Active discussions

Please or to access all these features

Talk
Antenatal tests

Get updates on how your baby develops, your body changes, and what you can expect during each week of your pregnancy by signing up to the Mumsnet Pregnancy Newsletters.

Original poster

Sonographer diagnosed holopresencephaly

102 replies

Hope26 · 19/04/2014 18:59

Hi all.

Last Wednesday I got given the worst news of my life. This is my first pregnancy and they detected NT at over 3.5mm. The ultrasound scan at 13weeks 5 days showed the baby had a flat face, couldn't see nose. They told me the baby will not survive and it looks worse than Down syndrome. I have been asked to come in the next two weeks for an amnio test to confirm what is going on. Anyone experienced the same thing? Any advice will be very helpful. I am so confused right now and have lost my appetite completely. Thanks

OP posts:
Isitwinteryet · 09/03/2018 15:40

Just read this for the first time also. Sat here a blubbering mess! Congratulations on your babies. ❤

Original poster
Hope26 · 12/03/2018 23:41

Wow, I’m so happy to hear how many of you cried and felt my pain wnd happiness when I went through my mc and had my two lovely children. Daughter just started nursery and son, well I just gobble him up every single day. Whenever I look at him, I remember my first, and I also named him what I named my first. Just had to be done. My first will never be replaced, but his name will always be on my lips through my son.

He was a surprise as well, we didn’t find out the gender. When he got delivered, came into my arms, I cried my heart out. Cried and cried, wouldn’t stop. Can’t describe the love I felt.

Thank you all for your kind words and may you all be blessed with your bundles of joy xxx

OP posts:
New posts on this thread. Refresh page