My newborn girl is going to die, not sure what to do now.

[cupofteaplease]

I gave birth to our little girl yesterday at 1.15pm. They told almost straight away they thought she had Edward's Syndrome. Now they think her brain just didn't develop. Noone can tell us how long she will be with us, nobody knows.

My two dds are 6 and 4 and were so excited about their baby sister. They are coming to meet her later. How can I tell them she will die?

As she is breathing unaided and tube feeding, they are caring for her in SCBU, but I have said if they can't do anything, I want to bring her home to spend her last time. I wish we knew how long she had.

I think my heart is breaking.

So very sorry. My thoughts are with you and your family x

So sorry for you, your daughter and your family. Be honest with your DD's without too many details. xxx

sending you lots of strength for your family! enjoy and treasure all the time you will have together!

How terrible for you and your family. I hope you find support ....

Fuck. I have been following your other thread in pregnancy. I am so so sorry. Words fail me.

I am so sorry, there are no words. Treasure the time you have together as a family xx

I'm so sorry Cupoftea my thoughts are with you and your family xx

I'm so so sorry.

I'm so sorry cupoftea
I liked what ChippingIn said about telling DD1 and DD2 that DD3 wanted to meet them. I'm sure she wanted to meet you all.
Have you been able to find someone at the hospital who can provide support in exploring options for her care, and for support for you all at this time ?
Nothing else of any use to say. As others have said, words fail me.
But much love to you and yours xxx

I am so sorry xx

I am so sorry for the shock you must have had but please be assured that it isn't a forgone conclusion that your baby will die. There has been children who live for at least 9 years with ES and it isn't always a death sentence. I recommend you give the ante natal helpline a call.

Oh, how awful :( I am so sorry you are having to go though this :( (((( huge hug))))

this is a blog I read last year by a mother of a baby with Ancephaly, I know not the same thing as your Daugher has but she got to spend precious weeks with her daughter before she died at home.

I will be thinking of you x

I'm so sorry that you have to go through this. Sending you love and light x

So sorry for what you're going through. Wishing you strength. Do you have people around to help you with the practicalities for a while, so you can focus on your DD?

So very sorry.

So sorry. thinking of you and your family.

Cupoftea, I am so desperately sorry to hear of your heartache. Your dd sounds like a fighter already and will be showered with love from you all.

What excellent advice from Chipping and Andiem - please ask the SCBU team or specialist midwives to put you in touch with the local hospice. They will give you and your dcs so much support to carry out your wishes for dd and create lasting memories of your family together.

You must all be in shock at the moment but I hope that one day you'll be able to treasure this time you had with your beautiful girl. Thinking of you xx

I am so so sorry, didn't want to read and not say anything.

I am so so sorry that this has happened to you and your little girl. My heart is aching for what you are going through.

I'm so sorry cupoftea, thinking of you and your family xx

I have no wise words but I am so sorry to hear about your baby girl.

so sorry. We're all thinking of you and your family here

I am so sorry Cupoftea. Spend as much time as you can with your DD, take lots of photos and build happy memories. I hope you find the strength you need.