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Telly addicts

The Boy Whose Skin Fell Off

5 replies

SecondhandRose · 04/10/2004 21:20

Just caught the last 20 minutes of this. What a living hell Jonny went through for 37 years. I feel quite humbled.

He obviously knew his time had come to die. My Dad died last year he knew his time was up a few days before too. Does anyone know how people know they are going to die or do you just give up on life?

OP posts:

Anonymousmarmiteflavouredsnack · 04/10/2004 21:21

mm .. I also caught the end of it

brings a hell of a lot of perspective into your life, doesn't it

amazing bloke


NomDePlume · 04/10/2004 21:24

I saw this the first time it was aired. Really, really, incredibly moving. He was amazingly upbeat, confident and positive. A true inspiration. Both DH and I were in floods of tears watching it. Jonny's family and friends should feel very proud and privileged to have met him.


Thomcat · 04/10/2004 21:29

Oh bugger, I missed it again


JanH · 04/10/2004 21:29

There is a little boy (about 8) fairly locally who has this condition - his local paper has launched an appeal for funds to take him somewhere special. There are family photos in the paper and he just looks pissed off and sad in all of them. Maybe when he's older he'll be more like Jonny.


chonky · 04/10/2004 21:31

DH and I cried buckets too. Not only was Jonny an amazing inspiration, but what a wonderful mum & brother he has.

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