Active discussions

Meet the Other Phone. Child-safe in minutes.

Meet the Other Phone.
Child-safe in minutes.

Buy now

Please or to access all these features

Talk
Premature birth

Connect with others and find premature birth support.

Original poster

Currently in NICU with 1lb 25wk very sick baby boy.

674 replies

Supershiv1 · 23/04/2013 10:57

How do I cope??
Have googled but I can't find comparable stories. All others involve babies twice the weight.
Am struggling to be sure I am doing the right thing putting my baby boy through all this.
He has grade 4 IVH & grade 2 so have no idea of quality of life at the end of all this.
Having said that he has fought for 10 days so far. The other parents in NICU have heavier babies and not the bleeds so feel like their problems are trivial compared to my baby boys.
I feel very weepy even though I am trying to put a brave face on.
How much more can my baby boy take? I can't hold him and I just want to tell him it will be ok but I don't know that it will.

OP posts:
Dejected · 08/07/2013 19:38

So pleased for you!

UnrequitedSkink · 08/07/2013 22:53

That's lovely, hopefully he'll come on in leaps and bounds now. What a little star.

MightBeMad · 10/07/2013 11:38

Yey for Oliver!!!! Thst's fantastic news shiv x Grin

MichaelaS · 10/07/2013 11:44

OH my word, how did I miss this thread for so long? I thought I had it on watch but obviously not. So sorry I disappeared and just at the time when things were looking grim.

I am so very pleased he is on CPAP and seems to have turned the corner. Sounds like his hernia was the problem all along. How many weeks total on the vent did he have? My DS1 did 9 which we thought was a lot but I think Oliver might have broken the record?

It is lovely to read about your kangaroo cuddles and him rooting for a nipple, now he is a bit stronger it sounds like this behavior at least is very neurologically normal!

Please keep us updated and I pray he goes from strength to strength from now onwards. Xxx

Badvoc · 10/07/2013 11:46

:)
My eldest nephew was a 27 week prem. was in Scbu for 10 weeks.
His 10 this year and nearly as tall as me :)
X

Isitme1 · 10/07/2013 16:15

Aww thats brilliant that hes coming on
Well done to both of you for not giving up
X

mymatemax · 10/07/2013 16:46

3lb what a fattie!!! Well done Oliver x

clucky80 · 10/07/2013 17:18

Wow that's fantastic, so pleased! X

SmellsLikeWeenSpirits · 10/07/2013 17:24

Oh good, I've been lurking and sending quiet vibes. What a trooper :)

My vibes will keep coming

BeaWheesht · 10/07/2013 17:27

Well done Oliver!

Ds has a friend who was born at 26 weeks in a lay by - she is 6 now and tallest girl in her class and is absolutely lovely :)

TwentyTinyToes · 10/07/2013 19:16

Lost your thread so just read through with bated breath, so, so pleased to read that Oliver is doing better. Enjoy kissing him!

Thinkingof4 · 10/07/2013 22:19

Brilliant to hear of more progress, really happy for you shiv

clabsyqueen · 12/07/2013 15:58

Moving to a hot cot is such a wonderful step. Free access to kisses and nuzzles makes a big difference. Enjoy! Glad to hear about all this good progress.

Fizzyfuzzy123 · 12/07/2013 18:10

Isn't it he best feeling ever when they get moved into a cot! I ended up hugging the nurse! So pleased for you x

SundaySunshine · 13/07/2013 07:29

Ahh well done Oliver, what a milestone! Congratulations Shiv that must have been an amazing feeling. I've tears in my eyes! Flowers

HairyPotter · 13/07/2013 10:46

Excellent news! Go Oliver xx

Isitme1 · 13/07/2013 14:18

Hope theres been more good news
X

Original poster
Supershiv1 · 13/07/2013 23:35

Saturday is weigh day and Oliver now weighs 1.565kg which is 3 & a half pounds. He's also 3 months old.
He's still in NICU but still on cpap and I have been having him out for cuddles every day. Not having any time off cpap as they want him to convert all his calories to weight gain.
Me and DH are staying at home together for the first time since he was born. Just me, him and the dog. It's nice but odd, like there's something missing.
Had our weekly review with the consultant and Oliver's left ventricular index is up quite a bit. WWaiting for this weeks headscan. Hope it's an anomaly.
Overall a good week. Xx

OP posts:
MichaelaS · 14/07/2013 07:49

Fantastic news, well done Oliver. Hope the head scan is nothing to worry about. Mx

mymatemax · 14/07/2013 18:18

Wow, sounds like he's going from strength to strength. I hope the scan is Ok, but just remember even if it shows something significant it doesn't always mean serious disability.
I hope you enjoyed your night at home... I bet you were itching to get back to Oliver today though. xx

Original poster
Supershiv1 · 14/07/2013 20:50

And today brought the news that Oliver is now on 3 hourly feeds and out of the hot cot, into a normal cot.
I might pinch myself!

OP posts:
VivaLeBeaver · 14/07/2013 20:52

Amazing Oliver! Well done all of you.

Pleasenomorepeppa · 14/07/2013 20:54

De-lurking to say, Yay Oliver!! Grin.

CelticPromise · 14/07/2013 22:41

Wow. What an amazing boy you have. Well done family Shiv x

Isitme1 · 15/07/2013 02:47

Ohh thats brilliant.

Take a moment to read the start of the thread and look at where you and Oliver have got to today.
Truly amazing!

X