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Conception

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TTC/Pregnancy on Prednisolone or similar part 4

993 replies

digitalgirl · 19/12/2011 11:28

A positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

Part 3 here

Part 2 here

Part 1 here

OP posts:
freelancegirl · 28/12/2011 17:59

Today's list, moved everyone forward by a day and changed what scan details I can remember. Hope it's ok!

Wednesday 28th December

BFP
3rd Trimester
Stogan - V high NKC - BFP 9/7/11 cycle#2- 29+4 Due 10/03/12 next scan 30/12

2nd Trimester
Digitalgirl - High NKC - BFP cycle#2 24+2 Due 16/04/12 MW appt 25/01
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks 21+3
Comedy - V High NKC - BFP cycle#2 ? 18+4 due 26/5/12 next scan ?
Iggi - High NKC & Hypothyroidism - BFP cycle#2 - 17+6 anomaly scan 05/01
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP Clomid cycle#3 - 17+4 next scan?

1st Trimester
Freelance - V High NKC TTC#1 Hydroxchloroquine, Pred, Intralipids. Thyroid/hashimotos. MC 1st cycle. BFP#1 10+1 Scan 6/01/12
Cheerfulcharlie - V High NKC, MTHFR/TTC 1/ (metformin, intralipids, no pred). 9+6 Scan 29/12
batteryhen - High NKC, factor v leiden. TTC#1 BFP cycle 3. 6+4 Scan 29/12/11
coleyoz - V High NKC. TTC #2, BFP cycle2, 6+2, Next scan?

TTC
Waiting to test
duggs1976 - High/V High NKC - TTC #1 - Superovulation cycle2
buster76 - V High NKC, Factor V Leiden.

Waiting to ovulate
eurochick - High NKC, superovulation cycle 1, pred cycle 1
picolina123 - V High nkc, pred cycle 1
Snoopygirl - V High NKC TTC, #3,
Cherrycheeks - V high NKC, TTC#2
Suemays - High NKC, TTC#2
Havingkittens - Upgraded from High to V High NKC TTC #1
PQ77 - V High NKC TTC #2 (BFP cycle one but mc)

WTTC
Hopefulfor2nd - High NKC TTC in New Year
ScooterChaser - V High NKC - TTC#2
ChoccyPud - V High NKC - (chem pg cycle 2 of pred (only found afterwards), mc @c.5 wks cycle 4 of Pred, confirmed @6wk scan) TTC#1, review w/Dr S 14 Jan.
Arianhod - V High NKC, MTHFR homo, hypothyroid, TTC#2
Lemonsherbet - awaiting results
Breezyweezy - V High NKC - TTC#1 from January
AandRmum - High NKC

freelancegirl · 28/12/2011 18:04

PS Cornflakes shall we add you to the BFP camp on the list?!

Also Battery good luck for scan tomorrow xx

sarlat · 28/12/2011 19:58

Evening

Cheers for making me feel so welcome and for all the advice. I have made enquiries with Sheffield CARE and New Life Centre with Dr S. Have recieved 'out of office replies' for now but it's good to know the ball is rolling. I can't believe the level of knoweldge on these threads. I thought I knew loads about fertility but it seems I have a lot to learn about the immunology sciences.

It is great to see so many success and nearing success stories on this thread too - just shows how effective this treatment can be. My feelings are if I have elevated NK cells or whatever, I can do something about it. If I don't, I have explored the issues and can move on.

Will update when I can.

Coconutfeet · 28/12/2011 20:49

Great news Coley and Cornflakes! Really pleased that you can both breathe a sigh of relief for a while.

Cheerful ? I would be super-cautious about the chemicals as well so I don?t blame you for escaping. A couple of days in a hotel sounds lovely anyway. Good luck for the scan.

Duggs and PQ ? Great that you had a good meet-up. I know I haven?t met any of you in real life yet, but it?s such a relief to have found you all on here.

Battery ? Good luck for your scan too.

