My newborn girl is going to die, not sure what to do now.

[cupofteaplease]

I gave birth to our little girl yesterday at 1.15pm. They told almost straight away they thought she had Edward's Syndrome. Now they think her brain just didn't develop. Noone can tell us how long she will be with us, nobody knows.

My two dds are 6 and 4 and were so excited about their baby sister. They are coming to meet her later. How can I tell them she will die?

As she is breathing unaided and tube feeding, they are caring for her in SCBU, but I have said if they can't do anything, I want to bring her home to spend her last time. I wish we knew how long she had.

I think my heart is breaking.

I'm so sorry to hear your news.

So so sorry for you and your family. My thoughts are with you all x

Thinking of you all and sending my love.

I'm so very sorry

I wish I knew the words to say that could bring you comfort at this heart breaking time. My thoughts are with you and sending you strength for the days and weeks ahead.

cupoftea I am so sorry to hear your very sad news.

IT is not growing like a tree
In bulk, doth make man better be;
Or standing long an oak, three hundred year,
To fall a log at last, dry, bald, and sere:
A lily of a day
Is fairer far in May,
Although it fall and die that night;
It was the plant and flower of light.
In small proportions we just beauties see;
And in short measures, life may perfect be.

Ben Jonson

So sorry for all of you xxxxx

I tried posting a long reply but the internet connection on my phone failed. Will try again later.

Thank you so much for the messages, funny how I can turn to MN for support when I'm too nervous to see family. I think it's because I can't comfort them with answers when I don't have any myself.

Girls were besotted with their sister, have some lovely photos.

I wanted to share, her name is Beatrice Primrose and she weighed 3lb 14oz at birth.

thats a really lovely name. my thoughts and prayers are with you. x

Ah, wat a beautiful name, cupoftea

How is she doing now, and how are you?

Those are beautiful names.

Beautiful name x

What a beautiful name. I'm so very, very sorry cupofteaplease.

What a beautiful name.

Lovely and beautiful names. Welcome to the family, Beatrice Primrose.

Beautiful name x You are all in my thoughts

Mardyarsedmidlander We had that poem read at our son's funeral (he was stillborn).. It is very beautiful and so true.

Thinking of you, your famil and baby Beatrice x

What beautiful names cupoftea. How are you doing? Glad Beatrice got some lovely cuddles with her big sisters. How are they? x

Such a beautiful name for your beautiful daughter. I have no idea of how you're feeling but my thoughts are with you and I bet she can feel just how loved she is with all the cuddles from her loving family x

What a beautiful name! Welcome to the world little one. So sorry to hear she is so poorly. You're in my thoughts x

Thinking of you & your family xxx

Oh no. :( That's such awful news. I am so very sorry, cupoftea. Beatrice Primrose is a beautiful name.

So very sorry x