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Original poster

My newborn girl is going to die, not sure what to do now.

1002 replies

cupofteaplease · 17/09/2011 12:09

I gave birth to our little girl yesterday at 1.15pm. They told almost straight away they thought she had Edward's Syndrome. Now they think her brain just didn't develop. Noone can tell us how long she will be with us, nobody knows.

My two dds are 6 and 4 and were so excited about their baby sister. They are coming to meet her later. How can I tell them she will die?

As she is breathing unaided and tube feeding, they are caring for her in SCBU, but I have said if they can't do anything, I want to bring her home to spend her last time. I wish we knew how long she had.

I think my heart is breaking.

OP posts:
VAJAZZLEMYFOOF · 20/09/2011 14:25

That's amazing news. On my other post i said how well she looked for a very ill baby.

Im so happy foy you, your girls and your partner.
I can't even imagine the rollercoaster of emotions you must be going through at the moment.
You have certainly brightened up my day.
Keep on fighting beautiful Beatrice. Your mummy and daddy want to take you home to snuggle up with your adorable sister's.

xxxxxxxxx

nakedandangry · 20/09/2011 14:25

So incredible, and so very happy for you all. Beatrice is beautiful x

WillbeanChariot · 20/09/2011 14:26

I saw your thread on my phone earlier, just logged back in to send you prayers and strength and saw your update. What amazing news. I really hope that Beatrice grows strong and continues to surprise you!

My DS was very premature, and the docs were concerned early on that he had a genetic problem. He did not, but it was painful enough waiting for those results, I can't imagine how it has been for you. Hope you are taking care of yourself.

Thinking of your family and willing Beatrice on.

sistersootica · 20/09/2011 14:26

I've been thinking of you all overnight and praying, and I was so pleased to read your update Smile. Take very good care of yourselves - we're all thinking of you xxxxxx

MirandaWest · 20/09/2011 14:27

Wow what amazing news :)

lockets · 20/09/2011 14:34

This reply has been deleted

Message withdrawn at poster's request.

DaydreamDolly · 20/09/2011 14:45

AMAZING NEWS!!!!!!!!!!! Grin Grin Grin Grin Grin Grin

So happy for you, I hope she continues to amaze you!

Many congratulations!!!

travellingwilbury · 20/09/2011 14:46

I am so pleased for you all .

I was hoping that they would be wrong , my SIL was told the same thing throughout her pregnancy and they were wrong then as well . I was wishing the same for you .

They are truly gorgeous , enjoy your happy day Grin

belwiz · 20/09/2011 14:49

Am so happy for you, cupofteaplease. Your little girl is so strong - and a real beauty too! Wishing you and your family much happiness xx

fruitshootsandheaves · 20/09/2011 14:51

Fantastic news, really happy for you.

Bumpsadaisie · 20/09/2011 14:52

Oh CupofTea!!!!!!!! Grin Grin Grin

We were on the October thread together and I've been really sad about this news - but what a reversal!!!!!

It's made my day! Grin!

Beatrice and your other girls are all gorgeous - you do make pretty ones don't you!!

Fillybuster · 20/09/2011 14:54

Amazing, wonderful, tear-inducing, dancing-around-the-room news! I've been thinking of you constantly....wishing you and the rest of the 'teaset' many months and years of happiness together xx

mumt1 · 20/09/2011 14:55

O my god! I am crying my eyes out! I am ssoo happy for you! When I looked at the picture of her earlier I thought to myself "she looks so well, how could something so serious be wrong, she's a fighter and she will pull through" I honestly thought that, I am so pleased for you all, what a beautiful family. Cherish every moment as it won't be long before she starts slamming doors in you face as a teenager! :P I can't stop crying! :)

DaisySteiner · 20/09/2011 14:58

That's just absolutely, fantastically, amazingly, brilliant. I am beyond delighted for you! Smile Smile Grin

stabbystabbykillkill · 20/09/2011 14:59

OMG how fantastic Grin

And Beatrice is just BEAUTIFUL (and your two big girls are as well )

Bubalie · 20/09/2011 15:00

Great news cupoftea I am so so happy for you and little Beatrice she is a fighter and our first October thread baby x

LittlePebble · 20/09/2011 15:01

Oh cupoftea I can barely see to type as I'm crying I'm SO happy for you and your family. Yay yay yay Grin Beatrice what a first baby for the October baby bus. Lots of love xxxxxxxx

Tianc · 20/09/2011 15:03

Oh wow oh wow.

MadameDefarge · 20/09/2011 15:06

Thank fuck for that. hugs all round

xx

Doobydoo · 20/09/2011 15:16

Fantastic News....Beautiful photos.Your children have beautiful eyes.

MustControlFistOfDeath · 20/09/2011 15:20

Oh cupoftea how utterly utterly WONDERFUL, simply the best news!!!

I am so thrilled for you all, all the best for the future xx

bananamam · 20/09/2011 15:21

Thats brilliant news!!! Still sending strength to you all!!! She is gorgeous!!!

NeedToSleepZZZ · 20/09/2011 15:22

Brilliant, just absolutely brilliant news! Agree with Tianc that you need to look after yourself to be strong for Beatrice now, she must be a real little fighter xx

Ariesgirl · 20/09/2011 15:24

So very, very sorry. Thinking of you xxxx

gethelp · 20/09/2011 15:26

Your situation made me cry, and I am crying again reading this, just so pleased. What a marvellous change of fortune.

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