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Original poster

My newborn girl is going to die, not sure what to do now.

1002 replies

cupofteaplease · 17/09/2011 12:09

I gave birth to our little girl yesterday at 1.15pm. They told almost straight away they thought she had Edward's Syndrome. Now they think her brain just didn't develop. Noone can tell us how long she will be with us, nobody knows.

My two dds are 6 and 4 and were so excited about their baby sister. They are coming to meet her later. How can I tell them she will die?

As she is breathing unaided and tube feeding, they are caring for her in SCBU, but I have said if they can't do anything, I want to bring her home to spend her last time. I wish we knew how long she had.

I think my heart is breaking.

OP posts:
cjbk1 · 30/09/2011 09:38

I hope u don't mind me asking Cup but can look at the photos please? is it possible from iPhone? if not will go on pc? hope ur havin another lovely day Smile

LittlePebble · 30/09/2011 09:40

Hey cupoftea, hope you're having another good day and the sun shines on you all. Thinking of you all hope Dr Death is proved wring by your little fighter.
Xxxx

cjbk1 · 30/09/2011 09:44

Ledkr; oh my god! I'm so pleased for u and your 'hunk' son wish u loads more happiness Smile

lalola · 30/09/2011 09:58

Have just come cross this thread cupoftea- your beautiful little girl obviously gets her amazing strength from her mummy! She really sounds like a true fighter to me, you must be incredibly proud.

I wish you and your beautiful family all the best in the world xxxx

Norfolkbumpkin · 30/09/2011 10:03

What a smashing photo of Bea in her dress, what a poppet! Enjoy the sunshine today, it's another beautiful day xxx

BB3 · 30/09/2011 10:11

Hey cupoftea just wanted to pop in to say we are all still thinking of you and hope you are enjoying every second with your little girl x

Keeping everything crossed for Monday, but sounds like you and DH will be fighting her corner every step of the way!

Makiko · 30/09/2011 10:14

This reply has been deleted

Message withdrawn

horribledinners · 30/09/2011 10:28

Thinking of you and your family today, I hope little Bea is enjoying some of this beautiful sunshine x

TheLadyEvenstar · 30/09/2011 10:41

Hope you are all well and Bea is gorgeous!!! She has the eyes of a fighter!!

lisad123 · 30/09/2011 10:50

beutiful girls. (my dd also has those slipper boots!)
really thinking of you all

Lauzifer · 30/09/2011 11:26

Just read this whole thread with tears in my eyes, Cupoftea your strength is truly inspiring. Beatrice is a little stunner as are your other daughters. Enjoy every day as it comes and cherish the love and support this thread has created.

Stay strong x

SkiLift · 30/09/2011 11:35

I am so sorry to read this thread. Truly heartbreaking. I wish you and your family as much precious time as possible together. Thinking of you x

SpanglyGiraffe · 30/09/2011 11:35

Thinking of you're beautiful family cupoftea and hope that you're all managing to enjoy the sunshine.

Bea has beautiful eyes, she sounds like a real fighter :)

Insanitybecomesme · 30/09/2011 11:41

Thinking of you and your family, you have three beautiful daughters.

FiniteIncantatem · 30/09/2011 12:05

Happy two weeks old, Bea!
I have been lurking on this thread and sending positive thoughts to you all. Your girls are beautiful and I hope that Bea keeps fighting... she may be tiny, but she is obviously much stronger than the Doctors think.
Much love to you all x

argghh · 30/09/2011 12:15

Just wanted to add my love and prayers too. You have a beautiful family x x x

goygoy · 30/09/2011 12:43

I read the whole thread last night and you've all been in my thoughts ever since. Beatrice is beautiful, so are your other daughters, you sound like a tremendously strong and close family. Enjoy your weekend and good luck for Monday. xx

5inthebed · 30/09/2011 12:50

How adorable does Bea look in her dress! Happy 2 weeks x

Thumbwitch · 30/09/2011 13:08

Cupoftea - 2 weeks already! She looks lovely in her dress, as do your other 2 DDs. She's still going - I hope she goes from strength to strength. Remember - whatever the doctors say on Monday changes nothing about who she is and what she is achieving - keep on giving her every chance to be as normal as possible.

Ledkr - God bless that cleaner! And so happy to hear your positive story there, your DS sounds wonderful :)

MackerelOfFact · 30/09/2011 14:24

Yep, still gorgeous, all 4 of you!

Hope you are able to relax a little this weekend ahead of the meeting on Monday. x

whattodoo · 30/09/2011 15:18

Happy 2 weeks old!
I've been following this thread but not posted because I had nothing useful to say.
But you've been in my thoughts and prayers.
Your forks are all gorgeous, you must be bursting with pride for them.
My fingers are crossed for Monday, enjoy the sunny weekend with your family.
X

whattodoo · 30/09/2011 15:23

forks? Blimmin' predictive text. I meant girls.
I've never seen your forks but I'm sure they're very nice.
X

WhoresHairKnickers · 30/09/2011 16:09

Lump in throat. Lump in throat...

Bicnod · 30/09/2011 16:44

I've been following your thread cupoftea and just wanted to say I've been thinking of you and your beautiful family lots.

Bea is lovely and clearly a fighter.

Will be thinking of you on Monday and hoping the news is better than expected.

x x

youarekidding · 30/09/2011 17:00

Happy 2 weeksday Bea Grin

I love the dress and she looks beautiful in it. I also love the fact neither DD1 or 2 have any issues with having their photo taken! You've definately got 3 posers on your hands!

Wishing you a peaceful weekend before you results on Monday.

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