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Dla wait times part 35

1000 replies

Emma2345 · 13/03/2024 11:50

New thread as this one is nearing the end ,, also going to post a separate thread for people either waiting for MR’s or starting the process of one (mandatory recommendation)

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Are your children’s vaccines up to date?
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KatexCR · 15/03/2024 17:11

Shaf89 · 15/03/2024 13:49

@Emma2345 @Margot82x
i called again at 12 and the lady said my daughter was awarded today! MRC until 2028!
and then said my son was awarded yesterday (the man in the morning lied!!!) HRC until 2027!
I got so emotional on the phone!

cant believe this horrid journey is over. Now to concentrate on our babies ❤️🙏🏼

Thats amazing Shaf89!! Congratulations!! Fabulous news x

TiredTilly · 15/03/2024 17:11

3boysand2girls · 15/03/2024 16:15

@TiredTilly I'm wondering the same my daughter is 2.5 not diagnosed yet but paediatrician said she presents as severe asd gdd sensory processing dissorder etc. Completely non verbal what's your scan date my will be a long wait I think 31/01

Edited

My scan date is 20/11. Have you sent off any evidence ?
The last I phoned was yesterday and he said it’s still in the holding pile. He said he has escalated my case and now I’m worried. From what I’ve read it seems the cases that get escalated always get denied. Like the dm’s get annoyed when a case is escalated. So I’m preparing for MR now because I can feel it will be rejected. Has anyone had their case escalated and been awarded?

CS0689 · 15/03/2024 17:15

Mummyto5beautys · 15/03/2024 17:02

What’s ur scan date

13/11

Alfsnan84 · 15/03/2024 18:01

Can anyone advise, when sending extra supporting evidence, is it just the child's name, date of birth and ref number at the top of the page?
Thanks in advance.

Mumof1J · 15/03/2024 18:02

This waiting is really awful 😫 This group is really helping! Thank you all. My scan date is 22/12

Mummyto5beautys · 15/03/2024 18:03

Alfsnan84 · 15/03/2024 18:01

Can anyone advise, when sending extra supporting evidence, is it just the child's name, date of birth and ref number at the top of the page?
Thanks in advance.

And your address too x

Alfsnan84 · 15/03/2024 18:05

Mummyto5beautys · 15/03/2024 18:03

And your address too x

Oh yes 🤦‍♀️ thank you ,
We're currently on week 14+1 of our claim,
Would it be too late to send supporting evidence would you think? X

Mumof1J · 15/03/2024 18:10

TiredTilly · 15/03/2024 15:15

Has anyone had a 2 year old with autism, non verbal and GDD been awarded or similar?

I am on week 12 today, but this is what my son has. Awaiting a decision x

3boysand2girls · 15/03/2024 18:16

@TiredTilly up to now iv sent in initial report from paediatrician who has said dd will have assessment for asd sent in assessment from portage and asq3 scores off h.v. we have first specialist speech and language assessment on Tuesday and still waiting for o.t referral app to come through so will send them later. I hope the escalation just means because you've been waiting so long.

TiredTilly · 15/03/2024 18:32

3boysand2girls · 15/03/2024 18:16

@TiredTilly up to now iv sent in initial report from paediatrician who has said dd will have assessment for asd sent in assessment from portage and asq3 scores off h.v. we have first specialist speech and language assessment on Tuesday and still waiting for o.t referral app to come through so will send them later. I hope the escalation just means because you've been waiting so long.

Ah thank you. I didn’t even think to send my asq’s 🙁 he scored the lowest on everything, also waiting on an OT appointment aswell. His had 2 speech appointments, both useless as they couldn’t get his attention or catch his eye for an hour. Did you chase up the HV for the OT appointment? My HV has sent a referral for OT months and months ago and haven’t heard anything.

