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DS has brain tumour - update

381 replies

Clarinet60 · 14/09/2005 11:01

We went to Alder Hey yesterday and they were very efficient in terms of ordering a second scan for this Friday, etc, but we are back to square one in terms of whether/when a biopsy will be done, because the person we saw wants to start all over again and let his own team decide. This is worrying, because the oncologist at Manchester said ds needs a biopsy - I just hope the new team agrees. Also, we were wrapped over the knuckles for changing teams because they are all good friends together. I lost a lot of sleep last night fuming about the injustice of that, because the Manchester team lost letters, ignored requests for blood test results and generally had a 'some time any time' attitude that didn't put ds's welfare first, etc etc. Mustn't rant, this is supposed to be an update! So, scan on Friday (to see if it's grown) after that, who knows?

OP posts:
Clarinet60 · 30/10/2005 22:51

Yes Potty, usually we get a copy of each letter sent, but Alder Hey haven't sent any to anybody yet, apart from the brief discharge sheet.

OP posts:
anniebear · 01/11/2005 19:54

Droile

Mr Mallucci did Daughters 1st Brain Surgery, he was lovely!! (Mr May the 2nd)

All the Nurses had a bit of a thing for him!!

Clarinet60 · 01/11/2005 20:57

I'm not surprised, Annie. Tell me more!

OP posts:
Clarinet60 · 01/11/2005 21:00

There's an update -2 thread further down, anniebear. Tell me more on that, if you like.

OP posts:
anniebear · 02/11/2005 10:05

Have replied to your e mail Droile

xxx

ThomCat · 08/11/2005 17:21

Oh Droile, just deleted this post twice, nothing I'm saying sounds right, sorry!
Blu keeps saying it so much better, she's great isn't she
I'm still here though hon, and still thinking of you.
TC xx

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