The Mumsnet/EDCM nappies campaign: how's your primary care trust doing?

[RowanMumsnet]

As you might recall from this thread, back in August pressure from MNers and EDCM supporters resulted in David Cameron instructing the NHS Chief Executive to re-issue advice to primary care trusts, explaining that the provision of nappies for children with SN is supposed to be based on individual needs rather than arbitrary ceilings.

Now that a few months have gone by, we need your help to find out whether this advice has had any effect. Click here to send an email to your local PCT asking what action they have taken to put the guidelines into effect. Of course, you don't have to be the parent or carer of a child with SN to do this.

Please post here to let us know what you've done, and of course if you get any responses.

I didn't get a reply to my email

I was told by Bucks PCT that the 3 limit will remain

We had to go to health and parliamentry ombudsman to get the nappies we required.The one's we got when the contract changed were terrible.The pct was deemed negligent in my dd case.