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Original poster

not good news about dh.

120 replies

misdee · 16/02/2005 20:38

the tests arent comepleted yet for transplant assessment but its looking very liekly he will be put on the list. however his kidneys are causing concern. he is out putting more fluid than he is taking in. is now on restricted fluid intake. if his kidney function doesnt get sorted out then he may have to stay in harefield till a heart becomes available. but as dh is tall and low body weight the doc has said it may cause problems in finding a suitable heart for him. but his heart needs to be repalced as its causing the problems for his kidney and liver. far too much to take in, and i;m not sure i'm explaing it properly.

OP posts:
NameChangingMancMidlander · 16/02/2005 20:39

Oh hon I know nothing about the medical side of DH's diagnosis but just wanted to send you enormous hugs and good luck vibes.

Do you feel as though it has been prperly explained to you by the Drs?

Original poster
misdee · 16/02/2005 20:40

i didnt see the docs. i popped by for a quick surprise visit this afternoon and dh did his best to explain it to me.

OP posts:
pinkdiamond · 16/02/2005 20:40

This reply has been deleted

Message withdrawn

Miaou · 16/02/2005 20:41

misdee, for you and dh. Sending you some hugs ((((((((()))))))))))). Wish I could send you something more useful.

pixiefish · 16/02/2005 20:41

hugs to both of you

Miaou · 16/02/2005 20:42

Can you make an appt to see consultant in a couple of days and get them to go through it all with you both?

ImuststopdrinkingBlossomhill · 16/02/2005 20:42

Oh Misdee sending you more hugs {{{{xxx}}}}}

Have you got anyone around to be there for you? Is it tomorrow that you are going in?

Sending so many good vibes to you >>>>>>>>>>>x

MarsLady · 16/02/2005 20:43

{{{{{{{{{{{{{{{{{{{{{{{{{{{{hugs}}}}}}}}}}}}}}}}}}}}}}}}}}}

NameChangingMancMidlander · 16/02/2005 20:43

Perhaps you'd have a clearer idea if you spoke to one of DH's specialists ? It might help you get your head around it a bit.

Is DH on dialysis for his poor kidney function ?

Gobbledigook · 16/02/2005 20:43

Misdee, I always struggle to know what to say but just at least want you to know I'm thinking of you.
xx

ImuststopdrinkingBlossomhill · 16/02/2005 20:43

Can you not phone and ask to speak to one of the doctors to clarify what dh said.

lunavix · 16/02/2005 20:44

oh hun {{{{{{{{{{{hugs}}}}}}}}}}}} poor poor you and dh

ImuststopdrinkingBlossomhill · 16/02/2005 20:44

Couldn't you phone and ask if it's possible to chat to the doctor or even the nurse. Just someone who knows medically what is happening.

Slinky · 16/02/2005 20:45

Misdee

Sorry to hear this - sending hugs to the both of you.

ImuststopdrinkingBlossomhill · 16/02/2005 20:45

Sorry misdee I didn't think my first post came out.

Original poster
misdee · 16/02/2005 20:45

i may get a chance to speak to his docs but his mum will probably do it for me.

not going in tomorrow, so fingers crossed he does get out for monday, even if its just for the birth.

OP posts:
snafu · 16/02/2005 20:45

Misdee, don't think I can say anything useful but sending good good wishes to you and your dh (((())))

Tinker · 16/02/2005 20:46

Sorry to hear all this misdee, think you are amazingly strong.

ImuststopdrinkingBlossomhill · 16/02/2005 20:46

Fingers crossed tightly for you misdee x

kid · 16/02/2005 20:46

I'm sorry to hear this Misdee, you have been through so much already. I agree with the others, could you speak to one of the Drs to get them to explain everything to you?
Wishing you both some good news soon.

ggglimpopo · 16/02/2005 20:47

Message withdrawn

lockets · 16/02/2005 20:48

This reply has been deleted

Message withdrawn

Hulababy · 16/02/2005 20:49

Oh no misdee; so sorry.

crystaltips · 16/02/2005 20:49

Hugs to you both

Original poster
misdee · 16/02/2005 20:50

there is another option, basically a mechanical heart, but its experimental, and very risky, and means he will need a tranplant in the future anyway, but may buy some time.

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