My newborn girl is going to die, not sure what to do now.

[cupofteaplease]

I gave birth to our little girl yesterday at 1.15pm. They told almost straight away they thought she had Edward's Syndrome. Now they think her brain just didn't develop. Noone can tell us how long she will be with us, nobody knows.

My two dds are 6 and 4 and were so excited about their baby sister. They are coming to meet her later. How can I tell them she will die?

As she is breathing unaided and tube feeding, they are caring for her in SCBU, but I have said if they can't do anything, I want to bring her home to spend her last time. I wish we knew how long she had.

I think my heart is breaking.

cupoftea- i really dont know what to say other than little Bea is gorgeous, and all the others are so right, she has very knowing eyes, she looks like she knows exactly what is going on but isnt afraid at all. I wish you all the strength in the world darling, enjoy your baby coz she is beautiful xxxxxxx

Cupoftea, I couldn't read and not post. I am thinking of you and your beautiful family.

Good luck for Monday x

Just to update, I am pleased and astounded to say that the collection for Cup and her family has now reached an amazing £505. Thank you to everyone who has donated, we know there is more pouring in.

Just caught up on the thread. She is beautiful. Good luck for monday

Oh Cupofteaplease, I have just read this whole thread and like many others couldn't leave without saying something.

Beatrice is just so beautiful, and how fortunate she is to have been given to such a loving family who will cherish her every moment. My prayers too are with your family at this time. I hope you have a good weekend together.

You have a beautiful family.

The sun is shining for her, enjoy your weekend x

I am so sorry to read this, you have my heartfelt sympathy. This also happened to my mum, she gave birth to a little girl with Edwards Syndrome when I was 3 years old. I dont remember it but my mum said i was so excited about having a baby sister and she was unsure how to tell me she was going to die. My mum sought advice from her consultant. He advised her to bring me into the hospital to meet my baby sister, as otherwise I would be confused and blame myself for her not coming home etc. My parent took the advice and I met my baby sister. They told me she was poorly and that she was going to live with the angels. I told her what a little nappy she had on and that I loved her. And apparently I never asked about her again while i was very little, the consultant's advice seemed to work for me as i just seemed to accept what i was told. They then decided to turn off the life support machine, she lived till she was 2 days old.
I asked my mum how she got through it. She said already having me helped her to keep going, and she has learned to live with her loss as time has passed. Not much of consolation for you to hear that now as you are going through this in the present. I want to send you lots of love and my thoughts are with you all. If you want to speak to someone who has been through it, my mum is really lovely and i can get her to give you a call one day. Let me know if you would like this and ill arrange it for you.

xxxxxxxxxx

Will be thinking of you all and beautiful Beatrice on monday xx

Monday will be a big day for you all.

I'm hoping that Dr Death finds it in herself to show you all some compassin and understanding.

xxx

I have nothing really to add to what everyone else has said, but I wanted to let you know that your daughter's story has touched me deeply.

Beatrice is just beautiful.
You are being amazing, and your posts are so full of love for all your daughters.

I am thinking of you and your family, and wishing you strength and courage.

Keep positive Cup. Bea sounds like she is a proper little fighter. You sound so brave, you should be really proud of yourself. Stay strong. xxxxxxxxxxxxx

Keep strong, cup. Will be thinking of you on Monday.

Rooting for you all - stay strong!!! Lots of love to you all and, especially, Baby Bea! x

Just popping on to say good luck today. Big hugs to beautiful Bea and her sisters.

Beatrice is 2 weeks old today

In honour of this, she is wearing something other than a sleepsuit. New pics in profile.

(Sorry for the shameless showing off of my PTB, Precious Third Born!)

Thank you ledkr for sharing your story. Well done for being a fab mum to your son, and well done to that cleaner who helped you out.

When I was on the PN ward one morning the midwife walked in my room and found me practically howling with tears streaming everywhere. She just came over to me and without any words gave me a giant hug. She must have been busy, but she just held me for what felt like 5 minutes. That was all I needed to face another day.

bless her heart, she's lovely

ps, I have those exact slipper boots your dd's are wearing

sending you lots of love and virtual support; you are all in my thoughts and prayers.

Big kiss for your darling Bea x

cupoftea, Beatrice looks beautiful in her outfit. I'll be thinking of you on Monday and hope that she continues to prove the Drs wrong. She looks like a determined wee girl! Never give up hope. x

Beautiful dress Bea! Happy 2 week birthday :)

Bea is beautiful, you are blessed. Happy 2 week bday little one, keep fighting x

You have a beautiful family Tea.

Happy 2 week day to Bea!

oh preemies are SO CUTE in their little beanie hats... she looks wonderful, cupof. nice frock, Bea.

oh preemies are SO CUTE in their little beanie hats... she looks wonderful, cupof. nice frock, Bea.