really are going all out on the scans aren't you! Complete opposite of me. I'm a head in the sand kind of gal! But what ever it takes to get you through the early days. We all cope differently!!

Just saw my nhs consultant who has agreed to another SA for dh - he's gonna love me!! And will recommend a lap&dye and hysteroscopy if nothing by May when I see her next. She's also asked me to stop the mid cycle cyclogest. And I've had a test today for MTHFR. Now to see what dr S says at the end of Jan. Had a massive break down on her - I think she felt sorry for me!

[Snoopysimaginaryfriend]

Aw seeking I'm glad you have a consultant who shows a little bit of compassion. I think prof quenby takes her patients off of progesterone from ovulation after three months because it can make the lining too selective?

I need you lot to sort my head out. I know it sounds silly but several times today I've almost cried. Since going back to work and being distracted I don't have time to rest and really lookout for movement and it's making me so anxious. I know logically she's measuring ahead, all her scans have been fine and dr shehata said I might not even feel movement until 24 weeks because of the anterior placenta but after the 20 week NHS scan they gave me a count the kicks leaflet and it has made me really paranoid. It's not that I don't feel movement it's that I don't feel like I'm being constantly beaten up from the inside which is what so many other women describe at this stage. The two times I've seen a midwife they ask how I am and I just blurt out 'fine' and I'm really not. I think it's gotten worse since everyone found out because they talk about maternity leave and 'when the baby gets here' and I'm just still in denial. Sorry to whinge I just don't think I'm coping too well at the moment.

[Seekingmiracles]

Snoopy please do not worry too much. I had a friend with an anterior placenta and like you she didn't feel as much movement. As long as you CAN feel some kind of movement try not to let it panic you. It's about what is normal for you. And like DrS said you may not feel anything for few weeks yet. Your little girl is fine in there

[Snoopysimaginaryfriend]

seeking I know logically you're right. Every scan I've had for the last six weeks the sonographer has said 'oh she's such a little wriggler, you must have felt that movement' and I'm laying there thinking 'erm, no'. I feel her everyday, like a little goldfish, and I know this just an anxious period and it will pass. When I google it there are loads of women with anterior placenta who don't feel regular movement until 30 weeks. DH said he will take me to the hospital whenever I think I need to but he said he could see from my face the moment the midwife started giving me the count the kicks leaflets that my anxiety was going to go through the roof and he's surprised I lasted a week before cracking.

Whereabouts are you in your cycle? Will you be testing this month?

[sunnyday01]

Snoopy, I think what you are feeling is normal after What we have been through, I worry every single day about movemènt and have done since 20 weeks. The number of times I've rang the hospital and been in for monitoring insure they are sick if me!!

Although my placenta is at the back, my baby has faced inwards for most of the time which means I haven't felt a lot of kicks etc just a wriggling feeling. I think everyone always says oh you must be feeling it really strongly but I never did and that did worry me but I once I found out he was facing inwards that dud help. In fact it's probably only in the last month that I have felt definite kicks and punches if that makes sense.

How I coped was that I made sure I had felt some movement - but each day was different, one day I didn't feel anything until early afternoon and I was going out of my mind!

[sunnyday01]

Oh and I think count the kicks us a waste of time, my baby seems to have an hour where is moving like mad then 3-4 hours of nothing - assume asleep so they guidance in there is just that - guidance.

[Seekingmiracles]

I'm currently 3dpo Snoopy, will test in a week I guess.

If you're worried take yourself off to the hospital again, better to be safe than sorry. But I don't think you need to worry, it's just that you've been through so much to get to this point your worries are probably way more heightened than the average person.

I saw a psychic tonight - she asked if I was seeing a coloured dr?! And that I should trust in him. But weird!

[Snoopysimaginaryfriend]

seeking that is weird haha are you taking cyclogest this cycle.

sunny thank you for the reassurance. I know 21 weeks is early to be worried. I might get DH to call the hospital because there is no privacy in this building. I'm sure they will think I'm a nut job

[Tryingno1]

hey guys

so my tnf is still not down. in fact I've gone from 33.6, to 47 when i was preg and now to 37. so things are worse that when i started in october with it.
I'm really upset and feel like i just just give up! everywhere on this journey i just keep getting setbacks. if its not miscarriage, then its my DH sperm, then ii need ivf ontop of it all. now my tnf is being INSANE. I feel like someone is telling me to just give up. when i saw mr S my tnf was 23! whats happened in the last 2 years.

so now I'm having intralipids on monday (hopefully she's trying to squeeze me in) and then a rest in 2 weeks, then if still high another intralipids and then ill start. I'm hoping i can fit it all in so i start with my feb cycle.

sorry for the rant. not sure why I'm so upset, I've waited so long whats another month? i think I'm partly worried ill start my cycle with a high tnf and then its going to be doomed before implantation even happens.

so positives for the delay
1 - i can loose some more weight
2 - i can plan for a feb start rather than starting tmrw which is what would have happened
3 - i can do some acu this month as i haven't done it for a few months
4 - dh drank a bit too much over holiday time, so I'm hoping he totally lays off so we will have had 2 dry months before cycle

seeking sorry ur also having a tough time. IT SUCKS. i hope u get ur bfp soon.

snoopy - its natural to feel worried with what we have had to go through., I'm actually worried i can't handle the stress of being preg if i ever fall again! i think going for check ups if it gives u peace of mind is what u should do. the stress isn't good for her! I'm sure everything is fine though.....

[Snoopysimaginaryfriend]

Oh trying it's perfectly normal to be upset. Have ARGC given any indication why your tnf hasn't gone down? Am I right in thinking dr s will only do one retest and that rosa's went up so she just went for it anyway? It's good you can see some positives, you could have an October baby and dress them up like a little pumpkin

[Seekingmiracles]

Trying that is rubbish and perfectly acceptable to feel upset by it. Like you say, it's just another set back. But there are positives, like you say.
You will get there my lovely, you are a determined woman.

[sunnyday01]

Oh trying, that is rubbish. Fingers crossed the intralipids do there stuff and you can start in feb.

[Tryingno1]

Thanks guys
They start me in Feb anyways regardless as they can't wait forever
I have no idea why it's still up. I was only borderline up at 33 to start off with. I don't have w single other medical issue or autoimmune problem to explain why I have this stupid issue!

Rosa had high levels but reacted to her first humira so couldn't have it.

I'm not filled with much hope and dh keeps saying he can't keep doing this is this fails . So no matter how determined I am not sure if the road will end for me before I want it to :(

[Tryingno1]

Snoopy ur pumpkin comment made me giggle. If only!

[Drttc]

Trying I'm so sorry. A lot of things happen in this journey that don't make sense. All I know is that we've heard plenty of stories of tnf being high yet still having s healthy pregnancy. Also- maybe the few weeks of acupuncture will help reduce it? It seems like it can help with just about everything!

[Tryingno1]

Thanks lovely

Well I'm going to see her again and booked appts regardless coz I find her lovely

I've pulled myself together and feeling better now. I just need to keep dh strong so we keep on this journey till I get my baby. It doesn't seem possible though!

How r u? How is the spottinng?

[Snoopysimaginaryfriend]

Well I definitely believe it will happen for you trying and your DH probably just needs a few days to feel sorry for himself. From what you've said he's just as determined as you are but its hard to be strong all the time.