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Original poster

DS has brain tumour - update 2

233 replies

Clarinet60 · 31/10/2005 13:52

Getting long again.
Batters, I got your CAT, thanks so much. I tried to email you but it bounced back, so I'll try again later. (My answer is positive!)

OP posts:
BluStocking · 15/12/2005 10:29

OK, another day over with Droile, and we'll be thinking of you between now and Tuesday.

Is there anyone who can come with you and be your advocate / extra pair of ears in the meeting? It does seem that it would be better if only the people who can actively give you info are in the room..or is that something you're now beginning to feel more indifferent about?

walkinginawinterBundleland · 15/12/2005 10:44

I agree with Marina, Droile, I know teaching is part of the whole shebang in hospitals but you could explain how sensitive you are feeling at the moment and would really prefer to limit the numbers in the room.

PottyinaPearTree · 15/12/2005 10:52

Glad it went OK Droile and will be thinking of you next week - could they make it any closer to Christmas (roll-eyes emoticon).

Agree with both Marina and Blu about having another pair of ears in the room with you next week, maybe a liasion nurse of some description. If you want/need less onlookers then tell them so, they can have a case conference when you've gone - which they'll do anyway.

Look after each other.

FastasleepInAManger · 15/12/2005 11:25

Droile are you still with Alder Hey or back in Manchester now?

I've missed your other threads, so sorry to hear it was cancer ...

If you're still in Alder Hey in oncology my cousin (in law!) Mark is in there still, he's just gone 3...His mum Jayne would be happy to befriend you and tell you about stuff if you need an ear or some advice or anything (she's a neuro nurse too)

I know I mentioned her already! And you're probably back in Manc!

Best of luck anyway xxxx chemo is a real b*tch... but you'll get through it together xxxx

MARINAtivityPlay · 15/12/2005 12:29

Fastasleep, they are still at Alder Hey so your advice could really help Droile.
wishing your cousin and his mum all the best for his treatment XXX

FastasleepInAManger · 15/12/2005 16:05

Next time we vivist we could say hi Droile! (Not that we visit that often with a teeny baby and a toddler)

Hope you're doing well

PottyinaPearTree · 20/12/2005 16:13

Been thinking of you today Droile. X

Rudolphthebluenosedteddy · 20/12/2005 16:19

Thinking of you today, Droile.xx

Misspiggy · 20/12/2005 20:17

((((hugs)))) Droile. x

myturn · 20/12/2005 20:20

Hope you are ok today Droile. x

MARINAtivityPlay · 20/12/2005 20:25

Just checking in Droile, hope you are OK and had a reasonable appointment. XXX
(Droile apparently received her Mumsnet blanket today before the hospital trip everyone )

tamum · 20/12/2005 20:25

And another one sending her love, Droile.
xxx

thecattleareALOHing · 20/12/2005 20:26

How did it go Droile? Thinking of you and your ds.

Original poster
Clarinet60 · 21/12/2005 09:48

Thanks for all your nice posts.
We're back. The scan showed only a tiny amount of growth - a milimetre, and there needs to be at least 2 milimetres before chemo is warranted, so he's got a stay of execution until at least April. They were very pleased with how well he's doing and said they don't think it will explode out of control - it's stable ATM, but warned us that that tumour type does tend to progress.
So we are pleased (it would have been better if there had been no change, but that was unlikely).
The chemo, when he has it, will not be as demanding as some other chemos, so that's great news. The problems we've had with his appetite are probably related to his medication, so we have to see his neurologist.
Mr Mallucci was looking even more gorgeous than ever (sorry, couldn't resist......I'm getting the tummy bug now, so I must be delerious..........)

That would be nice, Fastasleep.

OP posts:
Blandmum · 21/12/2005 09:51

So glad to read your news.

Have a great christmas,
With every best wish and massive higs to you all

Rudolphthebluenosedteddy · 21/12/2005 09:52

Oh, that's excellent news, Droile!
Glad to hear it was so positive.
I hope you all have a lovely Christmas.

GhostofChristmasNatt · 21/12/2005 09:53

Glad to hear it, droile and hope you all have a lovely Christmas. xxx

handlemecarefully · 21/12/2005 09:54

Oh good Droile - positive news for you as you go into Christmas. Have a lovely one btw

hmc
xxx

winnie · 21/12/2005 09:55

Droile, good news. Thinking of you all. I hope you get to have a good Christmas, Winniex

ParrupupumScum · 21/12/2005 09:57

Oh that's good news, droile. Glad he's doing well and that Mr Mallucci's gorgeousness provided some light relief! Hope you guys have a fab Christmas.

Tinker · 21/12/2005 09:59

Great news for you all Droile. Hope you have a wonderful Christmas. x

batters · 21/12/2005 10:00

This reply has been deleted

Message withdrawn at poster's request.

SpringCrimboTurkey · 21/12/2005 10:03

Fabulous news Droile. So so so pleased for you all. Hopefully you can enjoy christmas to a certain degree with the knowledge you have.
Fantastic

sevensuzyswongsaswimming · 21/12/2005 10:10

oh that is fantastic news Droile, so please for you and your family

Hug that little boy close to your bosom for me and enjoy your xmas together

IOTAnnenbaum · 21/12/2005 10:13

Good news Droile.

Best wishes for a very Happy Christmas