Comedy ? It?s such a relief when you start to feel those movements isn?t it. This one is jigging about like mad now, particularly when I go to bed. I know it?ll become annoying later on when I can?t sleep but at the moment I?m really enjoying the reassurance.

Free ? I was heartily sick of the progesterone too and was so pleased when Mr S said I could stop. Funnily enough I didn?t feel anxious about that. How are you feeling today? You?re so close to the being in what Mr S refers to as the Big League. I know that once you?re past 10 weeks with a good scan he definitely starts to relax.

Sarlat - You're right, people are very knowledgeable on here. I think lots of us have found that you really need to educate yourself in order to get anywhere when it comes to fertility. I hope you get some responses from the various clinics soon and can start to move forward. Although I found the test results scary, it was good to be taken seriously for a change and actually have a plan.

Well, I?ve been busy packing for another few days away. We only got back from my parents yesterday so I?ve been rushing around getting washing done so that we can head up north to DP?s family. It?s lovely to catch up with people but I really fancy some down time at home before I head back to work.

eurochick · 28/12/2011 21:08

That's excellent news, Coley.

Cheerful escaping sounds like a good idea for mind and body!

I am still to lay an egg. Mr S reckoned day 18 (my latest ever) which is today, but I don't think it has happened yet, but I guess my temperatures in the morning will tell.

Sorry for not namechecking everyone. Good evening to all!

digitalgirl · 28/12/2011 21:58

cornflake fantastic news! Looks like it was a late egg after all. Hope you have a relaxing time in Devon. We'll be here to hold your hand for the next scan in 2 weeks.

coley great to hear good news from you too, was lurking earlier and getting a bit anxious that you hadn't posted yet! Enjoy Lake Como - would love to go there myself!

duggs glad you got a little boost today.

sarlat great you've got the ball rolling. You'll be pleasantly surprised how quickly private clinics get back to you (compared to the waiting lists of the nhs).

euro sorry egg seems to be elusive after taking the letrazole. Hopefully it'll turn up soon and you'll get a nice fat temp rise to match.

free thanks for updating list! Am also looking forward to the day you can stop taking various pills, will be such a momentous milestone.

comedy and coconuts hooray for kicks! Am getting much stronger kicks now too. You can see my belly move when it happens. I find an active day is followed by a restful day. Or sometimes the baby turns and I get kicked in my bladder!

So it's Cheerful and Battery scans tomorrow. Good luck ladies!!!

OP posts:
igginezerscrooge · 28/12/2011 22:12

Hello, I always feel so guilty when I look on here and see the long and thoughtful posts everyone else puts on - I tend not to have the memory retention to comment on more than the last couple of posts. Can't even blame it on pregnancy, I'm always rubbish! Anyway it is good to see good news stories and that Christmas has been survived by all. I was in Mothercare today and felt like a fraud amidst all the "real" pregnant women. Doubt that feeling will ever pass!

igginezerscrooge · 28/12/2011 22:12

Hello, I always feel so guilty when I look on here and see the long and thoughtful posts everyone else puts on - I tend not to have the memory retention to comment on more than the last couple of posts. Can't even blame it on pregnancy, I'm always rubbish! Anyway it is good to see good news stories and that Christmas has been survived by all. I was in Mothercare today and felt like a fraud amidst all the "real" pregnant women. Doubt that feeling will ever pass!

Arianrhod · 28/12/2011 22:32

iggi can I just say that I love your Christmas nickname, makes me laugh every time I read it! And just wanted to say you're not alone in the rubbish memory retention .. I carefully read through everyone's posts, but when it's time to write mine, completely forget what everyone's said. Hence the general /waves to everyone usually!!

Can't believe it's our follow-up "plan B" meeting with Mr S next Wednesday, where has the time gone? Actually feels like I've not been pregnant at all since MC #3 in July, this last one seems to have vanished from memory. Waiting for rearrival of AF, which I'm guestimating will be around my birthday in a week and a half's time. If my body decides to play ball.

