TTC/Pregnancy on Prednisolone or similar part 4

[digitalgirl]

A positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

Part 3 here

Part 2 here

Part 1 here

Ohh lotions I agree with free as soon as u wake up pop the pred !!

Oh I've been having a bit of a lurk on the super ov thread too duggs! Great to see new people there too. Pebbles has been my best friend since I was 7. We grew up together, moved from dolls and tree climbing to boys and booze and all the drama that entails and now we both have high killer cells! I know she's lurking here too so needs to join. Or else I will chase her round the house, pin her down, block her nose and force feed her peas like I did when we were ten :)

What's time scale for Vegas then TTC again duggs?

Depending on Monday's results ! Hopefully I can kick off again early feb! If they have to do some surgery then I guess it will be march ! Glad u helped pebbles on her journey. A very good friend indeed.

Is anyone still planning to meet up next Saturday??

I believe quite a few were planning to . . PQ for one ?

Afternoon.....AFTERNOON DUGGS!! HOW'S YOUR HEAD . Blimey you were going for it surprised you could manage a post today, sounded crazy but fun.

lotions were you taking some of pred in day then, oh my I bet you were sleeping bad but saying that i look like death after one hrs sleep thurs night and still catching up. Six last night in a row....heaven and that' on 40mg all in morning.

absolutley blank stick so know outcome for monday's blood test but will have it anyway out of interest. Just really want af to come quick so can get on the Super Ov. Still no sign at all. How long does it take to come back? I have a couple of questions so will hop over to the SOV board at some point.

The friends over didn't go too bad, shes a nice lady and was probably nervouse about meeting us too. DS is such a little charmer he was all over her cuddling and snuggling up!

pq streetdance was good. DS learnt a 'Death Slide' move! he wants to go again which good. Next week they put the routine together can't wait! sorry for your BFN again. It's crap - like Sue says it's the gettin hopes up then the crushing realisation. I'm a toughie day to day but when someone spells things out well I'm a mess for day or so. Feel ok today so onwards and upwards....

free where are you going on hols - did you say St Lucia? Sounds like you would get away with a nice Tankini, me? Waynetta slob springs to mind, need some reinforcements in tummy dept, not gaping gap where everything could spill/escape from... omg the thought of it. Saying that I must seriously get some weight off. I was a good weight last time I conceived so I'm sure that helps not carrying too much. I heard once that that's one of the biggest factors against getting pregnant.

hope *Scooter is having a relaxing break.

Hi ladies, thought it was time I stopped lurking on this thread and joined in if you don't mind. As I said on the super ov thread am new to this kind of thing, not even on Facebook much to Free's disgust :). I can confirm the story of the peas is indeed true and am sure she once did it with gravy granules, yuck! Free I know we always liked to do everything together even to wearing the same clothes but it's getting ridiculous now with the killer cells, lol!

Duggs do you have a hangover from your night out? As I mentioned on super ov I have a terrible one, making the most of my time off from treatment but maybe a little too much last night!

Hi pebbles good to have u here, good in an extra person kind o way not that u have the cells ( u no what I mean I'll stop digging now !!) so strange that u and free grew up together and now end up in The same situation ?! Big welcome anyway ?

Thank you Stogan, everyone is so friendly and welcoming. Don't worry I know what you mean :). It's great to be able to talk to other people in the same situation, Free will be pleased as it means I won't have to bug just her all the time with my questions! I am still learning about the whole nk cell thing sonits great to have all you ladies to talk to. Although if anyone wants to ask anything about ivf then I'm your girl.

Welcome pebbles. I am planning on going to the IVF route around April all being well, so I might well pick your brains in the run up to it.

Where did you have yours? (If you feel like sharing, feel free to post a potted history of your "journey". I think most of us have at one time or another and there is a summary spreadsheet somewhere!).

Yes am hungover. My folks going " around the world" tomorrow until June so farewell dinner tonight with my brother and his new wife ! Trying to muster the energy. I will be asking about IVF I might pm you or ask on other thread rather than clog up nk one?!

