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Original poster

My newborn girl is going to die, not sure what to do now.

1002 replies

cupofteaplease · 17/09/2011 12:09

I gave birth to our little girl yesterday at 1.15pm. They told almost straight away they thought she had Edward's Syndrome. Now they think her brain just didn't develop. Noone can tell us how long she will be with us, nobody knows.

My two dds are 6 and 4 and were so excited about their baby sister. They are coming to meet her later. How can I tell them she will die?

As she is breathing unaided and tube feeding, they are caring for her in SCBU, but I have said if they can't do anything, I want to bring her home to spend her last time. I wish we knew how long she had.

I think my heart is breaking.

OP posts:
Ariesgirl · 20/09/2011 15:27

And I'm very, very sorry for not reading the last couple of pages. Wow, what a turn around! It must seem like a miracle.

mistlethrush · 20/09/2011 15:27

I'm so pleased to see the update! Wonderful news - and I hope that she continues to do well and that you get to take her home soon.

ajandjjmum · 20/09/2011 15:28

Fantastic news. You look after yourself and your three girls.

Hulababy · 20/09/2011 15:28

Oh what a lovely update to read! She is beautiful!

zebrafinch · 20/09/2011 15:30

brilliant news! Hope Beatrice gets stronger and continues to surprise you.

thefirstMrsDeVere · 20/09/2011 15:30

Such wonderful news.

May your precious girl continue to grow and thrive.

Love x

duchesse · 20/09/2011 15:34

That is SUCH good news- and she looks SO cute!! Hope she's soon out of hospital and you can get the right help in place to help with any problems she may have.

FiteFuaite · 20/09/2011 15:37

That's wonderful news,I am so pleased for you all :)

fairimum · 20/09/2011 15:43

I hope the news continues to get better for you all xxxx

TipOfTheSlung · 20/09/2011 15:45

Wow
Not been on mn recently so just saw this. Read the thread with tears running down my cheeks. Reached the important post and just howled and did a little dance. My children think I am mad.

I am so glad the outlook isn't what you had been led to believe. I too had a prem, she was given 5% chance of survival on her first day and is now sat behind me and you wouldn't know.

We're sending your beuatiful Beatrice that same fighting strength

AfternoonsandCoffeespoons · 20/09/2011 15:48

Oh honey I am so pleased for you! I haven't posted much on here but have been thinking about you loads. They thought my DS had Edwards Syndrome when he was born and it was a very scary time waiting for the results. They got it wrong with him too! So, so pleased for you. Hope she's out of hospital very very soon. ((hugs))

pixiestix · 20/09/2011 15:50

Oh my god. I'm sitting here with tears streaming down my face. I couldn't be happier for you and your family Cupoftea. I'm just speechless. Wow. Smile

happymummytobe · 20/09/2011 16:03

I'm so happy for you! Wow. You've all been so much on my mind. Beautiful photos of all 3 of your girls xxx

iloveberries · 20/09/2011 16:09

wow - so happy for you x

ledkr · 20/09/2011 16:21

I just knew it,i was crying and scared to look at Beatrice in case it was too hard to bear and when i did i had this sense of "no way has that baby got es" she has the most amazing knowin eyes.
Dh has gone to watch arsenal and im going to text him with your amazing news cos he was really upset about it too.
Myds2 was born at 27weeks 25 yrs ago.He had renal failure and cerebal palsy.He now has a great job,lovely girlfriend,hectic social life and is the most lovely boy you could ever meet-oh he is 6 ft 4 as well Grin
So happy for you all. x

nickschick · 20/09/2011 16:22

I knew by looking at her eyes that she was here to stay!!! im so happy for you and I know she will brighten and enrich your lives with every day.

God bless xxxx

4madboys · 20/09/2011 16:31

have been following this thread and am so so pleased you have some good news!! she is a beautiful little girl, such big eyes!! they are those kind of 'knowing' eyes, she looks very alert and def a little fighter :)

sending her 'get fat' vibes so she can then come home soon xxx

kat2504 · 20/09/2011 16:35

I am so so happy for you and your family. You must be over the moon! I hope you can take Beatrice home soon and she continues to grow and thrive. Whatever problems she does have, she sounds like she has the most amazing family to help her through them.
I wish you all the very best for the future.

saladfingers · 20/09/2011 16:43

So relieved for you! This news has made my day. You have 3 very beautiful DDs.

jugglingwiththreeshoes · 20/09/2011 16:51

Very happy that so many prayers have been answered
( Lit a candle at Walsingham shrine for Beatrice Primrose on Sunday.
Alongside one to remember dear Erin. They were both shining very brightly Smile)

ChessPiece · 20/09/2011 16:58

How wonderful! You must be overjoyed. Wishing you strength for the challenges ahead (and hoping they are very small).

Marne · 20/09/2011 16:59

So so pleased for you, have been praying for a meracle as have the whole of MN. Fingers crossed that you will be taking your princess home soon and she will lead a long happy life. Your dd's must be made up. I'm so excited for you, the last few days must have been hell for you Sad but now you can enjoy your lovely newborn daughter.

Pinot · 20/09/2011 17:02

I've read this thread in tears. Stay strong baby girl - you have so much love holding you up right now, from your family to all these strangers on the internet all hoping and praying for you.

Welcome to the world, little Bea x

Yirkmum · 20/09/2011 17:09

Wonderful news Smile

So happy for you all.

mpops · 20/09/2011 17:17

Wow, amazing amazing news. I'm so happy for you and your family, cupoftea. The world is good again! xx

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