My newborn girl is going to die, not sure what to do now.

[cupofteaplease]

I gave birth to our little girl yesterday at 1.15pm. They told almost straight away they thought she had Edward's Syndrome. Now they think her brain just didn't develop. Noone can tell us how long she will be with us, nobody knows.

My two dds are 6 and 4 and were so excited about their baby sister. They are coming to meet her later. How can I tell them she will die?

As she is breathing unaided and tube feeding, they are caring for her in SCBU, but I have said if they can't do anything, I want to bring her home to spend her last time. I wish we knew how long she had.

I think my heart is breaking.

Beautiful pictures of your beautiful girls.
I posted on your name thread a few weeks ago. Beatrice is a wonderful name. One of the meanings it has is 'voyager'.
Well we are all on a journey and we don't know, any of where that will take us or how long we may be on the way. You daughter is blessed that on her voyage she has parents and sisters who love and cherish her so dearly.

Beatrice is just beautiful. Beautiful soulfull eyes, she looks very knowing iyswim. Her sisters are also beautiful. I've been thinking of you qnd your family lots the last few days and will continue to do so.

cupoftea - you have three very beautiful daughters :) They are lovely, lovely photos.

It is horrible to have had the news on Friday and been left hanging. Did they say why they didn't have the results today? I hope you get some answers tomorrow.

If the power of MN could change this for you, we would you know.

x

What beautiful girls you have, you must be so proud. My thoughts and prayers are with little Beatrice and all your family.

I don't know what to add, except you have three beautiful girls, and my thoughts and prayers are with your family x

what a cutie-pie she is, cupof.

Thank you for putting up the photos, cupoftea - what beautiful daughters you have. Beatrice looks gorgeous in her little hat.

I do hope you get some more information soon. Take care of yourself xxx

What beautiful daughters you have cupoftea. Beatrice is just lovely. Thinking of you today x

Cup - she is beautiful! What amazingly big eyes. Her sisters look very proud of their tiny sister.

Keeping you all in our thoughts and prayers.

Thinking of you today cupoftea, praying for your little one and wishing you all the best x

oh cupoftea they are all lovely little girls. You must be very proud.

I hope the dr's get their act together today and give you a bit more info.

Beautiful pictures. Beautiful, beautiful girls.
What a little darling Beatrice is.

Thinking of you all and hoping there are answers for you very soon.

Morning cupoftea I hope you have a good day, thinking of you and Beatrice everyday. I hope your scar clears up and you get some more information from the doctors. Hoping the love and support you are sent from here helps xxxxxxxxxxx
Even if she's with you for a short time, Beatrice Primrose has touched the hearts of all of us on this thread. She won't be forgotten.

Oh cupoftea your girls are all so so beautiful and the love your older two feel for Beatrice is so clear. They look so proud and happy to have her. I know this may seem strange and you may already have done it but if you can try and take some photos of yourself and dh with Beatrice where you are smiling. We managed a few (although the smiles don't reach our eyes) and I'm glad we did. Thinking of you and all your family xx

Beatrice is a beautiful baby.

On Youtube there is a small film about a baby called Eliot with Edwards Syndrome called 99 balloons. It is sad but inspiring.

Thinking of you.

What adorable girls you have, the older 2 look so proud of their baby sister.

Thinking of you and more prayers for you and your loves ones today.

Congratulations on your three beautiful daughters. You must be so proud of your big girls and so in love with Beatrice. Wishing you a very special time together and beautiful memories to cherish for ever. Be good to yourselves.

cupoftea, your daughters are just beautiful. My thoughts are with you.

cupoftea what a staggeringly beautiful and strong family you have. Xxx beautiful pictures xxx as always sending love and strength to you all xx

She is so beautiful CupOf. Sending much love from the knickers household xx

what beautiful daughters you have! you are truly blessed having such loving children! Enjoy the time you have together, however painful and bittersweet it may be! Lots of strength and prayers for your family!

Oh my word, what a most beautiful and snuggly baby. Those eyes . She is adorable. I hope you have some lovely cuddles with her today.

cupoftea, your girls are so beautiful. they all have the same eyes - just breathtakingly beautiful.

and I agree with a previous poster - what a lovely, sunshiney name Beatrice has.

I am so sorry you are going through this, it must be so hard. your bigger girls do look so delighted with their new sister, you have some lovely family photographs there.