Havingkittens · 28/12/2011 22:42

Blimey, there's been a bit of a post Christmas frenzy on here. Lots of news and new posters. Welcome to Cornflake, Sarlat and Carebare. Hooray for those with good scans this week.

Sad times here. My mum died yesterday evening. I'm on a bit of a rollercoaster right now. Some of the time I feel like it's not real, and then I fall into deep sadness. I'm guessing the balance will tip very much in favour of the second option before very long Sad.

We are having the funeral on 2 Jan and I will fly back the following day which was when I was due to have my scan at NLC so I will have to do that on my next cycle, as well as starting my blood tests in about 3 weeks.

Ari, my birthday is also in a week and a half. I wonder if we share a birthday.

digitalgirl · 28/12/2011 22:56

Oh kittens Sad Sad Sad I'm so so sorry.

OP posts:
eurochick · 28/12/2011 22:58

iggi but you posted twice to make up for it! I am the same - I can never remember everyone I wanted to reply to when I get to reading the end of the thread!

Oh kittens I am so sorry to hear that. The rollercoaster is only to be expected. Forget about the ttc stuff for a few weeks and let yourself grieve properly.

I'm another January birthday but probably around a week after Arie and Kittens.

PQ77 · 28/12/2011 22:58

My sincere condolences kittens, I'm so sorry. I'm trying to resist all the clichés I've heard the last few months but they keep popping into my head. So i'll just say I'm so sad for you Sad

Comedyworks · 28/12/2011 23:35

So so sorry to hear your news kittens x

Arianrhod · 28/12/2011 23:44

Oh kittens I'm so very sorry, words really cannot console you at this terribly sad time. Look after you hugs. (birthday is 8th Jan to answer your question but sad tidings such as yours put birthdays into the shade right now, I think)

freelancegirl · 29/12/2011 01:27

Just checking in quickly before bed and so so sorry to read kittens' news. If there is anything we can do please do let us know. My heart really goes out to you. Such very sad news and I realise you are facing some really tough days ahead whilst the practicalities are sorted out in france. Like I said, if there really is anything any if us can do please do let us know xxx

hopefulfor2nd · 29/12/2011 03:08

Kittens, I never know what to say but thoughts are with you and we're all here for you x x x x x

Cheerfulcharlie · 29/12/2011 06:20

Kittens, so sorry to hear about your mum. I bet it was of great comfort to her having you there in her last days.

Just finished at my scan. Good news- wriggling away and measuring 10 weeks 2 days! Had my 'booking bloods ' done too.

Battery- good luck for your scan today.

duggs1976 · 29/12/2011 06:45

Oh kittens. She is resting now and you were there for her. Tough days on this next part of your journey. You r s very strong woman from what we have witnessed and will be stronger in 2012. We are thinking of you as this awful time. Big hugs and some of our cocoon house strength coming your way. X

lemonsherbet · 29/12/2011 07:08

kittens just wanted to say sorry to hear about your mum.

ColeyOz · 29/12/2011 07:10

Kittens - I'm so sorry to hear of the loss of your mum. I hope you have some solace from the time you have spent with her recently. I'm thinking of you at this time.

ColeyOz · 29/12/2011 07:14

Great news charlie on the scan - congrats! I'm just updating the list with my next scan and moving everyone forward a day.

Thursday 29th December

BFP
3rd Trimester
Stogan - V high NKC - BFP 9/7/11 cycle#2- 29+5 Due 10/03/12 next scan 30/12

2nd Trimester
Digitalgirl - High NKC - BFP cycle#2 24+3 Due 16/04/12 MW appt 25/01
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks 21+4
Comedy - V High NKC - BFP cycle#2 ? 18+5 due 26/5/12 next scan ?
Iggi - High NKC & Hypothyroidism - BFP cycle#2 - 18+0 anomaly scan 05/01
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP Clomid cycle#3 - 17+5 next scan?

