Hi, Well I have given up for the forseeable..
We got bad news about our wee man, got his EEG results bk and they were really bad and we were told.... when I kept asking the consultant, that Jack only has 50% chance of getting to 40 yrs and 50% of not reaching that age
Can happen anytime from nw til then, so needless to say ths has put me right off having another
We are devastated...Jack's epilepsy won't do it, although there are always risks with any1 who has seizures, but Jack has a brain malfunction due to genetic disorder, which has no name and Jack is only 1 of 5 to have ths in the country and illnesses, such as bad colds, chest infections etc could kill him
Can't believe I am even writing those words
Consultant did say that Jack is on the very good end of the spectrum as he is mobile-ish and is not tube fed etc
I am in a world of my own right nw, a terrible place to be, believe me, I cannot pray any harder and am soo hoping Jack proves them all wrong