Please can anyone help with these results as can’t get through to GP and panicking

[Soooty]

I had a blood test recently as I generally have low iron. The latest test has come back as follows:

haemoglobin 122
ferritin 18
haemophilia 28.7
b12 570

I don’t understand the haemophilia result in particular and when I have googled it it seems worrying? The Gp has sent a message for me to book in an appointment asap but each time I call I can’t get through. I’ve been feeling really low and emotional recently (last few weeks) and I just feel really stressed about these results. Can anyone help? I will obviously keep trying to speak to GP

Mine went to 4 in my 30's, doc phoned me while at work, commenting he didn't know how I managed to work - and still no infusions. I guess too expensive for a common condition?

My GP just offered me an iron infusion with ferritin of 23. I said no, as I feel fine

Wow, I honestly give you all my sympathy and it sounded horrible. Hope nothing sinister was the cause and all done now had a hysterectomy. Go easy with your recovery, it's quite a large operation..

Sorry about your acid, and yeah, tbh famotidine is better than an ulcer or anything horrible, more dangerous. Glad no issues :-)

Apologies, just seen your post.
The iron is dripped in slowly into a vein and they just had to slow down the rate it was being put into me, which was fine. They warn you about it, some people react differently - made me a little dizzy. Yes, felt in safe hands, the doctor consultancy part before going ahead was very thorough and kind. It's all done in the same day. The people who do the drip (fully qualified nurses) were a little bored it seemed, lol and was more perfunctory. The whole thing is over within a few hours, start to finish.

And yeah, it was walking to the place, and back, just legs like lead due to low iron. It does take a week or two to feel the benefits but it does come. Just realise walking to the shop or whatever it's not so hard anymore.

They definitely did not say haemophilia. Haemoglobin

A good thing to do is use the NHS app- there is an online version. Once you have an account and link to your GP it will show your test results ( and medical record from when you start using the app) and give you an explanation of the result and if they are in the normal range. It might not help with this right now but good to get it set up for the future.

It’s not haemophilia.
that’s a hereditary blood condition where the blood doesn’t clot.
they probably said haemoglobin.

Also to note if your iron stays low when you are taking iron it might be worth getting your thyroid tested for hypothyroidism,

Do you have the NHS app? You can find your test results on there if you've signed the forms they require you to sign.

Your ferritin is low. You need iron supplements. You can get an IV privately for around £140 if that’s something you can afford.

Sigh. And this is exactly why people shouldn't have access to their results. The levels of naval gazing and health anxiety is ridiculous. It was definitely not haemophilia, that isn't part of a FBC. youve been told numerous times what it probably is but are fixed on a nonsensical made up word which makes zero sense.
They probably want to speak to you about your borderline iron especially if you are anxious and wanting to attribute symptoms to it. Just take some iron supplements.

Sorry so this is the threshold for iron deficiency with or without anemia.

I think you need to talk to the GP because if you're supplementing iron and still have levels like that they might need to refer you, but also because I'm not sure how (if at all) your blood test results might be skewed by the supplementation. If your Hb level hasn't improved by over 20 points in spite of supplementation that would be indicative of needing review and consideration of other treatment options:

https://cks.nice.org.uk/topics/anaemia-iron-deficiency/management/management/

If you scroll right down here you'll find the "non responsive" section.

But they basically don't have a full scheme for iron deficiency without anemia (which is where you are now) but if you were originally iron deficient with anemia and haven't had a 20 point improvement, then you might be able to argue they didn't follow the nice guidelines and you'd now like them to.

Have you got the NHS App.

I recently had a full suite of blood tests & the dr rang the next day with the results & told me what they were issuing prescriptions for. Just had a look on mine and there are so many things being tested I can’t see anything that the last one on your list might be.

if they are telling you to make an appointment then there must be nothing too worrying. I say this even though, again had full blood tests earlier in the year then had to wait 8 weeks for a routine appointment to get the results/diagnosis. Kind receptionist told me over the phone what was being diagnosed when she called to book it in.

use the surgery online app/webpage to try and book and appointment

My 16 year old dd's ferritin was 6 and haemaglobin 97 about 7 weeks ago. She's been on iron supplements since then but, after getting the nhs app for her, I've seen that in a blood test in 2020 her ferritin was 19 and marked borderline so why, oh why, did they not flag it then and start her on iron tablets. She's had 6 years of declining stores and I'm so cross on her behalf! Repeat bloods in 2 weeks so we'll see if the supplements have done anything.
She's currently having periods every 2 weeks as well which no doubt isn't helping the situation.
Wondering if it's worth trying to push for an infusion as she's plays a shit ton of sport and I can't imagine it's doing her body much good to be running on such empty iron stores 😕

Not a chance in hell this would get accepted as a referral where I am . NICE isn't the law. GPs have to follow local guidelines.

Your haemoglobin levels are on the low end on normal. You already know you also have low ferritin.

The haemophila result means you have a mild clotting issue, you are likely to bleed for longer after surgery for example. You are probably more prone to bruising too.

28.7%

Thats nonsense. Thats not a test/result for haemophilia. Why on earth do people with no medical training think its ok to spout complete google nonsense. Just don't.
She doesn't have haemophilia. Thats not how its tested/reported.

But that wouldn't make sense. It wouldn't be haemophilia percentage, it would be factor (VII, IX, or XI)activity percentage.

A side issue but - Assuming the op is female a ‘haemophilia’ test is likely redundant as female haemophiliacs are very rare. Leaving aside out of the blue mutations, the gene is carried on the X chromosome. So unless your mother was a carrier and your father has the disease a woman won’t have it. Equally all daughters of haemophiliacs will be carriers.

Do you not have the NHS app? It shows you your test results there if you have.

ITS NOT A HAEMOPHILIA TEST.
She misheard.
This is why most surgeries do not give specific results on the phone.

Please ignore this poster OP.

If you are anaemic, is there any chance you have any autoimmune issues like thyroid or coeliac? I know a fair few coeliac and they all really really struggle with anaemia. A couple with Hashimotos as well even more so.

A thousand times this.