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Original poster

DS has brain tumour - update

381 replies

Clarinet60 · 14/09/2005 11:01

We went to Alder Hey yesterday and they were very efficient in terms of ordering a second scan for this Friday, etc, but we are back to square one in terms of whether/when a biopsy will be done, because the person we saw wants to start all over again and let his own team decide. This is worrying, because the oncologist at Manchester said ds needs a biopsy - I just hope the new team agrees. Also, we were wrapped over the knuckles for changing teams because they are all good friends together. I lost a lot of sleep last night fuming about the injustice of that, because the Manchester team lost letters, ignored requests for blood test results and generally had a 'some time any time' attitude that didn't put ds's welfare first, etc etc. Mustn't rant, this is supposed to be an update! So, scan on Friday (to see if it's grown) after that, who knows?

OP posts:
teeavee · 15/10/2005 13:13

Thank you for keeping everyone informed Droile, I send a barrelful of love to your ds.

batters · 15/10/2005 13:20

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Message withdrawn at poster's request.

Prufrock · 15/10/2005 13:39

Droile I've only just seen this. I'm so sorry that things have progressed in this way.
You know that Mumsnet, and mumsnetters will be here for you just as much or as little as you want us to be - one of the best things about this kind of support is that you only need to use it when you want to - we aren't going to get the collective hump if you decide to disappear for a while.

I would think that if you call people who have been through similar things themsleves they will be completely familiar with wobbly voice syndrome and completely unfazed even if you simply sob down the phone at them.

My thoughts are with you and your family.

motherinferior · 15/10/2005 13:40

xxxxxxxxxxx

motherinferior · 15/10/2005 13:41

Oh, Prufrock, well said.

snailspace · 15/10/2005 13:53

Message withdrawn

ScummyMummy · 15/10/2005 14:00

Lots of love to you today, droile. Been thinking about you a lot.

HRHWickedwaterwitch · 15/10/2005 14:01

I've been thinking about you too droile and still am.

Marina · 15/10/2005 14:13

Dear Droile, Prufrock has said it beautifully. Wobbly or silent, angry or sad, be how you feel here, you are in all our thoughts so much at the moment. XXX

PollyLogos · 15/10/2005 16:01

Yes I frequently think about you all Droile, but especially you.

tortoiseshell · 15/10/2005 16:02

xxx droile, thinking of you

bossykate · 15/10/2005 18:03

i'm not good on threads like this, but i think of you and your little boy frequently. i am so sorry you are going through this

Blu · 15/10/2005 20:11

Droile - I think it will be forever candy frost in our house from now on. I love that! Bless him, he sounds just gorgeous.

marthamoo · 15/10/2005 20:27

Droile, just to say you've been in my thoughts a lot and to reiterate what so many have said - we're here if you need us.

ThomBat · 15/10/2005 20:29

Hi is gordeous, I've been lucky enough to have as neaky look at him, and he's very, very handsome.

Just checking in Droile. Mad how often you are on my mind.
How's your weekend going?
Are you feeling ok, are you getting the support you feel you need, not from us so much but those there with you?

Hey, would a night away do you any good or is that not a great idea right now?
Just thinking maybe you could come to London for the MN meal out. Stay in the hotel. We'd sort it all for you, but you might not be ready for that right now. However, if one night away would be soem medicine for the soul, well it would be fab to share an evening with you and arrange for you to stay overnight, same hotel as Beetroot etc and then make sure you get back ok the next morning? Bad suggestion???

Your friend - TC x

Original poster
Clarinet60 · 15/10/2005 23:12

No Thomcat, it's a lovely suggestion. I don't know if I'd have the heart for it, but it's a nice idea.
This weekend is a bummer really, it doesn't feel any different from the week.

OP posts:
marthamoo · 15/10/2005 23:13

Hi Droile

Original poster
Clarinet60 · 15/10/2005 23:14

Hi Marthamoo

OP posts:
marthamoo · 15/10/2005 23:18

You're up late - can't you sleep?

Original poster
Clarinet60 · 15/10/2005 23:27

Haven't been to bed yet, but must go in a minute.

OP posts:
marthamoo · 15/10/2005 23:29

Is your dh asleep? Just ignore me if I'm being too nosy - but I'm here if you're needing someone to talk to.

ThomBat · 15/10/2005 23:32

Hi Drolie, well it's not for while yet. If you change your mind and fancy 1 night away, mention it and it will be done.

How about the support you're receiving from those around you, are you okay? I know it's going to be hard and you're bound to feel a whole range of thinfs but have you got that support there for you?

Original poster
Clarinet60 · 15/10/2005 23:33

No, he's watching telly.
I'm really flat and dull, going to have to go to bed.
Night Marthamoo
xxxx

OP posts:
Original poster
Clarinet60 · 15/10/2005 23:34

No TC, there's no-one around.
I don't think anyone can face it yet.

OP posts:
Beetroot · 15/10/2005 23:35

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Message withdrawn