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Original poster

Cerebral Plasy and Incontinence

91 replies

MABS · 04/01/2006 18:48

As some of you know, ds aged 5 has mild left hemi and wears an afo. He's been dry in the day for a year now, tho wears nappies at night. In the past 6 wks he is getting 'poo leakage'in the day. He is getting VERY upset and says it 'just comes out and i can't feel it' Any advice anyone? Our paed is pretty useless, anyone know a good one we can see privately anywhere? I'm gutted about it to be honest.Thanks girls xx

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FioFio · 16/03/2006 19:29

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Original poster
MABS · 16/03/2006 19:37

thanks all for your kind words.

I don't know the answers to your questions Noddy,just didn't ask. To be honest am at my best friend's wedding on Saturday and am just ignoring everything til next wk. Will text you then, good luck with hospital. xxx

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noddyholder · 16/03/2006 19:42

Just live in the day if you can til next week xx

Original poster
MABS · 16/03/2006 19:51

thanks Nods x

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Original poster
MABS · 17/03/2006 07:28

sadly, my denial strategy didn't work last nt, no sleep at all!

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ntt · 17/03/2006 07:36

can you get some sleep today?

Original poster
MABS · 17/03/2006 11:31

not today, am working :(

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monica2 · 17/03/2006 22:12

Oh god Mabs so sorry you are in such a crappy in limbo time, try and enjoy tomorrow and we'll catch up next week, call me anytime xx

twokids · 17/03/2006 22:19

sorry to hear you are having such a rotten time

desperatehousewife · 19/03/2006 10:27

oh mabs, i'm sorry you don't know what's going on and that you have no answers yet. I've been thinking about you the last few days and felt that something might be up...

Take care of yourself - I'm here anytime if you want a coffee and to talk about inane pointless things like Madonnas muscle definition if you just want to take your mind off things!

Thinking of you, keep being strong
xxxxx

sparklymieow · 19/03/2006 10:36

My Ds has the same problem MABS, we are going for a x-ray of his bowels soon. He also has CP. We were told that it could be related to the CP, and he might have lessen sensantion (sp?) in his bowel area due to the CP>.

ntt · 19/03/2006 11:04

Hope you enjoyed the wedding yesterday and have had some sleep

Original poster
MABS · 19/03/2006 18:22

jsy flew back from wedding in Scotland and it was fab. Had great time and actually relaxed a bit! We'll see what this week brings...

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ntt · 19/03/2006 20:20

Lovely! Smile

monica2 · 19/03/2006 21:49

Mabs honey glad you had a bit of a switch off at wedding, will call you tomorrow x

Original poster
MABS · 20/03/2006 17:14

just heard it's NOT a spinal tumour or Spina Bifida!! yyyyeeeaaaahhh!! dunno why it's happening tho, but am much happier now.xxx

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noddyholder · 20/03/2006 17:23

That is fab news !I am so happy for you xxx

Original poster
MABS · 20/03/2006 17:51

I am soooooo relieved Noddy.

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sparklymieow · 20/03/2006 18:14

:):) Sounds like your DS and my DS have the same problem, hope that my son's xray goes ok now :)

Original poster
MABS · 20/03/2006 18:24

when is the xray Sparkly? We have been referred to a surgeon next Friday, but coward that i am, i couldn't face asking why!

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sparklymieow · 20/03/2006 18:26

haven't had an appointment yet, we discussed with the consulant and then recieved a letter a few weeks back saying that they are going to do a x-ray sooner rather than later.
Do you have any idea what the surgeon wants?

Original poster
MABS · 20/03/2006 18:31

not a bloody clue !! ridiculous eh, but I couldn't bring myself to ask. I just feel this has to be connected with the cp, but they say its very rare for him to be dry for nearly 2 yrs, then have bowel problems. What have they said to you? x

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sparklymieow · 20/03/2006 18:34

Ds is 8 now, he has never been completely clean re: his bowels, but its getting embarrassing for him now, and we just thought he was being lazy. [bad mummy] They said it might be connected to the CP, and he has lessen sentation in his bowels.

desperatehousewife · 20/03/2006 18:47

Mabs, I'm so SO pleased for you and for Eliot. Fingers crossed with the surgeon.

Good luck sparkly too.
xx

Original poster
MABS · 20/03/2006 18:49

I too thought ds was being lazy and told him off repeatedly, he was 5 in October. Now I know it's beyond his control. Have they done an mri for your ds?

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