My newborn girl is going to die, not sure what to do now.

[cupofteaplease]

I gave birth to our little girl yesterday at 1.15pm. They told almost straight away they thought she had Edward's Syndrome. Now they think her brain just didn't develop. Noone can tell us how long she will be with us, nobody knows.

My two dds are 6 and 4 and were so excited about their baby sister. They are coming to meet her later. How can I tell them she will die?

As she is breathing unaided and tube feeding, they are caring for her in SCBU, but I have said if they can't do anything, I want to bring her home to spend her last time. I wish we knew how long she had.

I think my heart is breaking.

What fantastic news I'm so happy for you, you must be so relieved.

Your dds are beautiful.

Wow. I am thrilled for you. I hope you get many more happy surprises as Beatrice's journey continues.

OMG that is just fantastic completely brilliant excellent news. So very very happy for you all. Goosebumps all over and tears in my eyes.

Very sorry though, that you have had to go through this sad time and that it has taken so long to give you further information.

I'm so, so happy for Beatrice and you, and your family - what fabulous news!

Oh my goodness...I've just found this thread, and read it from the beginning. I literally have goosebumps and tears in my eyes (am usually a hardnut). So SO SOOOOO happy that she's not got Edward Syndrome. As so many posters have said, she is utterly, heart-quiveringly beautiful, and I am really so happy that her future is looking so much brighter. I have everthing crossed that she'll be home in the bosom of her wonderful, loving family as soon as possible! xxxx

Brilliant

All three of your girls have such amazing eyes.

Incredible news xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

Cupoftea, I've been lurking all these days and praying for you and your little DD. Such such good news!!! Very happy for you all. x

This is truly wonderful news cupoftea. What a rollercoaster of emotions you must be on - wishing love and strength for the coming weeks. Go Beatrice - what a little superstar xx

Oh wow, this is the BEST news. Little Beatrice has barely left my thoughts since I read your OP, I am so happy for you, her, and her gorgeous sisters. I really hope the path from hereon is much smoother and that your older DDs get to take their sister home soon.

My thoughts and prayers are with you and your family. The photos are lovely, take loads more and do get so many cuddles in as is possible xxx

just read this thread for the first time - wow!

what fantastic news for you :):):):)

DS1 (who likes babies a lot) and I are crying here.

If you need it at any point, those of us on the SN board will be about. Don't be surprised if there's still emotionally rough patches- just because it's far better than the alternative doesn't mean you will escape the shock (and just the trauma from the past few days must be huge).

But having done away with the wisdom bit

HURRAY HURRAY HURRAY this is so very wonderful!

Cupoftea your message has mademy day!! enjoy her and keep us all uptodate with how she grows.

Wow, I've just seen this thread. Absolutely amazing. Huge congratulations to you all!

Oh cupoftea I'm crying at my desk with relief for you.

So, so, so pleased to hear that news about your beautiful baby girl.

Sending all of our love from here!!

I have only just seen your thread cupoftea and have been moved to tears reading what you have been going through. I am so so happy for you, your DH and your beautiful girls that the Drs got it wrong and will keep on praying for your family and that Beatrice Rose gets home to you all soon xxx

How wonderful! Wishing you, your family and Beatrice most of all, lots of strength and happiness.

this is the most amazing post. I am so so happy for you and your family and your baby Beatrice. best wishes xxx

How amazingly wonderful!!
I have (cowardly) not been back on this thread, but had to peek back today to see if Beatrice was holding on.
I am so pleased for you all (and will keep putting up prayers if that's OK).

Yes!!!

I had an inkling they had it wrong when you said how well she was doing but didn't want to give you false hope!!! I am so chuffed for you all!!!

Oh My God, that's absolutely amazing! I've followed your thread and kept you in my thoughts. Your little Beatrice is absolutely beautiful as are her proud sisters. Sending best wishes.

Make sure you look after yourself too - an infected scar needs proper regular treatment.