Help protect children from gaming harms.

Take our survey

Please or to access all these features

AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Please can anyone help with these results as can’t get through to GP and panicking

96 replies

Soooty · Yesterday 21:37

I had a blood test recently as I generally have low iron. The latest test has come back as follows:

haemoglobin 122
ferritin 18
haemophilia 28.7
b12 570

I don’t understand the haemophilia result in particular and when I have googled it it seems worrying? The Gp has sent a message for me to book in an appointment asap but each time I call I can’t get through. I’ve been feeling really low and emotional recently (last few weeks) and I just feel really stressed about these results. Can anyone help? I will obviously keep trying to speak to GP

OP posts:
User1839423799 · Yesterday 21:39

Haemophilia isn’t a blood test it’s a medical condition.

Tink3rbell30 · Yesterday 21:40

Mine is the exact same, well ferritin is 16. And it's absolutely fine apparently! It absolutely is not.

nocoolnamesleft · Yesterday 21:40

Are you 100% sure it said haemophilia, as that wouldn't seem to fit with that result? Have you got a screen shot?

Lmnop22 · Yesterday 21:41

28.7 what? I’m confused what the haemophilia result tested for in your blood and what that number refers to?

Lmnop22 · Yesterday 21:42

Tink3rbell30 · Yesterday 21:40

Mine is the exact same, well ferritin is 16. And it's absolutely fine apparently! It absolutely is not.

Eurgh, don’t get me started on super low iron and B12 results not being quite low enough to warrant any treatment whilst still being classified as very low….

Soooty · Yesterday 21:43

I was told on the phone it was haemophilia lups corpus I think it was? And then that figure was given. Could it be something different then?

OP posts:
nocoolnamesleft · Yesterday 21:44

WHen I have tested for haemophilia, the result has been in the form of which clotting factor was tested (off the top of my head VII, IX, or XI), and what percentage of activity it has. I've never seen a result come back labelled haemophilia.

campingwidow · Yesterday 21:44

Are you sure it’s not haematocrit?

Soooty · Yesterday 21:45

Tink3rbell30 · Yesterday 21:40

Mine is the exact same, well ferritin is 16. And it's absolutely fine apparently! It absolutely is not.

@Tink3rbell30 yes I have already been told that I can’t have an iron infusion despite having been on iron tablets for 4 years with no change

OP posts:
Stopandlook · Yesterday 21:46

MCH?

Those results all look ok so don’t panic x

Soooty · Yesterday 21:46

campingwidow · Yesterday 21:44

Are you sure it’s not haematocrit?

@campingwidow almost certain she said haemophilia but not 100% sure of the lupus corpus spelling for the words after

OP posts:
nocoolnamesleft · Yesterday 21:47

Soooty · Yesterday 21:43

I was told on the phone it was haemophilia lups corpus I think it was? And then that figure was given. Could it be something different then?

Okay, given you don't know the name of the test, I;m afraid none of us can help interpret it. It would be total guess work.

Stopandlook · Yesterday 21:48

‘An MCH (mean corpuscular hemoglobin) level of 28.7 pg/cell falls within the standard normal adult reference range of approximately 27 to 33 pg/cell. This value means that your red blood cells contain a normal average amount of hemoglobin’

likeitshard · Yesterday 21:49

Understanding Your Values

  • Hemoglobin (122 g/L): This protein in red blood cells carries oxygen. A level of 122 g/L is borderline or mildly low for adults, which can sometimes signal early or mild anemia. 1
  • Ferritin (18 µg/L): This measures your iron storage. A level of 18 µg/L is low (typically under 30 µg/L indicates depleted or insufficient iron stores), meaning your body is running low on saved iron.
  • Vitamin B12 (570 pmol/L or ng/L equivalent): This is within a healthy, normal range, meaning B12 deficiency is not contributing to any drop in your blood counts. 1]
  • "Hemophilia" (28.7): If this is a factor assay percentage (where normal is usually 50%–150%), a level of 28.7% reflects reduced clotting factor activity. This requires direct interpretation from a hematologist or your doctor in the context of your bleeding history or diagnosis. 1, 2]
likeitshard · Yesterday 21:49

