My newborn girl is going to die, not sure what to do now.

[cupofteaplease]

I gave birth to our little girl yesterday at 1.15pm. They told almost straight away they thought she had Edward's Syndrome. Now they think her brain just didn't develop. Noone can tell us how long she will be with us, nobody knows.

My two dds are 6 and 4 and were so excited about their baby sister. They are coming to meet her later. How can I tell them she will die?

As she is breathing unaided and tube feeding, they are caring for her in SCBU, but I have said if they can't do anything, I want to bring her home to spend her last time. I wish we knew how long she had.

I think my heart is breaking.

cupoftea -I'm so sorry to hear this.

Enjoy every precious moment of your time together as a family with Beatrice.

sending you all the love in the world x

Lovely name, just lovely.x

I have another butterfly poem for you if I may post it.
It makes me think of my DD and I hope you find it comforting.

Butterfly
As you danced in the light with joy
love lifted you
As you brushed against this world so gently
you lifted us.
TC Ring.

I want to send you all that I can at this time. Love to you and your wonderful Beatrice Primrose.

cupofteaplease, I am so very sorry.
Maybe this link would help you
www.soft.org.uk/

So sorry hope you DH and DD's are ok (as much as you can be) take care of each other.

So sorry to hear this,
your dd's name is beautiful, you will all be in my thoughts :(

I'm sorry. So sorry. I wish for you love and strength. xxx

I am truly sorry for you and family, cupoftea

I can't stop thinking about you, cupofteaplease. I hope you are all ok.

I am so sorry to read this. Sending you love and best wishes, and what beautiful name you have given her.

So sorry. I hope you find strength in the love you find on here.

I read your post on the pregnancy board that your little girl was arriving yesterday and I'm so very sorry to hear that she is so unwell. My thoughts are with you and your family and I hope you are making some precious memories to treasure always with Beatrice Primrose.

Sending love and prayers to you xx

I can't add anything else that no-one else hasn't said but wanting to send you love and a pray.

Thinking of you still cupofteaplease xx

Echoing others when I say how sorry I am to hear this xxxxxx
Take care x

Oh darling I'm so sorry to hear this
thinking of you all x

My love and prayers to your family x

Cupoftea hope you're ok I can't stop thinking about you. Hope you are getting the support you need, words are not enough right now xxxxxx

words can't begin to even touch on what you must be going through. My thoughts are with you and your family xxxx

I'm going to the shrine at Walsingham today, and will light a candle for Beatrice Primrose x

So sorry cupoftea, thinking of you, stay strong xxx