Currently in NICU with 1lb 25wk very sick baby boy.

[Supershiv1]

How do I cope??
Have googled but I can't find comparable stories. All others involve babies twice the weight.
Am struggling to be sure I am doing the right thing putting my baby boy through all this.
He has grade 4 IVH & grade 2 so have no idea of quality of life at the end of all this.
Having said that he has fought for 10 days so far. The other parents in NICU have heavier babies and not the bleeds so feel like their problems are trivial compared to my baby boys.
I feel very weepy even though I am trying to put a brave face on.
How much more can my baby boy take? I can't hold him and I just want to tell him it will be ok but I don't know that it will.

That's great news. Well done Oliver!

Whoop Whoop - way to go Oliver! So delighted with his progress. Keep astounding those Drs mr O x

Ps keeping everything crossed for the scan and some positive news.

Flippin 'eck. Go Oliver

Fantastic news, shiv! Go Oliver!

Only just saw your latest updates shiv - amazing news!!! Go Oliver!!!

Really good to read your latest updates. Fx for the scan.

Wow, several corners turned in last few weeks. Keep up the good work Oliver.

Amazing well done Oliver! Xxx

Amazing news shiv. Well done little fella x

Wonderful news Shiv, well done Oliver.

How was the head scan?

Hope all is well
X

Phew! Not had chance to draw breath between cuddles, winding, nappy changes and poking my nipple in Oliver's face (only non nutritive exploration allowed - he has to save his calories for growth and breathing).
Head scan - ventricular index still enlarged but no massive increases disproportionate to growth - yay. If I'm honest I know that means that on top of the brain bleeds he may have more problems when older but don't care at this moment in time. ...........because. .........we got moved to HDU!!!
Next steps.......time off cpap.
Go Ollibobs go!

Ps
Oliver is 100 days old on Sunday xxx

Fantastic news shiv!!!

Ah that is great news. How are you managing expressing and stuff? Is there good support in the unit?

Happy 100 days Oliver. My boy got a card from the nurses at 100 days I think

Expressing - I use the hospital pump. Have slowed down since the early days as I have had to start using the catering freezers!

De-lurking finally to say YAY! for Oliver. He is doing so well.

Keep up the good work!

Ha I remember that, they asked me to keep mine at home in the end. Am now an expressing/bf supporter on my local unit, maybe there's someone who does similar on yours? Long term expressing is hard. Sounds like you're doing a great job

Ollibobs - v cute!
Fab latest update. Go Team Shiv!

Fab news!!!!

Ah brilliant news Shiv. Way to go Oliver!! and happy 100 days for tomorrow xx

What was that about chewing up the rulebook and spitting it out? Three cheers for young Oliver.