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Original poster

DS has brain tumour - update

381 replies

Clarinet60 · 14/09/2005 11:01

We went to Alder Hey yesterday and they were very efficient in terms of ordering a second scan for this Friday, etc, but we are back to square one in terms of whether/when a biopsy will be done, because the person we saw wants to start all over again and let his own team decide. This is worrying, because the oncologist at Manchester said ds needs a biopsy - I just hope the new team agrees. Also, we were wrapped over the knuckles for changing teams because they are all good friends together. I lost a lot of sleep last night fuming about the injustice of that, because the Manchester team lost letters, ignored requests for blood test results and generally had a 'some time any time' attitude that didn't put ds's welfare first, etc etc. Mustn't rant, this is supposed to be an update! So, scan on Friday (to see if it's grown) after that, who knows?

OP posts:
Original poster
Clarinet60 · 15/10/2005 23:35

I tell a lie - there is a friend coming round in the morning.

OP posts:
marthamoo · 15/10/2005 23:35

Ok Droile - I hope you manage to get some sleep. Night night xx

ThomBat · 15/10/2005 23:36

oh sweet Hope you sleep ok.

ThomBat · 15/10/2005 23:38

Our posts ahve all crossed. Do you think that when this inital shock wears off and you can all function more that you and your dh will be able to fully support each other. Do you feel it (the support) will be there for you?

Original poster
Clarinet60 · 15/10/2005 23:42

No, tbh.
Must go to bed now, more tomorrow
xxx

OP posts:
marthamoo · 15/10/2005 23:42

Night night xxx

ediemaybeabat · 15/10/2005 23:45

Dear Droile, I am so sorry that things have turned this way. Like others I feel very inadequate and also in awe of your composure. I am sometimes in Liverpool for work and if there is anything practical I can help with when you're at Alder Hey, just CAT me, anytime.

ThomBat · 16/10/2005 00:02

Not liking that no support thing, not liking that at all. Okay, night night for now, peaceful dreams and speak to you later. TC xx

Beetroot · 16/10/2005 00:05

This reply has been deleted

Message withdrawn

suedonim · 16/10/2005 01:49

Shit. I'm so sorry, Droile, this is so bl%dy awful for you all, I'm lost for words. I've just got back from a holiday in the Lake District, I didn't realise we were in such close proximity to you. Our house will probably be empty from next January - if a change of scene (to Aberdeenshire) would help, let me know and it can easily be arranged.

Also, after your post of 12.33pm, is there a specific charity for research into your ds's condition because I'd really like to help? Otherwise I'll go the Ronald McDonald route. Thinking of you, sweetheart.

HuggyBear · 16/10/2005 02:26

Ive been following your threads but havent been able to find the words.. and still cant.

you and your family are in my thoughts and prayers.

Bless you xxxx

PottytheVampireSlayer · 16/10/2005 09:12

Droile. Hi.

Sorry that you aren't getting much support around you. If the wishes of these mumsnetters could be turned into physical and emotional support you'd be wrapped in a huge comfort blanket right now. I hope your friend is helpful today.

Your dh is working through this in his own way.

Thinking of you every day.

Original poster
Clarinet60 · 16/10/2005 13:37

Hi. Still not much to say.
Suedonim, I haven't heard of a charity, but there may be.
Thanks especially to those who have offered their houses.
The health visitor is coming to see us on Tuesday.

OP posts:
Blu · 16/10/2005 13:46

Droile, I'm so sorry more of us aren't closer to you, so that we could just come and be with you whenever you felt like someone to listen or just be with you through this flat, numb time. Damn my job.

LadySherlockofLGJ · 16/10/2005 14:04

Droile

I never know what to say, I read this thread constantly and you are on my mind.

Blu's wish for you made me cry, I too wish that we could take some of the burden for you.

I live in Surrey and if you or all of you need a bed for a night or two, please let me know.

ThomBat · 16/10/2005 21:26

Evening Droile. How was yur day, your friend was coming right? How'd that go, was it helpful / theraputic??

tamum · 16/10/2005 21:29

Just checking in to send my best wishes Droile. Do have a think whether there is anything any of us can do, however big or small. We're all here.

marthamoo · 16/10/2005 21:35

Likewise.

Sexonlegs · 16/10/2005 21:57

Dear Droile, this is the first time I have read your thread, and I am so so sorry that you are going through this.

My thoughts are with you and your family.

Claire

Original poster
Clarinet60 · 16/10/2005 22:57

Thanks.
Hi TC. Yes, it was good. Not therapeutic as such, just quite normal. DH & I took the boys to the park afterwards and that went well. DH is starting to thaw out a bit.

OP posts:
motherinferior · 16/10/2005 23:00

I am glad today had its slightly better aspects, love.
xxxxxxx

Blu · 16/10/2005 23:00

A normal trip to the park sounds good. To ds life IS normal, so well done. Good to see a friend, too?

binkie · 17/10/2005 10:36

Droile, you are in my thoughts, too. I expect that the people who post on here are just the tip of the iceberg of the people who read it and would help if they could.

BudaBabe · 17/10/2005 11:05

Droile - I am so sorry about what you are going through.

Would also love to be able to lift some of the burden for you.

Glad your DH is "thawing" bit. I think my DH would prob react a bit like that too. He's prob terrified. But men can't been seen to be scared. Think about the counselling when you get a chance. It may help you come through it together.

xxxxxxxxxxxxxxxxxx

ThomBat · 17/10/2005 12:48

glad you had a nice, normal, day and good news about DH.
have emailed you as well today btw.
TC x