18 is definitely low iron you need iron tablets

Soooty · Yesterday 21:51

Stopandlook · Yesterday 21:48

‘An MCH (mean corpuscular hemoglobin) level of 28.7 pg/cell falls within the standard normal adult reference range of approximately 27 to 33 pg/cell. This value means that your red blood cells contain a normal average amount of hemoglobin’

@Stopandlook i definitely recall that word corpuscular. But she also definitely said haemophilia? How could that fit in? I’m so fed up just wish the GP was actually accessible

OP posts:
Soooty · Yesterday 21:51

likeitshard · Yesterday 21:49

18 is definitely low iron you need iron tablets

Edited

@likeitshard been on them for 4 years with no change

OP posts:
itsgettingweird · Yesterday 21:51

It was probably mean corpus heamaglobin - and 28 is fine.

Ferritin is low at 16 though. Even though they say range over 11 is fine.

It’ll need to be higher to feel ok.

Soooty · Yesterday 21:52

likeitshard · Yesterday 21:49

Understanding Your Values

  • Hemoglobin (122 g/L): This protein in red blood cells carries oxygen. A level of 122 g/L is borderline or mildly low for adults, which can sometimes signal early or mild anemia. 1
  • Ferritin (18 µg/L): This measures your iron storage. A level of 18 µg/L is low (typically under 30 µg/L indicates depleted or insufficient iron stores), meaning your body is running low on saved iron.
  • Vitamin B12 (570 pmol/L or ng/L equivalent): This is within a healthy, normal range, meaning B12 deficiency is not contributing to any drop in your blood counts. 1]
  • "Hemophilia" (28.7): If this is a factor assay percentage (where normal is usually 50%–150%), a level of 28.7% reflects reduced clotting factor activity. This requires direct interpretation from a hematologist or your doctor in the context of your bleeding history or diagnosis. 1, 2]

@likeitshard what does that mean though? I didn’t even know they were testing for that

OP posts:
Soooty · Yesterday 21:52

itsgettingweird · Yesterday 21:51

It was probably mean corpus heamaglobin - and 28 is fine.

Ferritin is low at 16 though. Even though they say range over 11 is fine.

It’ll need to be higher to feel ok.

@itsgettingweird iron infusion been refused and I’ve been on iron tablets and eating all the right foods for 4 years

OP posts:
Soooty · Yesterday 21:53

nocoolnamesleft · Yesterday 21:47

Okay, given you don't know the name of the test, I;m afraid none of us can help interpret it. It would be total guess work.

@nocoolnamesleft well yes that’s the situation I’m in as I can’t get through to the practice

OP posts:
Lmnop22 · Yesterday 21:54

Soooty · Yesterday 21:52

@likeitshard what does that mean though? I didn’t even know they were testing for that

I doubt they’ve randomly tested you for haemophilia without ever discussing anything about that with you. More likely that others are correct and it was a corpuscular haemoglobin test (standard part of typical bloodwork) and either you misheard or the receptionist misspoke.

If you had haemophilia you’d have had it your whole life and would know by now

likeitshard · Yesterday 21:54

Soooty · Yesterday 21:51

@likeitshard been on them for 4 years with no change

What dosage are you on ? I take 240mg a day which seems to keep me in normal range . Do you have heavy periods?

Stopandlook · Yesterday 21:54

They wouldn’t test anything to do with haemophilia unless there was a clinical indication. So it must have been MCH.

So nothing sinister - you can stop panicking but hopefully make a plan with GP to boost ferritin. Can you email /E consult?

Ineffable23 · Yesterday 21:54

itsgettingweird · Yesterday 21:51

It was probably mean corpus heamaglobin - and 28 is fine.

Ferritin is low at 16 though. Even though they say range over 11 is fine.

It’ll need to be higher to feel ok.

NICE has actually changed their guidelines on this, though lots of surgeries haven't updated theirs.

https://cks.nice.org.uk/topics/anaemia-iron-deficiency/

I mean I still felt rough at 31 but it's better than the 11 threshold they were using.

Swipe left for the next trending thread