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My newborn girl is going to die, not sure what to do now.

1002 replies

cupofteaplease · 17/09/2011 12:09

I gave birth to our little girl yesterday at 1.15pm. They told almost straight away they thought she had Edward's Syndrome. Now they think her brain just didn't develop. Noone can tell us how long she will be with us, nobody knows.

My two dds are 6 and 4 and were so excited about their baby sister. They are coming to meet her later. How can I tell them she will die?

As she is breathing unaided and tube feeding, they are caring for her in SCBU, but I have said if they can't do anything, I want to bring her home to spend her last time. I wish we knew how long she had.

I think my heart is breaking.

OP posts:
Hulababy · 18/09/2011 20:02

I am so sorry to hear such news.

Your new little girl has such a beautiful name, I am glas that her big sisters have been able to met her and fall in love with her.

I like the explanation ChippingIn would give. It seems very much at the right level for your DDs.

happymummytobe · 18/09/2011 21:09

I'm so very sorry. You are very much in my thoughts and prayers xx

chinam · 18/09/2011 22:22

Thinking of you and your beautiful girl. xx

Friendlymum67 · 18/09/2011 22:38

I am so, so, very sorry for you all. I cannot begin to imagine what you are going thro. Words are inadequate but I have not stopped thinking about you and your beautiful daughter - Beatrice Primrose - such a wonderful name. Be kind to yourself and try to take one day at a time x

nenevomito · 18/09/2011 22:41

Sending love to you, Beatrice and all of your family.

DottyDot · 18/09/2011 22:49

Thinking of you Cupofteaplease and your family xxx

Leo4 · 18/09/2011 23:32

Sorry to hear the news :( my thoughts are with you and your family! stay strong Beatrice :) xx

AitchTwoOh · 18/09/2011 23:35

BEAUTIFUL name, cupoftea, absolutely magical. thinking of all of you, keep at it Miss Beatrice. Smile

LittlePebble · 19/09/2011 08:29

Morning cupoftea hope you managed to get some sleep xx keep fighting little Beatrice Primrose xxx

eastendmummy · 19/09/2011 08:32

My thoughts are with you cupoftea, Beatrice sounds like a fighter. Hope you managed to get some sleep last night. Thinking of you and your family xx

Pudding2be · 19/09/2011 08:36

How truly devastating. My thoughts and prayers are with you and your family cupoftea.

I sincerely hope she keeps fighting and proves them all wrong. Keep strong little Beatrice xx

pinkyp · 19/09/2011 08:39

How are you both today?

LizaTarbucksNonSmokingAuntie · 19/09/2011 08:46

Oh Beatrice Primrose! what a tiny speck of love you are to present such a combined gift and challenge.

I'm praying for You, your Mummy, Daddy, your big Sisters and all the people who have been waiting to welcome you that you will all find joy in each precious moment you share.

Cupoftea - thinking of you all xx

Bellavita · 19/09/2011 08:50

Thinking of you all xxx

homeaway · 19/09/2011 08:54

I am so sorry for you and your family. You have chosen a beautiful name for your baby daughter.

AugustMoon · 19/09/2011 09:37

Sending you strength and courage this morning, to get through today and make some lovely memories of your precious little girl x

travellingwilbury · 19/09/2011 10:05

Welcome to the world Beatrice Primrose , I truly hope you are having another good day today cupoftea

You and your family are in my thoughts .

Be kind to yourself .

ElasticNipples · 19/09/2011 10:15

hope today is a good day for you and your precious family.

thinking of you xxxx

BettySwollocksandaCrustyRack · 19/09/2011 12:20

Oh cupoftea firstly congratulations on the birth of your beautiful daughter Beatrice Primrose.

I am so sorry for the sad news, I really hope you get some time with her to make some beautiful memories for you all.

Sending you lots of love and peace, please keep us posted xx

Fillybuster · 19/09/2011 12:28

My heart broke for you and your family, when I read your post. I hope you manage to find some moments of joy today and wish you peace, love and healing in the months and years to come xxx

MackerelOfFact · 19/09/2011 13:03

I'm so sorry. Enjoy your beautiful Beatrice Primrose, thinking of you at this wonderful and terrible time.

bananamam · 19/09/2011 17:53

Hope today was a good day for you and your family

buzzgirly · 19/09/2011 22:38

I am so sorry to hear this news. Beatrice Primrose is a beautiful name for I am sure a beautiful little girl.

My thoughts are with you and your family x

BustersOfDoom · 19/09/2011 22:46

I am thinking of you all. Such a beautiful name for a beautiful girl xx

May09Bump · 19/09/2011 22:49

Can the hospital provide some couselling / support.

Sending you a big hug and hope you get some comfort from our support here on mumsnet.

I hope your family get some quiet time together with your daughter and i'm sure she feels you there with her xx

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