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Original poster

My newborn girl is going to die, not sure what to do now.

1002 replies

cupofteaplease · 17/09/2011 12:09

I gave birth to our little girl yesterday at 1.15pm. They told almost straight away they thought she had Edward's Syndrome. Now they think her brain just didn't develop. Noone can tell us how long she will be with us, nobody knows.

My two dds are 6 and 4 and were so excited about their baby sister. They are coming to meet her later. How can I tell them she will die?

As she is breathing unaided and tube feeding, they are caring for her in SCBU, but I have said if they can't do anything, I want to bring her home to spend her last time. I wish we knew how long she had.

I think my heart is breaking.

OP posts:
TidyDancer · 17/09/2011 19:47

I am so sorry to hear this. You have chosen such a beautiful name.

My thoughts and love are with you. x

mumt1 · 17/09/2011 19:51

I followed you with your post saying she's coming on friday, I have been looking for a post to see how things went. I am so sorry, I think my heart broke reading this and my eyes filled up with tears. I send every bit of my love to you and your very precious daughter. Xxxxx

working9while5 · 17/09/2011 19:53

I am so sorry that this is happening to Beatrice Primrose and to you and your family. I hope you are getting time with her and to hold her. I am so sad for all of you and I don't even know you.

I'm also sorry for all the other mothers who have posted to share that they have walked in your shoes. Would you like to tell us more about her?

zebrafinch · 17/09/2011 19:55

Am thinking of you and baby Beatrice and hoping that you all get time together to get to know each other and that Beatrice will know how much you all love her.

ruletheworld · 17/09/2011 19:56

Cupsofteaplease - from what i can remember you live locally to me. I'm sure you wouldn't remember as it was 18 months ago now but you once very kindly recommended an obstetrician to me when I was arranging my elcs at the hospital beginning with N (have name changed since) - if I can provide any practical help whatsoever to you then please please let me know xx

Tianc · 17/09/2011 20:04

So very sorry, cupoftea.Sad Thank you so much for sharing Beatrice Primrose with us. Wishing your family all good things for this very special time together, no matter how brief.

NormaStanleyFletcher · 17/09/2011 20:09

So sorry.

What a beautiful name.

rainbowinthesky · 17/09/2011 20:15

cupofteaplease - very unmumsnet hugs to you. Sad

HalleLouja · 17/09/2011 20:19

Congratulations on the birth of Beatrice. Hold her tight. Love her name.

BabCNesbitt · 17/09/2011 20:22

Cupoftea, I'm so sorry to hear this. Our thoughts here are with you and your family. x

Doobydoo · 17/09/2011 20:30

Beautiful name.I am so sorry for you all cupoftea and echo what others have said.Thinking of you all.xx

Trudyla · 17/09/2011 20:34

I'm so sorry cupofteaplease. My thoughts are with you and your family.

NessaRose · 17/09/2011 20:39

Sweethart, so so very sorry for you and your family.x

bigredtractor · 17/09/2011 20:41

What a beautiful name for a beautiful wee girl - cherish her and look after yourself too xx

If you don't mind, I might pray for Beatrice tomorrow.

Lougle · 17/09/2011 20:43

Congratulations on giving birth to beautiful Beatrice. However long you have her, treasure her. She'll never leave you, even if her time here is short Sad

PGTip · 17/09/2011 20:50

I have no words that will give you comfort, but please know that you and you're family are in my heart, thoughts and prayers. And because you have introduced Beatrice to us she will also forever be remembered.

Brianstorm · 17/09/2011 20:53

I am so sorry to hear of what you and your family are going through, and can only offer you my congratulations, and condolences, and wish you the strength to deal with what is happening.

x

LetLoveRule · 17/09/2011 20:55

I am so sorry to hear your news and I am thinking of you and your family. What a beautiful name for your baby girl.

EllieG · 17/09/2011 20:58

I am so sorry cupoftea. How heartbreaking. Someone has probably mentioned it but the charity Winson's Wish helps bereaved children - they have excellent people on the phone who give fantastic advice (have called them for support for my DD1) and they might be a useful port of call in helping you talk to your other children and helping them navigate their feelings.

BodyUnknown · 17/09/2011 21:10

What a beautiful name she has. I'm so sorry.

FromGirders · 17/09/2011 21:13

So sorry, this must be heartbreaking. You've chosen a lovely name, and I hope you can enjoy whatever time you have together.

YougreatPamplemousse · 17/09/2011 21:15

Cupoftea, congratulations on the birth of your beautiful Beatrice Primrose. Sorry that her time with you will be short but I am sure it will be filled with much love from you and her daddy and sisters. Big hugs to you all as you go through the next few days. We will keep you all in our thoughts and prayers.

Moominsarescary · 17/09/2011 21:16

I'm so sorry, thinking of you and your family x

stickwithit · 17/09/2011 21:17

So very sorry to hear this Cupoftea.

Sending all my love to you, beautiful Beatrice Primrose, DD1, DD2 and your partner.

I hope that you are getting the support that you need to do what feels right for you and for Beatrice.

There are no words.

miniwedge · 17/09/2011 21:20

Welcome to the world Beatrice primrose. What beautiful names they are. Smile

Cupoftea I hope your time with little Beatrice will be filled with love and leave you all with some wonderful memories of your lovely little girl.

Sending you lots of peace and strength. X x

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