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My newborn girl is going to die, not sure what to do now.

1002 replies

cupofteaplease · 17/09/2011 12:09

I gave birth to our little girl yesterday at 1.15pm. They told almost straight away they thought she had Edward's Syndrome. Now they think her brain just didn't develop. Noone can tell us how long she will be with us, nobody knows.

My two dds are 6 and 4 and were so excited about their baby sister. They are coming to meet her later. How can I tell them she will die?

As she is breathing unaided and tube feeding, they are caring for her in SCBU, but I have said if they can't do anything, I want to bring her home to spend her last time. I wish we knew how long she had.

I think my heart is breaking.

OP posts:
ParceQueJeLeVauxBien · 20/09/2011 17:23

I'm so, so pleased for you! Smile

Iamjustthemilkmachine · 20/09/2011 17:28

this are the best news ever, congratulations on the birth of your gorgeous girl! xxxxx

LoveInAColdClimate · 20/09/2011 17:29

I am so, so happy for you and your family.

Trudyla · 20/09/2011 17:32

FANTASTIC NEWS. I'm so so pleased for you.

ScribblerInTheSpaces · 20/09/2011 17:40

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orangina · 20/09/2011 17:49

Oh how wonderful! Have just read the thread from the start and am so happy for you all. She is just beautiful and I'm having a little cry at my desk at work.....

BOMBAYANDMJONICE · 20/09/2011 18:08

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tadjennyp · 20/09/2011 18:12

That's such fantastic news for such a beautiful little girl with a beautiful name.. Thoughts and prayers that she keeps fighting and winning. x

oooggs · 20/09/2011 18:15

fanbloodytastic Grin brilliant news

Beatrice has lovey big beautiful eyes - 3 very pretty young ladies Smile

TeamEdward · 20/09/2011 18:17

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Jbck · 20/09/2011 18:20

I have been following your thread and keeping my fingers crossed for you all. What fantastic news and whatever struggles she faces she clearly has a very strong loving family around her. Best wished to Beatrice and all your family for the future.

LottieJenkins · 20/09/2011 18:21

If ever the power of prayer is shown to work then this thread is it!!!

Bunsouttheoven · 20/09/2011 18:25

Wow

Such wonderful newsGrinGrinGrinGrinGrinGrin

ChippingIn · 20/09/2011 18:25

OMG - I said if the collective wishes of MN could change this for you they would Grin

What brilliant, brilliant news :)

She does look so well in the photos - it was very hard to believe that she would only be here a little while, it didn't seem possible - she looked too well, but none of us wanted to say so.

I think that some issues need to be addressed once you are up to it. The way you have been treat isn't acceptable - not at all.

Big Big Big Smiley Hugs
xxx

reastie · 20/09/2011 18:30

Wow - what a story. I am doing a little happy dance for you as that is great news. The piccies are absolutely gorgeous btw - your dds are beautiful. Please keep us updated on how you and your family are getting along. x

bilblio · 20/09/2011 18:31

Oh that's fantastic news cupoftea!
I was reading the thread this morning before work and saw the gorgeous photos of her. I was in tears, such a beautiful girl with amazing eyes!

Now it's tears of happiness for you all.

Jaquelinehyde · 20/09/2011 18:36

I'm so, so happy for you Cupoftea. This is the most wonderful news.

Paschaelina · 20/09/2011 18:38

What brilliant news. I'm so pleased for you and your lovely family.

I wonder if it would be appropriate to move this thread into a happier topic?

andiem · 20/09/2011 18:40

cupoftea I am so so pleased to see your news. She looks absolutely gorgeous on the photo. Big hugs for all of you

CharCharGabor · 20/09/2011 18:41

Ah that is fantastic! So pleased for you :) Enjoy your beautiful little girl (and she is fabulously beautiful) with the gorgeous name. Xx

RickGhastley · 20/09/2011 18:47

Wow, excellent news Smile Smile Smile

Beatrice is the most beautiful baby, those eyes!

TheBolter · 20/09/2011 18:53

I have tears in my eyes, cupoftea. Your girls are beautiful xx

TheBolter · 20/09/2011 18:54

(Tears in my eyes CupofTea... of joy. I have read the latest developments!)

MrsHende · 20/09/2011 18:56

Just so delighted for you!

I hope you get your gorgeous girl home very soon. Take care of her and yourself.xxx

youarekidding · 20/09/2011 18:58

FANTASTIC NEWS Grin Grin Grin

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