1st Trimester
Freelance - V High NKC TTC#1 Hydroxchloroquine, Pred, Intralipids. Thyroid/hashimotos. MC 1st cycle. BFP#1 10+2 Scan 6/01/12
Cheerfulcharlie - V High NKC, MTHFR/TTC 1/ (metformin, intralipids, no pred). 10+0 Next Scan ?
batteryhen - High NKC, factor v leiden. TTC#1 BFP cycle 3. 6+5 Scan 29/12/11
coleyoz - V High NKC. TTC #2, BFP cycle2, 6+3, Next scan 11/01/12

TTC
Waiting to test
duggs1976 - High/V High NKC - TTC #1 - Superovulation cycle2
buster76 - V High NKC, Factor V Leiden.

Waiting to ovulate
eurochick - High NKC, superovulation cycle 1, pred cycle 1
picolina123 - V High nkc, pred cycle 1
Snoopygirl - V High NKC TTC, #3,
Cherrycheeks - V high NKC, TTC#2
Suemays - High NKC, TTC#2
Havingkittens - Upgraded from High to V High NKC TTC #1
PQ77 - V High NKC TTC #2 (BFP cycle one but mc)

WTTC
Hopefulfor2nd - High NKC TTC in New Year
ScooterChaser - V High NKC - TTC#2
ChoccyPud - V High NKC - (chem pg cycle 2 of pred (only found afterwards), mc @c.5 wks cycle 4 of Pred, confirmed @6wk scan) TTC#1, review w/Dr S 14 Jan.
Arianhod - V High NKC, MTHFR homo, hypothyroid, TTC#2
Lemonsherbet - awaiting results
Breezyweezy - V High NKC - TTC#1 from January
AandRmum - High NKC

Stogan · 29/12/2011 09:44

Morning ladies

kittens so sorry for your loss. Losing a parent is so hard and u will never ever forget the pain but it dies get easier Hunni I promise, it takes a long time but it does. Anything we can do just say it, massive hugs xxx

Fab news on the scans ladies cornflake,cheerful,coley what greT news.Grin

Still bricking it about mine tomorrow but the fact that babys fist (or some little round body part) spent most of last night protruding from my ever growing gut, and it is currently doing the macarena, or some other equally energetic dance , is a great comfort, all be it strange it's fab !!! X

Any nice plans for new year? X

Coconutfeet · 29/12/2011 11:06

Kittens- I'm so sorry to hear the sad news about your mum. Thinking about you at this hard time. X

freelancegirl · 29/12/2011 11:12

Coley thanks for doing the list!

Cheerful am so pleased that your scan was good! Hope you can now have a relaxing, chemical-free couple of days in the desert. When are you having another one? Let us know and we can add it to the list.

Stogan, good luck for your scan too, although by the sounds of it the baby is flung mighty fine!

I am lapsing back into the 'I don't feel pregnant enough' fear today do far. Am so worried it's all going to go wrong just as I get so close to crossing the safe or rather safer line. I have had a flurry if organisation this morning as things need to be booked. On the advice of mr s I have booked a nuchal with the fetal medicine centre this morning for thurs 12th Jan. I have also had a letter through confirming the nuchal at my local hospital (which I will probably cancel) on the 18th Jan. But all this might be futile and need cancelling subject to what happens at my next appointment with mr s on the 6th Jan! Sp it all feels a bit weird.

It also feels a bit weird going on about this stuff when kittens is going through such hell. I remember when I lost my boyfriend and best friend when I was 21 that I couldn't quite believe that life was still going on around me, people were still planning nights out, working out what they were going to have for dinner and day to day life was still carrying on despite my world having changed forever. Kittens, hope you're ok with us carrying on here and wittering about ovulation, nk cells etc etc.

No I haven't got any plans for NYE, am usually lying on a beach somewhere! I think this will be my first ever nye staying in and watching tv.

Good luck for battery and the scan.

Hope everyone else is ok, sorry if I've missed any news - am on phone xx