I am sorry, I know I haven't posted as much on here lately but I knew some of you would like to know
My daughter Ellie (nearly 5)hasn't been well
she is in Hospital and has been on a ventilator which she came off at around 4am yesterday morning
she was so ill. It is so out of the blue. she was fine Sunday morning, by the afternoon she seemed a little off colour
Then DH went out, she was sick then her eyes went funny. I knew she was having a seizure and was hysterical
rang an ambulance
Grace (her twin) was fantastic, she ran and got me some wipes, got me some shoes so I was ready to go and opened the front door ready. what a star, Im so proud of her
thought we were going to lose her in the ambulance and when we got to hospital they took ages to stabalise her.
she had to be ventilated and 3 medics came from Alder hey to get her to take her back there to ICU
That was horrible, we had to drive in our own car and they overtook us with the lights flashing
Had improved yesterday though. there wasn't a bed for her in Alder Hey when she was ready to leave ICU so we had to come back over to our local hospital
I had 1 hr sleep sunday night so DH has stayed with her (on a ward, own room) Grace is at my Mum and Dads
Just a nightmare. Can't belive we could have lost her again
Still don't know what caused it. They have 99% ruled out her shunt now, she has canula's in her and screamed having them, it is very hard to find a vein as she has been a human pin cushion She is on antibiotica in case she has an infection (Meningitis, ear, chest etc etc)
they are still waiting those results, they take 72 hours
But she is a lot better
Just doesn't stop does it!!!!!
Also as most of you will understnad. We can't leave her at all. Not that we would want to for long! But even to go to the toilet we have had to explain to the Nurse on duty and ask if they can sit with her in case she takes off! So at the mo DH and myself are swapping duties!
Luckily he has a week off as he was going to decorate!
sorry about the long post, I knew some of you wouldwant to know
Thanks