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Original poster

Devastated 1:4 chance of downs

184 replies

disconnecteddrifter · 13/08/2020 14:16

I have had 6 consecutive miscarriages and finally got to 13 weeks at the age of 42. Combined test nt 3.8, hcg 1.5, papp a 0.5. This seems certain for downs syndrome in all three areas of the test. I'm going for cvs but it's not looking good. It's stupid to hope isnt it?

OP posts:
PlateTectonics · 12/09/2020 08:13

Holding your hand OP Flowers

JennyMY · 12/09/2020 09:19

@disconnecteddrifter We too have had extremely bad news - in our case our Twin B, a little girl, has Trisomy 18, Edwards Syndrome, which is incompatible with life. If she doesn't die before she is born she will die soon after. Our Twin A, a little boy, is healthy. The situation is horrendous. We have made the decision to TMFR Twin B next week, but know there are risks to her brother in the procedure.
These decisions are just awful. Xx

curliegirlie · 12/09/2020 09:20

Oh I’m so sorry @disconnecteddrifter it’s a horrific decision to have to come to, but I understand a lot of complicated personal circumstances have to come to play and you need to do what you feel is right for you and your family. Thank you for reading my links and taking in a broad perspective, and do take care xxx

SylvanianFrenemies · 12/09/2020 09:20

So sorry to hear that @JennyMY, that is just devastating Flowers

JennyMY · 12/09/2020 09:22

@SylvanianFrenemies Thank you, we are heartbroken x

JennyMY · 12/09/2020 09:24

@disconnecteddrifter I too recommend ARC. xx

SylvanianFrenemies · 12/09/2020 09:27

I will be thinking of you @jennymy, and hoping things go as smoothly as possible.

Thenneverendingstorohree · 12/09/2020 09:33

I'm so sorry OP.

weasledee · 12/09/2020 10:20

So sorry, I can relate, my little one had Patau Syndrome....
It's such an awful time but you will heal, slowly.

MoreCookiesPlease · 12/09/2020 23:18

So sorry, @JennyMY and @disconnecteddrifter. Sending you both love. We are here for you.

Original poster
disconnecteddrifter · 15/09/2020 19:56

Thank you. Had the first pill yesterday. Went to work today but now feeling sick and terrified for tomorrow

OP posts:
IHateCoronavirus · 15/09/2020 20:42

Have the hospital told you want you expect? Here with a hand hold.

Shmithecat2 · 15/09/2020 20:51

Flowers just take care of yourself OP x

GuyFawkesDay · 15/09/2020 20:54

Sending big hugs. I've been exactly where you are now.

Be kind to yourself. I promise, you will be fine and get through this xx

Simz01 · 15/09/2020 21:03

@disconnecteddrifter @JennyMY I am so sorry you are going through this. Sending you hugs x

Onekidnoclue · 15/09/2020 21:13

Sending love and hugs. You’re so strong OP.

Crispmonster2501 · 15/09/2020 21:32

Than you for messaging on my thread @ disconnecteddrifter
I am thinking of you xxxx

JacktomyDaniel · 15/09/2020 21:42

❤️

Original poster
disconnecteddrifter · 15/09/2020 23:12

Yeah they told me yesterday I could be kn for 5 days. I thought bad luck would be overnight. Just dreading it as I havent had a natural birth before due to failure of induction. Plus a recent miscarriage where I went into cervical shock as my cervix wouldn't open. Sorry I dont feel very prepared

OP posts:
Sussexbysea · 16/09/2020 06:24

@disconnecteddrifter I’m so sorry you are going through this. Fingers crossed you aren’t in hospital too long. Thinking of you xxx

JennyMY · 16/09/2020 07:11

@disconnecteddrifter Thinking of you. We had the procedure to stop our little girl's heart yesterday 😢 - she wouldn't have lived, so we made the difficult choice to say goodbye to her now. We can't deliver her because of the surviving twin. It's a devastating time and I'm sending you so much love and strength. I hope you're not in there any longer than necessary and can be back with your family soon ❤️xxx

Sussexbysea · 16/09/2020 08:28

@JennyMY oh Jenny, my heart brakes for you. Xx

Original poster
disconnecteddrifter · 16/09/2020 10:51

Ah @JennyMY I'm so sorry. I wish the rest of your pregnancy to go smoothly. It's so hard. X

OP posts:
Original poster
disconnecteddrifter · 18/09/2020 15:21

I had the termination. The care was amazing but it was painful because I didnt want to push and have him out. But we got to spend the day with him and take photos. So desperately sad but wanted to thank everyone who commented. I think you kept me sane in the weeks of uncertainty

OP posts:
Sussexbysea · 18/09/2020 15:59

@disconnecteddrifter I’m glad you got to spend time with your boy. Look after yourself xx