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Original poster

not good news about dh.

120 replies

misdee · 16/02/2005 20:38

the tests arent comepleted yet for transplant assessment but its looking very liekly he will be put on the list. however his kidneys are causing concern. he is out putting more fluid than he is taking in. is now on restricted fluid intake. if his kidney function doesnt get sorted out then he may have to stay in harefield till a heart becomes available. but as dh is tall and low body weight the doc has said it may cause problems in finding a suitable heart for him. but his heart needs to be repalced as its causing the problems for his kidney and liver. far too much to take in, and i;m not sure i'm explaing it properly.

OP posts:
noddyholder · 17/02/2005 07:55

misdee thinking of you The mechanical heart was discussed with me at one point It gives the heart a real rest

Potty1 · 17/02/2005 08:17

Misdee - thinking of you and the girls.

As regards the hospital - I know exactly how you feel . We nearly lost dd because our local couldn't/wouldn't recognise that she was in failure.

FineFigureFio · 17/02/2005 08:21

you poor dh xx Hoping they find something soon for him and he keeps his strength up

PiccadillyCircus · 17/02/2005 08:23

Sending you and your family big hugs misdee.

Original poster
misdee · 17/02/2005 08:58

slept well last night, no bad dreams. will call DH in a few minutes just to tell him his wife is now a mob boss . he'll be so proud. lol

OP posts:
lyndap · 17/02/2005 09:05

Misdee
All the best.
Hugs.

littlemissbossy · 17/02/2005 09:08

sorry to hear this misdee, fingers crossed for both of you x

emmatmg · 17/02/2005 09:11

I have read your threads over the months Misdee and never really known what to say so have not posted. You amaze me with how much you cope with.

I can't read this and leave again so will send you lots of love and support. Really hope you have some good news soon.

LGJ · 17/02/2005 09:14

Rang DU who I suppose quite rightly said that is not his place to comment. He would hate to give you the wrong information, he did however ask me to point out to you that he is at a centre of excellence. He said to trust the professionals at Harefield, which I know you do. And that he is thinking of you.

LGJ

nutcracker · 17/02/2005 09:28

Oh no Misdee, only just seen this. So sorry about the news.

Original poster
misdee · 17/02/2005 09:39

just spoke to DH. thinks he has another day of rest with only tissue typing, INr etc (bloods), as he is still recovering from the MUGA the other day. and tomorrow is the angiogram. have been told if he is placed on the list and allowed to be at home, will have to have mobile on at all times waiting for the call. I asked whether or not we can get some flashing lights for the car lol. have really got to pass my test asap now.

OP posts:
fairyfly · 17/02/2005 09:51

Fingers crossed if you are looking to get him home then. Sorry i'm not very good with all the medical terminology, just wanted to post to say i'm still thinking of you. Do you have people close by with cars for lifts?

BEKsmum · 17/02/2005 10:05

Misdee, I hope you don't mind me positing this but I've only recently joined this site & have therefore only read some of the most recent threads and I just felt I had to post something to say how incredibly inspiring you are. Your dh is very lucky to have someonw so incredibly strong looking out for him and I hope you get some good news soon with regards to getting him a new heart.

I hope to that all goes smoothly with the birth of your baby next week and that this new addition to the family brings you lots of joy and yet another reason for your dh to keep fighting. I'm sure you and your daughters plus this new addition give him renewed strength everyday & that you'll soon see a light at the end of the tunnel where everything will turn out bright for you all, as you deserve every bit of happiness going.

beansprout · 17/02/2005 10:11

Lots of love to you all xxx

Original poster
misdee · 18/02/2005 09:15

angiogram today. about 10am. dh is scared, i'm, scared and dont know what i'll do if there are problems. as he has been on warfarin, they had to stop this so he wont suffer excessive bleeding today. want him home soon, but am not holding out much hope atm.

OP posts:
kid · 18/02/2005 09:17

Hang in there misdee.
How long will you have to wait for the results?
Will be thinking of you both today, hope everything goes smoothly. xxx

Original poster
misdee · 18/02/2005 09:21

i guess they can see how much damage there is to the heart etc as soon as they do it. will take about 45mins if all goes smoothly and no complications.

OP posts:
fairyfly · 18/02/2005 09:22

fingers crossed

JoolsToo · 18/02/2005 09:23

sorry to hear about this misdee and am wishing everything goes according to plan for you and dh.

ImuststopdrinkingBlossomhill · 18/02/2005 09:23

Good luck misdee xxx

nasa · 18/02/2005 09:24

good luck today misdee

Slinky · 18/02/2005 09:25

Good luck Misdee - will be thinking of you both today xx

Original poster
misdee · 18/02/2005 09:34

i'm gonna go soak in the bath, try not to think about things.

OP posts:
JakB · 18/02/2005 09:48

Really sorry to hear this, misdee. Sending hugs {{{{hugs}}}}

Girly · 18/02/2005 09:52

Good luck today misdee, I hope all goes well, sounds like he is in the best place. You are so brave, I take my hat off to you.