dd with hydrocephalus shunt and epilepsy (+ others) not drunk/eaten for over 36 hours, screaming with 'headache'...advice??

[PheasantPlucker]

Am typing this waiting for the local hosp neuro ward (where we have open access) to get back to me. DD1 has not drunk anything since Mon evening - except 10 mls of Calpol I almost forced her to drink last night. I am starting to panic now. Dh has gone to work, and I have dd2 here too. Am worried that it is shunt malfunction - but could just be a virus??? No temp tho. I wish neuro ward would call back, I am reluctant to call again as I know they are busy caring for sick children. And we are supposed to talk to them first before just rocking up there.

DD1 keeps SCREAMING as she momentarily wakes up, then back to sleep again.

GP Totally crap. Will just either 1) say no appts 2) send to hosp anyway.

Sorry, I am rambling. Any thoughts anyone????

At least we had fab people doing the op, and it makes me realise how important it is to have the open access to the Neuro ward. We have taken her in about 4 times before with similar symptoms, but it was never the shunt until now. But they always asid they would rather see her, observe her, realise it was not the shunt this time and sens us home rather than miss the time there was a problem with it. And it certainly worked this time, and I am very grateful to them. Am off to hospital now, I had a very deep sleep last night!

gosh how awful, thank goodness you took her in. Thinking of you and dd.

thinking of you. hope she is much better today.

Hope your dd is feeling better & will be home soon. x

Still in hospital. Had a big seaizure this morning, and not so well again. Dh staying now, I have come home for a bit.

Seizure - sorry, lack of sleep!!!

i always just use sz lol, much easier to spell.
you all sound like you are having a rough time - is it just post-op stuff do they think, or has she picked up an infection?
poor wee lamb. hope she's feeling much better tomorrow and banishes the sz monster. what a horrid time. sending strength xx

Hope tommorow is a better day. Take care all of you.

sorry DD has been so unwell. hope things improve tomorrow.

Sorry, you are probably sick of this thread, but I just wanted to say dd1 was allowed home this evening. Going back to the ward on Wednesday to have the stitches in her head removed. A lot better all in all.

Thanks for the advice on Weds, and the good wishes. Very much appreciated.

Oh I'm so pleased she's home. Have been thinking of you xxx

glad she's been allowed home.

Not sick of this thread at all - glad to hear she is home. I was feeling a bit miserable but that's just cheered me up.

so pleased, hope you manage to have a relaxing week after the last few days xx

Thanks all, she is on much better form today, just eaten marmite on toast. I am so glad she is home, what a hideous few days! Stitches out Weds, which will be 'interesting' as she won't like that at all....... x