Currently in NICU with 1lb 25wk very sick baby boy.

[Supershiv1]

How do I cope??
Have googled but I can't find comparable stories. All others involve babies twice the weight.
Am struggling to be sure I am doing the right thing putting my baby boy through all this.
He has grade 4 IVH & grade 2 so have no idea of quality of life at the end of all this.
Having said that he has fought for 10 days so far. The other parents in NICU have heavier babies and not the bleeds so feel like their problems are trivial compared to my baby boys.
I feel very weepy even though I am trying to put a brave face on.
How much more can my baby boy take? I can't hold him and I just want to tell him it will be ok but I don't know that it will.

Oh brilliant news well done Oliver!!

Last Friday I thought I would loose my baby boy.
A week later he is on cpap and hasn't had a brady since coming off the ventilator.
Still not all plain sailing as his broviac line is leaking and they're trying to get a surgeon from Alder hey to come over tomorrow to take it out.
Despite everything I held Oliver today and he went 'rooting' for my nipple, gave a few licks and tried to suckle.
This is a massive milestone for a little man who makes mummy very proud. X

Great progress Oliver! What a star.

Just speed read the thread. So so pleased and a bit teary!! Hoping onwards and upwards from here- I'm going to pray for you all every night - I promise.

Love to you , your husband and baby Oliver- little hero he is xxxxxx

Hey shiv! This is fantastic and it's fab that he's rooting for the nipple! That's such a great achievement! Oliver's are strong! Mine was and yours is too . Love to you all x

Really great news shiv

Hey Shiv,

That's amazing, I'm delighted for you-keeping fingers crossed for further progress updates :)

Bloody amazing new shiv. Leaky eyes here :-)

Onwards and upwards. Thinking of you all x

He's really turned a corner hasn't he? Well done Oliver - so proud of you! Hope the Alder Hey surgeon today removes the line and his progress continues in leaps and bounds x

Well done Oliver and you too Shiv.

Brilliant shiv I'm really happy to hear he is doing so well. And rooting too!!

I'm on holiday and have missed a few updates, how brilliant to log in and get this news. Go Oliver!

Great news that he is continuing to improve . Best wishes to you all x

Wonderful news Shiv. The moment he went nipple hunting must have been very special. X

Yay for Oliver and for Supershiv!

Awwwww fantastic!

That's fabulous news! Well done Oliver for everything and especially for the nipple hunting!

Such good news. At my nct class I heard of a boy born at 24 weeks. Like Oliver he had a bad first few weeks. He's 7 now and thriving. X

Oliver is 3lb and progressed to a hot cot yesterday!
Still in ICU, but I can kiss his face xx

Go Oliver!
So pleased to hear about his progress. The fact that you are now able to kiss that gorgeous little face is just fantastic

Wonderful wonderful news! Oliver your a lil superstar!
I bet 3lbs seems huge at over 6 1/2 months Alex still isn't 10lbs but he seems to enormous compared to what he was so I forget how small he is. X

Oh, how wonderful - I am sitting here like this ->

Go, Oliver, go! And enjoy lots of kisses from Mummy and Daddy

That's great news :)
One of my DS's best friends was extremely premature, he's 8 now and is doing so well - and is a lovely lad.
So pleased to hear good news of your Oliver.