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Original poster

Called back to consultant after DS brain MRI

990 replies

nearlymumof5 · 22/06/2022 18:08

hello, my DS aged 7 has been having nausea, sickness and headaches since November and through lots of pushing managed to get an MRI which was on Monday eve - we were told to expect results in 2 weeks. Today I received a phone call from the paediatric consultants secretary asking myself and hubby to go in tomorrow at noon. I’m terrified. Has anyone else got experience of this? What’s scared me most is that they have asked me to bring hubby. They have requested that we don’t bring DS. I don’t even know what I’m asking for on this thread, maybe someone that has been in a similar situation? Thanks x

OP posts:
Are your children’s vaccines up to date?
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Frazzled2207 · 27/06/2022 09:30

Thinking of you today

maeveiscurious · 27/06/2022 09:38

Thinking of you all and your ds today Flowers

maeveiscurious · 27/06/2022 09:38

Thinking of you all and your ds today Flowers

Hm2020 · 27/06/2022 09:43

Good luck for today Flowers

Hm2020 · 27/06/2022 09:45

Good luck for today @141mum

ScruptiousBears · 27/06/2022 09:45

Good luck for today.

thesunwillout · 27/06/2022 09:45

Very good luck today
Xxx

iRun2eatCake · 27/06/2022 09:47

Hi OP. Friend of mine also attends JR with her DS who has a brain tumour.

She recomends this charity www.thebraintumourcharity.org

And to ask about Clic Sargent

TheDoveFromAboveCooCoo · 27/06/2022 09:47

Hope all goes well today x

TheDoveFromAboveCooCoo · 27/06/2022 09:48

Hope all goes well today x

Decafflatteplease · 27/06/2022 10:04

Another one thinking of you all today. As a many surgeries mama I echo what another person said about sleeping or resting if you can while DC is in theatre I know it's easier said than done but I use theatre time to sit outside if possible, have some food and just "stop" and breathe maybe listen to some soothing things on your phone etc like on YouTube there are lots of lovely things. Then you can get back to DC a bit more rested when they are back.

Thinking of you all today!

Squiff70 · 27/06/2022 10:17

Wishing your boy well. Hope today goes as smoothly as possible and he has a quick recovery.

Somuchgoo · 27/06/2022 10:17

If he is taken to ICU after the surgery (we were) you probably won't be able to stay overnight (i or more precisely, not allowed to sleep there).

Its the hardest thing, but it's ok to go back to Ronald etc to sleep that first night. He'll be dosed up, and the nurses are amazing, and you'll need your strength for when he is properly awake and needs you (the following few days).

They'll have your phone number, and you can ring them during the night to check on him. It felt totally unnatural and wrong leaving her in ICU, but you can't run on absolutely empty.

Thinking of you.

Flux1 · 27/06/2022 10:57

Wishing your son the very best in surgery today and in his recovery. I hope you and his Dad can get some rest while waiting. Thinking of you all xx

GreyGoose1980 · 27/06/2022 11:01

Thinking of you and your DS today OP. Xx

IceCreamYouScreamWeAllScream · 27/06/2022 11:44

Thinking of you all today Flowers

Braggiography · 27/06/2022 12:52

Thinking of you and your family today, OP. Hope all goes well. Flowers

JustGotToKeepOnKeepingOn · 27/06/2022 13:00

Sending love and strength to you, your DH and darling boy.

Mexicansky · 27/06/2022 14:15

Keeping thinking of you, your DH and your boy today. I’m hoping you have some positive news later.

Assistanttotheregionalmanager · 27/06/2022 14:36

nearlymumof5 · 25/06/2022 00:01

I thought I’d pop a quick update - scan today shows the slightly bigger than golf ball sized tumour is in his cerebellum and he also has a blockage (not a mass) in his spine. Op taking place on Monday which will be at 9 and for the majority of the day. I’m feeling weirdly ok, DS is chatting up all the nurses and although anxious is exploring our new environment. Staff couldn’t be more helpful and attentive. Have met with so many people including the surgeon/s. A biopsy will be done which will take 7-10 days to come back, I’m expecting cancer but we shall see xx

Thinking of you

Pansypotter123 · 27/06/2022 14:55

Just another mum reaching out to send so much love to you and your family. Xxx

Pansypotter123 · 27/06/2022 14:56

Just another mum reaching out to send so much love to you and your family. Xxx

mamatoTails · 27/06/2022 14:59

Thinking of you

liliainterfrutices · 27/06/2022 15:11

Thinking of you all today, OP. Hope everything goes well for you xxx

Tallisimo · 27/06/2022 15:20

Hope the op goes well xx

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