My newborn girl is going to die, not sure what to do now.

[cupofteaplease]

I gave birth to our little girl yesterday at 1.15pm. They told almost straight away they thought she had Edward's Syndrome. Now they think her brain just didn't develop. Noone can tell us how long she will be with us, nobody knows.

My two dds are 6 and 4 and were so excited about their baby sister. They are coming to meet her later. How can I tell them she will die?

As she is breathing unaided and tube feeding, they are caring for her in SCBU, but I have said if they can't do anything, I want to bring her home to spend her last time. I wish we knew how long she had.

I think my heart is breaking.

How lovely that she is better than expected but what a worry that they got things so wrong.

Do you know when you can bring her home?

Omg was just reading through and thinking of the right thing to say and then got to your post - I actually jumped up! Great news.

Your photos are lovely and your three girls ar beautiful.

What you have been through is awful but in a strange way I think it will help you to cope with all of the difficult things that may come in the future. My ds1 was diagnosed with downs syndrome at birth on scbu and I was devastated. But nearly 8 years on the shock has gone and we have totally got over it and get on with life. If we started off by going through the few days you have had I would have been delighted he had downs and possibly come to terms with it sooner iykwim. What I'm trying to say is that sometimes when things look extremely bleak it is amazing how different you feel about other problems and are so happy for this alternative diagnosis.

Wonderful news, enjoy your scrummy girlies. X

OMG, that is amazing news !! Wishing you all strength in the future

Absolutly fabulous news.

Oh, how fantastic

what a happy day for the cupoftea household.

Beatrice certainly does look like a fighter, and you have all done so well so far.

Oh, that has really made my day

Wow, amazing news! She is a beautiful little girl, good luck with your premmie journey...

Ive never been happier to read a post on mn. I actually whooped and am now crying. Fantastic amazing news

oh thats wonderful news, im also sat here with tears, you must be so happy. I wish you all well and may your beutiful continue to fight on and do you all proud :)

Amazing news. She's so gorgeous! Those eyes....

What wonderful news, read with tears in my eyes.

Wishing you all that you wish for yourself and for your family,

Val xx

Wow amazing news!

Wow! What amazing news. I am so delighted for you. I hope your beautiful DD continues to defy medical expectations and is home safe and happy very soon. Love to you all.

Wonderful, wonderful news. xxx

That is such good news, I'm so pleased for you all. Beatrice and her sisters are all so beautiful xxx

wow, superb news. you must be delighted. congratulations (again) !

Oh what fantastic news! The photos are so lovely. Wishing you all the best in the coming weeks.

Wonderful news that they got it wrong! I read your thread the other day but was so upset (have a newborn myself - hormones) that I couldn't add a comment.

Your girls are very beautiful! Good luck to you all!

Congratulations! What lovely news for you and all your beautiful girls xx

ABSOLUTELY BLOODY FANTASTIC !!!!
What a blessed Christmas you will have this year!
I have tears running down my cheeks.
Wishing her and you more and more strength with each day that comes.
If she grows up as gorgeous as your other two, she's gonna be a heartbreaker!

wow! Such miraculous news. Delighted for you and your family.
Wishing you all lots of love as beautiful Beatrice gets stronger, and hope she is home with you soon xxx

Such great news, am so happy for you all.

Your daughters are very beautiful.

I'm so thrilled for you. What amazing news. I've been following your thread and holding out hope for your beautiful girl and am so so happy to hear that there is lots of hope for her future.

It will no doubt be a tough road for you all but so much to look forward to.

Congratulaions

So very to hear your news

Fantastic news, hope you get to take her home very soon!