Called back to consultant after DS brain MRI continued

[nearlymumof5]

Hello everyone, I’ve started another thread which continues on from this one

www.mumsnet.com/talk/childrens_health/4574553-called-back-to-consultant-after-ds-brain-mri?page=1

im blown away by you all, with your support and encouragement. Your messages really have been comforting and a distraction, I’m so grateful.

family background - I don’t have 6 children to run around with at home 🤣 I have three adult children with 2 at uni, and one a mummy herself. My youngest three are 13, 7 and 2. My 20 year old daughter who’s back from uni is staying with my parents and looking after her little brothers while we are here. Once things have settled with DS with pain we will bring them over and they can stay in Ronald McDonald with us.

Also please please, if you’re in McDonalds, please round up. This helps pay towards the amazing house we get to stay in which has been a god send. I can’t wait to start fundraising for these amazing people when this is all over xx

Thanks for the update! So uplifting to read. It’s great news, very happy for you all.

Whoooo! So happy for you! Praying everything stays positive for you and so glad youve had good news x

What a lovely update!! So happy for you all. Enjoy Matilda!

I’ve had no sleep but this put a huge smile on my face. Enjoy Matilda ☺️

Thank you for updating us all. I hope things continue to look positive, love to you all xx

What a fantastic update. Thank you for letting us know. I’m so happy for you and your family

This is fantastic news! As a former breast cancer patient, I completely empathise with that feeling of being out of active treatment (which is amazing obviously) but losing that protective cloak around you. Having said that, even 3.5 years on for me, I know I can ring or go in at any time and they are there for me. It will be the same for you, if not more so.

I'm so happy for you all. Very best wishes 💐

Amazing news so happy for you all.

Oh my goodness, that is just wonderful. So happy for you all 🥰

That is amazing news!
I'm delighted for you

Fabulous news 💕

I just saw you and your beautiful, strong boy on Stand Up To Cancer.

Love and Strength to Kaiden and all your family ❤️

I saw you on the telly too! He's a beautiful boy. Well done you for telling your story. Massive hug to you and your family.

Thank you both so much, I’m so glad we could tell Kaidens story, and hopefully raise awareness and much needed money in to research 💕💕💕

I have just caught up . So, so pleased for you all, what a fabulous update xx

I've just watched Kaidens story. What a gorgeous family you are. I loved your idea with the beads for Kaiden, I can't imagine what you've all been through and I hope with all my heart Kaiden just goes from strength to strength. I hope you are able to get support too, is there emotional support for parents of children going through cancer? It must be hard beyond words X

Hi All, it’s been a while, but I wanted to let you know that sadly Kaiden relapsed. An MRI in March showed a tumour in his spinal cord. We are now back in treatment which he is coping with really well. We’re praying that this chemo will shrink the tumour, as surgery and radiotherapy are now considered too dangerous because of where the tumour is (it is in his neck). In the time between relapse we managed to go to Disney Paris which was amazing, and have just recently got back from center parcs which was a lovely break! Kaiden also fulfilled his biggest dream and auditioned for BGT which was shown on Sunday eve. We’re having fun and trying to fill each day with as much happiness as we can. I know there’s so many of you that think of us and I’m always so grateful for this little thread community xx

I'm so sorry to learn this news. You and your lovely family have my best wishes and I do think of you often.

Thanks for the update and it's sad that it's not good news. Hoping the treatment is successful. [Hug].

So sorry to hear this. You and your lovely family are in my thoughts and prayers 🙏.

So sorry to hear this update. We're all here, praying for a successful outcome for your beautiful boy and strength for the rest of you to bear the ordeal xx

So sorry to hear this update OP. Thinking of you, your lovely boy, and the rest of your family.

I’m so sorry that Kaiden has relapsed. Bless him, he sounds like a fun and lovely little sweetie. Big hugs, mg thoughts are with you.

Oh I'm so so sorry to read this update. Hope the treatment is successful and thinking of you all.

So sorry to hear your update. Hopefully your amazing boy, will get through this, and be well.
We are all here, sending hugs and strength to Kaiden and your family. 😘💙🌸