Mummyto5beautys · 15/03/2024 18:37

Alfsnan84 · 15/03/2024 18:05

Oh yes 🤦‍♀️ thank you ,
We're currently on week 14+1 of our claim,
Would it be too late to send supporting evidence would you think? X

Have u rang to see if there’s an update? I would ring and see if it’s with a decision maker if it is I wouldn’t send it in if it isn’t then I would but you can always keep it to one side for a manditory reconsideration if you need to do one x

Emmajm85 · 15/03/2024 18:44

Vickyxxx · 15/03/2024 12:51

My scan date is the 17/11 and still not with a dm, has anyone else got this scan date?

im the same scan date. Called on Wednesday and mine is with a DM. I was told there should be a decision by the end of next week so 🤞 we don’t have to wait much longer xx

Alfsnan84 · 15/03/2024 19:13

Mummyto5beautys · 15/03/2024 18:37

Have u rang to see if there’s an update? I would ring and see if it’s with a decision maker if it is I wouldn’t send it in if it isn’t then I would but you can always keep it to one side for a manditory reconsideration if you need to do one x

I called beginning of this week, she said they're taking up to 20 weeks, and said "I can tell you, it's exactly where it needs to be"
So I've no idea what that means x

Abbiella1993 · 15/03/2024 19:17

Unsure if anyone is able to help but i was backdated £1530. I know they said award was MRC and LRM but can anyone work out how many weeks this covers? Waiting for letter in post. Trying to work out how much carers element and disability element we would be backdated. Thank you 🙏

bonz2023 · 15/03/2024 19:29

Abbiella1993 · 15/03/2024 19:17

Unsure if anyone is able to help but i was backdated £1530. I know they said award was MRC and LRM but can anyone work out how many weeks this covers? Waiting for letter in post. Trying to work out how much carers element and disability element we would be backdated. Thank you 🙏

16 weeks @ £95 plus £10 xmas bonus x

TiredTilly · 15/03/2024 19:39

Mumof1J · 15/03/2024 18:10

I am on week 12 today, but this is what my son has. Awaiting a decision x

It’s soo hard isn’t it. I really hope you get what he deserves 🤲

Vickyxxx · 15/03/2024 19:44

@Emmajm85 Thank you thats good to know hopefully mine will be with a dm aswell, i did try to phone today but had to cut it off whilst on school run. Fingers crossed for a decision for us by next week. my anxiety is through the roof with it. Ill be glad when its over with x

Mumof1J · 15/03/2024 19:46

Thank you so much! I hope you do to. I have everything crossed for us all. X

Leopardprintleelan · 15/03/2024 19:47

Mumof1J · 15/03/2024 18:02

This waiting is really awful 😫 This group is really helping! Thank you all. My scan date is 22/12

Same scan date as me, makes me feel more and more anxious as I see posts with decisions closer to my date 😬

Mumof1J · 15/03/2024 19:51

Leopardprintleelan · 15/03/2024 19:47

Same scan date as me, makes me feel more and more anxious as I see posts with decisions closer to my date 😬

Ahhhh have you heard much? I’ve had 2 letters but only the general ones. Me too! The first few week waiting flew by and I didn’t really think of it a lot but now it’s getting closer its dragging and I’m constantly checking 😫

MLW92 · 15/03/2024 20:04

Mumof1J · 15/03/2024 19:51

Ahhhh have you heard much? I’ve had 2 letters but only the general ones. Me too! The first few week waiting flew by and I didn’t really think of it a lot but now it’s getting closer its dragging and I’m constantly checking 😫

12/12 and I feel your pain 😭

4beautifulkiddies · 15/03/2024 20:35

Mummyto5beautys · 15/03/2024 18:37

Have u rang to see if there’s an update? I would ring and see if it’s with a decision maker if it is I wouldn’t send it in if it isn’t then I would but you can always keep it to one side for a manditory reconsideration if you need to do one x

I called 2day regarding evidence n was told I have time to send it im 16 weeks Monday x

UmElise · 15/03/2024 20:36

TiredTilly · 15/03/2024 15:15

Has anyone had a 2 year old with autism, non verbal and GDD been awarded or similar?

Hi my son is autistic non verbal has global developmental delay still in nappies he is 4 soon. Iam still waiting for an award. Scan date 29/12. When was your scan date

Leopardprintleelan · 15/03/2024 20:37

Mumof1J · 15/03/2024 19:51

Ahhhh have you heard much? I’ve had 2 letters but only the general ones. Me too! The first few week waiting flew by and I didn’t really think of it a lot but now it’s getting closer its dragging and I’m constantly checking 😫

No just the same as you, 2 standard letters. Same, I totally ignored it was happening at first.

BrickFawn · 15/03/2024 20:37

Hi Everyone...Anyone with scan date 12/12?

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