Euro please feel free to ask away, will be happy to help if I can. Let's hope you don't have to move on to ivf but if you do don't worry as its really not bad at all. You get used to the injections in no time at all. Well my journey has been v long! Came off the pill about eight years ago although didn't really start ttc for another year as my cycle went haywire! After about 18 mths had a laparoscopy and hysteroscopy and told all fine, year or so later still nothing but took a break from it all as got fed up and thought it might happen if I think about it (if only I knew!) Went back to the doctors but because I had moved and had been a year or so had to have the above again and still unexplained so referred for ivf. Took ages but eventually started ivf at Hammersmith (nightmare place to be avoided if poss!) where i found out i have pcos. I overstimulated (v uncomfortable) because of the pcos but they got 28 eggs of which 21 fertilised. Embryos had to be frozen to give me time to recover and then I got a bfp first time but turned out to be chemical. Had some more goes there then managed to change to Oxford Fertiliy Clinic whic is soo much better! had a fresh go but no success, overstimulated again and then got a bfp at the next dozen go back in September but never saw a h/b and started miscarrying around 7wks. Unfortunately dragged on for two long months and then just got my first AF since last weekend. Phew bet you wished you hadn't asked now!! :) oh and of course went to see Mr S as persuaded by Free and diagnosed as having high nk cells.

Rather jealous of the hangovers. an off out to eat now and might just treat myself to a sniff of someone's wine. Maybe pick up a glass from a nearby table and have a good whiff :)

Yes it is strange that Pebbles and I are here in the same boat. although she was trying when I was going -children? Ew! But it's been amazing to have each others support since I started 'trying' and then failing spectacularly. And with the nk cells thing, having known her from such a young age and knowing family history of autoimmune things, allergies she had etc etc itadw sense from my dr googling/obsessive research that she should be tested too. Et voila! Pebbles we will add you to the list!

Don't be jealous its awful! Actually perking up a bit after some coke (as in the drink I might add) makes you burp and feel less sick! Mind you the Metformin is making me do some spectacular burping, can compete with my dh now. Sorry this is probably way tmi.
I must admit Free I occasionally thought I would never see the day when you would want kids :o

Welcome pebbles - lovely to have you onboard, but sorry for the struggle you've had so far. What a journey!

duggs sounds like a fab night out!

pq and snoopy sorry it's looking like cp's for you both . Had my hopes up for you. snoopy if you're taking cyclogest that could be delaying your af.

Would love ds to do a streetdance class. Might have to investigate - but I suspect he's still too young.

All fine here, except knackered. Was supposed to be out last night but couldn't face leaving the house and trekking to south London. Will be doing that tomorrow for a pub lunch but at least that'll be over by 3pm. Is it wrong that I'm actually more excited about our new front door arriving on Monday for the new porch?

Might try amending list in a bit. See who's got scans coming up this week. Will have to get laptop though, phone about to die.

Welcome Pebbles, funny how you and Free seem to share everything - even the killer cells!

Regarding IVF, I had a chat with my acupuncturist today about all the different clinics and how they view killer cells. He told me that the Oxford fertility clinic do not believe in Killer cells and so will not perform an IVF with drugs to surpress killer cells. Apparently ARGC do treat for killer cells with IVF and that is one of the reasons the main consultant was put under investigation a while ago as like Dr S he was using doing treatments outside of the normal plans for IVF and is one of the reasons their success rate is so high (especially for women who have had unsuccessful IVFs). My acupuncturist seems to think I dont need IVF as we need to get the treatment right for the killer cells first.

Have tried to scan through the posts - and have stalked on the superov thread to see where you're all at with your cycles, but can't see anyone who's on the 2ww. lotions you're the only one waiting to test right now, do you want to go on the list?

So we have coley, battery, and free scanning this week. And me at the MW on the doppler (which is the closest I'm getting to a scan from now on.

Saturday 21st Jan
BFP
3rd Trimester
Stogan - V high NKC - BFP 9/7/11 cycle#2- 33+0 Due 10/03/12 next scan 10/02/2012
Digitalgirl - High NKC - BFP cycle#2 27+5 Due 16/04/12 MW appt 25/01

2nd Trimester
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks 24+5
Comedy - V High NKC - BFP cycle#2 ? 22+0 due 26/5/12
Iggi - High NKC & Hypothyroidism - BFP cycle#2 - 21+4 Next scan March
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP Clomid cycle#3 - 21+0 next scan?
Freelance - V High NKC TTC#1 Hydroxchloroquine, Pred, Intralipids. Thyroid/hashimotos. MC 1st cycle. BFP#1 13+4 Next scan 27/01/12
Cheerfulcharlie - V High NKC, MTHFR/TTC#1/ (metformin, intralipids, no pred). 13+2 Next Scan (15 weeks)

