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Dla wait times part 35

1000 replies

Emma2345 · 13/03/2024 11:50

New thread as this one is nearing the end ,, also going to post a separate thread for people either waiting for MR’s or starting the process of one (mandatory recommendation)

OP posts:
Are your children’s vaccines up to date?
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7
Vickyxxx · 14/03/2024 08:32

Hopefully mine has gone to a dm aswell looks like they are on with these dates.... i will try ring on monday and see if there is any news, im not holding out much hope for it to change though as i dont think i have enough evidence etc,, fingers crossed you hear soon x

Margot82x · 14/03/2024 08:40

The waiting whilst it’s with a DM is nerve wracking 😓

Emmajm85 · 14/03/2024 08:44

@Vickyxxx you never know though. Its so wrong, but i think sometimes it’s just pot luck as to whether your dm is in a good mood or not 🙄
thank you, me too xx

@Margot82x it really is 😅 I’m a bag of nerves since finding out yesterday it’s with a dm. I think I was better off not knowing 😂 xx

Emma2345 · 14/03/2024 08:53

@Margot82x @Shaf89 any of use ringing today 😂? X

OP posts:
Dotty306erica · 14/03/2024 08:57

I’m gonna called at 9 scan date 27-11 was told I was near the end of the wait on Monday let’s see what today one says x

Destiny35 · 14/03/2024 08:58

@Margot82x It is, mines been with them over a week now 🙈 I’ve seen people say they’ve been almost 3-4 weeks with a DM aswell.

Themrseds · 14/03/2024 09:00

DanDan85 · 13/03/2024 21:14

yes I have, I might be being daft but I really do think she’s entitled. I’ve asked her head of year if he’ll provide a letter detailing her medical issues and how they affect her at school and measures theyve put in place for her. Hes sent an email to ALL of Rubys teachers for their input so hope that carries some weight. They made s fuss about her not having 1-1 support, an ECHP or similar. Will also send all clinic letters, details of investigations etc. She’s goin to hospital tomorrow for 24hr EEG monitoring. I’ll also do a cover letter arguing with every single point theyve made. Good luck!

Good luck to you too! Its crazy they try to fob you off, with things that aren't criteria. Also shool and services, don't always do what they're supposed to. My daughter it's got too late to do EHCP, but if they'd applied when symptoms started she'd have one. We've begged for stronger meds and pain management, but they won't do it. She wouldn't use mobility equipment, as she's worried about stigma. Sometimes its just so hard to convey, what their needs are, when its not always documented or actioned correctly.

Shaf89 · 14/03/2024 09:00

Emma2345 · 14/03/2024 08:53

@Margot82x @Shaf89 any of use ringing today 😂? X

I’ve just dialled!

Coconutstar · 14/03/2024 09:02

Parking again 7/12 called a week ago still in holding pile

Destiny35 · 14/03/2024 09:07

He got awarded!!!!
ON TUESDAY!!!!!!
they told me yesterday still with a DM but he said no payment was issued on Tuesday when the award was made!!!

EasygoinyAmy · 14/03/2024 09:09

Good-morning ladies,

you've kept me sane.

Just a little update and a timeline of events leading up to our award to give some hope that the end is in sight.

Called for forms on the 01/11/2023.
Scanned 16/11/2023.
Received two letters between November and January, can't remember the exact dates.
Called numerous times just to hear that beautiful music and to get most my cleaning done.
Received a text on the 26/02/24 to say our claim was taking a little longer. Called another million times and spoke do some truly delightful call handlers. Was told it went to a DM on the 08/03/24. Called on Monday the 11/03/24 was told still with a DM and to wait a couple of weeks. That afternoon I received a text at exactly 15:02 to say my beautiful boy had been awarded.
It was 18 weeks and 5 days from calling for the forms and 16 weeks and 4 days from the forms being scanned in. Backpay went in today he's got MRC and LRC.

It was a long road but people have waited longer. It tests you in every sense of the word. I only had a letter from SENCO and I bored them to tears with two pages of information. Hoping that we have a ton of awards today. I will continue to check in. I'm going to spoil my boy and buy him things he needs to make his life just that touch brighter. ❤️❤️❤️❤️

Destiny35 · 14/03/2024 09:12

@EasygoinyAmy chuffed for you!
so glad the wait is finally over, it’s been a long wait for sure!
Next year it will be the dreaded PIP for my son but I’m just thankful it’s over for now x

Anxiouslywaitingmum · 14/03/2024 09:12

Destiny35 · 14/03/2024 09:07

He got awarded!!!!
ON TUESDAY!!!!!!
they told me yesterday still with a DM but he said no payment was issued on Tuesday when the award was made!!!

Why did they have to lie on the phone yesterday 🙄
Congratulations on your award xx

Lolly966 · 14/03/2024 09:13

@Destiny35 congratulations!!! What was your scan date? X

Destiny35 · 14/03/2024 09:14

@Anxiouslywaitingmum Think they were pissed with my constant calling maybe so wanted to drag the torture of waiting 😂
Im so chuffed for him now for UC 🙈

Destiny35 · 14/03/2024 09:15

@Lolly966 scan date was 14/11
I called for forms 5th october x

Emmajm85 · 14/03/2024 09:16

@Destiny35 Ahh, well done! Fab news xx

UsernameUnavailable12 · 14/03/2024 09:20

Scan date 23/11 and 03/12, called just to add some extra information about additional support given to both boys, lovely man gave me an update without me asking said 23/11 is with DM and I will receive a letter and/or text with the details of his award and payments then backtracked and said “oh if he’s awarded that is”, 03/12 isn’t currently with a DM but is going to one soon although he said the scan date is 01/12 but the letter states 03/12

Lolly966 · 14/03/2024 09:20

I don’t know if I should call again this morning as I called them yesterday morning😂

sjm100 · 14/03/2024 09:21

congratulations on all awards x

Stookey · 14/03/2024 09:23

@012345k I am not sure if it’s worth it. I might try in two weeks if I’ve still not heard anything. Are you planning to call again?

kristie198 · 14/03/2024 09:25

Lolly966 · 14/03/2024 09:20

I don’t know if I should call again this morning as I called them yesterday morning😂

I feel the same I was going to call tomorrow but I want to call today but I phoned yesterday 🤣

Lolly966 · 14/03/2024 09:27

@kristie198 are you going to call? I can’t call tomorrow that’s why I wanna call today😂

Destiny35 · 14/03/2024 09:27

@kristie198 @Lolly966 Ring! I wasn’t going too because I have hounded them 😂 glad I did now lol x

Margot82x · 14/03/2024 09:28

@Destiny35 congratulations!!!

@Emma2345 i really want to try but I’m trying to hold off! Are you? Xx

@Shaf89 let us know what they say! Fingers crossed an award! 🤞🏼 xxx

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