My newborn girl is going to die, not sure what to do now.

[cupofteaplease]

I gave birth to our little girl yesterday at 1.15pm. They told almost straight away they thought she had Edward's Syndrome. Now they think her brain just didn't develop. Noone can tell us how long she will be with us, nobody knows.

My two dds are 6 and 4 and were so excited about their baby sister. They are coming to meet her later. How can I tell them she will die?

As she is breathing unaided and tube feeding, they are caring for her in SCBU, but I have said if they can't do anything, I want to bring her home to spend her last time. I wish we knew how long she had.

I think my heart is breaking.

she is gorgeous, and i am so pleased for you all. congratulations!

Oh cup - that is wonderful news

Oh, that is wonderful, incredible, miraculous news!

I am so happy for you.

Thank you for sharing it.

Such amazing news...:) Your little one is a fighter :) xx

OMG!! that is fantastic news, I can't imagine how happy you and your family must be feeling. Its certainly the best news I have heard in a long time and I don't know you!
I hope you get to take her home very soon and wish you all health and happiness for the future. xxx

I have only just seen this thread and in the space of 5 mins have gone from crying with sadness to crying with happiness for you . I am so, so happy for you that the original diagnosis was wrong (and wow, quite dramatically wrong) & send you and your beautiful family lots of love and good wishes for the future. I hope you get to go home & enjoy being a family of five together very soon.

Wow .

I am at my desk at work in tears - that is such amazing news and I second the poster who said that the first diagnosis may help with any trying times ahead.

I am really over the moon for you xxxx

Such wonderful news! I hope she is home with you soon.
x

Oh, what fabulous fabulous news.

Go Beatrice, the power of MN is behind you.

Oh wow. In tears too. What wonderful news.

Have been thinking of you for days. Love to you and your three beautiful girls x

That is amazing wonderful fabulous brilliant awesome news :) I am actually crying for you

As the mum of 2 prems, one of whom is a fellow miracle 'they got it wrong? baby I will say that it can be a long slog in NICU so be kind to yourself :)

NICU nurses are angels :)

What absolutely wonderful fantastic heart lifting news. I am so so pleased for you all. Please keep us posted on her progress xx

That is the best news ever! I'm so pleased and happy for you all :)

Prayers answered! xx

Thats fantastic cupoftea , am so so happy for you. What an awful 24 hours for you, Beatrice is a fighter :) (and a beautiful one too - look at those eyes!)

Oh my goodness your baby Beatrice is delicious. She has amazing bush baby eyes. I am so glad to hear the change in news. Hurray hurray hurray.

Reading this has brought me out in goosebumps!!! Your photos are lovely and all 3 girls gorgeous. After the emotional turmoil of the last few days, I am sure you will be able to manage almost anything else. Beatrice has astounded the medics and I hope will continue to do so. So pleased for you, Mr CupofTea and the rest of your family.

So happy to hear your news keep fighting & growing little princess x
Sending you all love & hugs xxx

After crying my way through whole thread just now, I thought I was going to burst when I read they got it wrong, truky happy for you cupoftea

May Beatrice grow stronger and pls update when you are ALL home together.

That is such wonderful news!

That is amazing news cupoftea I'm so so happy for you and your beautiful family.

Wow!!!!

So very, very happy for you xxxxx

- -

I am so happy for you all - she has the support of a very loving family to help her along the way...

....please keep us all posted.

Just caught this thread and read it from page one all the way through - I cannot believe such a happy ending! I'm not prone to crying but this thread has touched me immensely. I was on a bit of a downer today and now I realise that there are more precious things out there. Your baby will always be one of those precious things. She fought to have you as her parents so you must be pretty special too.

Much love x