1st Trimester
batteryhen - High NKC, factor v leiden. TTC#1 BFP cycle 3. 10+0 next scan 25/01/12
coleyoz - V High NKC. TTC #2, BFP cycle2, 9+5, Next scan 23/01/12
picolina123 - V High nkc, pred cycle 1
Hopefulfor2nd - High NKC - TTC#2. First scan 8/02/12

TTC
Waiting to test

Waiting to ovulate
Suemays - High NKC, TTC #2
buster76 - V High NKC, Factor V Leiden
Arianrhod - V High NKC, MTHFR homo, hypothyroid, TTC#2
eurochick - High NKC, superovulation cycle 2, pred cycle 2
Havingkittens - Upgraded from High to V High NKC TTC #1
PQ77 - V High NKC TTC #2 (BFP cycle one but mc)
Snoopygirl - V High NKC TTC, #3
Cherrycheeks - V high NKC, TTC#2

WTTC
duggs1976 - High/V High NKC - TTC #1 - awaiting hysteroscopy, then superovulation cycle3
ScooterChaser - V High NKC - TTC#2
ChoccyPud - V High NKC - TTC#1 from March
Lemonsherbet - awaiting results
Breezyweezy - V High NKC - TTC#1 from January
AandRmum - High NKC
Cornflakes30 - V High NKC, underactive thyroid

Thanks Digital and apologies to everyone for that v long post of my history but a lot to fit in!

Hi Suemays that's really interesting about Oxford, explains why they weren't keen to do immune testing when I asked after my mc. They said I should carry on and have one more go at ivf first, thank god I didn't listen to them. I still have another one or two free attempts with them as we have frozen embryos there. Mr S thought it would be best to do the super ov for 6 mths and then if not go back to ivf. I guess I could still take the pred without telling them......
Do you mind if I ask about your history/treatment?

digi I was thinking that about cyclogest delaying af. What to do? Two more nights to take both before Monday. I;m pretty sure 99% it's a no -you know you can just tell when it is. also do I just stop dead the pred if it is a no (as it's 40mg)?

It's prob 5 and up in dance class. Can't wait to see his routines when practiced, he loves all that.

what did you do sue* if don't mind me asking?
Hope af comes back quickly as just want to move on. Scared about Sup ov and it taking months to get right amount of follicles (too little, too many). Bet it was good taking a look at what's going on in there though!

Scrapped the holiday I really wanted to go on as feel I really need to concentrate on this as lack of time. Cheered myself up with looking to book a break in Brittany at Easter, beaches there gorgeous for kids. Nothing like looking forward to a nice holiday

Thanks for moving me off digi don't want to keep looking at that.

sorry pebbles for my self consumed posts. Welcome, how nice to be able to RL handhold with your buddy. good luck with it all x

Snoopy I just wanted to say I am so sorry for what you are going through. The whole am I am I not scenario is such a mare and I really feel for you.

Thanks for the potted history, pebbles, and the comforting words about IVF. My closest friend has 3 beautiful IVF children but I am still freaked out by the idea of all those drugs. I am a bit of a hippy at heart and will sit all day with a headache rather than take a paracetemol. I have just about got my head around taking the Letrozole and steroids. IVF just seems like such a big step. But I will get my head around it.

snoopy I hope your body sorts itself out one way or the other and puts you out of limbo!

Sorry about the possible chemical snoopy :( Sending big hugs to you x

Waves to pebbles.. I'm also a superovulater! Well I think I'm meant to be. Still have AF on CD 10 today! Maybe as AF was 4 days late it is now lasting longer?
Off to the park for an early Sunday stroll.

snoopy and pq sorry you are in limbo at the moment. Hopefully things will work out.

lotions and pebbles a belated welcome to you.

I am going to be out this month, my DH is going to be working away. I suppose in one way it is good, but in another it feels like time is ticking on and until I conceive again we are no further forward in knowing if things are going to work or need adjusting. Does that make sense?

duggs sounds a brilliant night out.

Good luck with the scans this week. Hope everyone is having a good weekend.

Cherry come join super ovulation thread too?