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Called back to consultant after DS brain MRI

990 replies

nearlymumof5 · 22/06/2022 18:08

hello, my DS aged 7 has been having nausea, sickness and headaches since November and through lots of pushing managed to get an MRI which was on Monday eve - we were told to expect results in 2 weeks. Today I received a phone call from the paediatric consultants secretary asking myself and hubby to go in tomorrow at noon. I’m terrified. Has anyone else got experience of this? What’s scared me most is that they have asked me to bring hubby. They have requested that we don’t bring DS. I don’t even know what I’m asking for on this thread, maybe someone that has been in a similar situation? Thanks x

OP posts:
Are your children’s vaccines up to date?
Shitscared123 · 25/06/2022 17:50

Lots of strength, love, and positivity being sent your way. I have some measure of what you are going through. Wishing you the best care. In the days to come, maybe you and hubby will deal with things differently once the shock of it all settles. I hope you will have the strength to care for each other as much as you will for your boy x

Twixie2022 · 25/06/2022 18:58

Sending lots of strength to you all especially your boy. He sounds so brave. Fingers crossed for good news with the biopsy. Try and remember to look after yourself while going through this. It’s very easy to forget about your own needs when it comes to times like this. 💐

Vebrithien · 25/06/2022 19:07

Joining in to wish you and yours all the very best.
I will keep you all in my prayers.

paradyning · 25/06/2022 21:03

If anyone offers you support from Helen & Douglas House grab it with both hands x

Barelyfunctioning3 · 25/06/2022 21:05

Wishing you all the best, your little boy is so lucky to have you as his mum. It is thanks to you and your strong advocacy that the ball is rolling so quickly now. I don't know you but I'm really bloody proud of you.

You've got this DS 🙏

Katya213 · 25/06/2022 21:17

Always thinking of you and your boy. He Is in the best of hands.

ImHavingAnOldFriendForDinner · 25/06/2022 22:51

Thinking of all of you op xx

ImHavingAnOldFriendForDinner · 25/06/2022 22:51

Thinking of all of you op xx

Fernticket · 25/06/2022 23:20

lizzielizard · 25/06/2022 06:54

I hope you can feel the love coming your way for you and your DS from everyone on this site because it's there in ocean tanker loads. Thank you so much for coming here to update us all when you have so much going on. Will keep watching and waiting and hoping and praying for you all.

This.
You and all your family are in my prayers OP

yzed · 26/06/2022 08:14

Wow, you've been through so much in just six days! Thank goodness for the John Radcliffe, and thank goodness for the amazing techniques they now have at their fingertips.
Thank you so much for coming back to update us. I have joined the queue to send you strength, Flowers and the best possible vibes for a calm day today and for everything to go smoothly on Monday. I'm sure everyone has told you, but the doctors, surgeons, etc know so much more now than they did. I'm hoping for your son to start feeling better almost immediately.
My very best wishes.

Muchtoomuchtodo · 26/06/2022 09:03

No doubt tomorrow will be an interminably long day, just do what you need to do to get through it but remember to eat and drink. Are you pg or am I jumping to conclusions from your user name?
How is DH now? Hopefully you have good support for your other dc too
Sending you all love.
xx

BewilderedByPurples · 26/06/2022 10:17

I slept whilst my son had brain surgery - I knew I had absolutely no responsibilities for a few hours for a change.
hope the op is feeling her way x

Ohbuggeritsme · 26/06/2022 18:54

Hi @nearlymumof5 all the best to your boy, you and rest of family for tomorrow. I truly hope the op goes well.
Love, strength and big hugs to you x

Daisy95 · 26/06/2022 19:38

Thinking of you all tomorrow op x

Daisy95 · 26/06/2022 19:39

Thinking of you all tomorrow op x

HSKAT · 26/06/2022 19:42

Thinking of you all tomorrow Flowers

Tonkerbea · 26/06/2022 20:07

Hope you all can get some rest tonight, and my thoughts are with you and your ds for tomorrow xx

GettingItOutThere · 26/06/2022 20:37

thinking if you and your son

xxx

Lostlostlost3 · 26/06/2022 21:22

OP, you and your son are in my thoughts tonight and tomorrow. Good luck little man, be brave Flowers

Lostlostlost3 · 26/06/2022 21:23

This reply has been withdrawn

This message has been withdrawn at the poster's request

silverboggle · 26/06/2022 21:59

Holding you all in my thoughts for tomorrow. Sending strength xx

Katya213 · 26/06/2022 22:17

Will be thinking of you all tomorrow, you brave mummy!xx

Snuffy28 · 26/06/2022 22:19

All the very best for tomorrow. I hope everything goes well.

RedorangeyellowBLACK · 26/06/2022 22:24

Wishing you all the best for tomorrow. I hope it goes really well, thinking of you all xx

Somuchgoo · 26/06/2022 22:26

All the best for tomorrow.
You are genuinely in my thoughts x