Partial Molar Pregnancy and aftercare

[stillhangingon]

I'm not sure if I've posted this in the right place or not. In August 2018 I had a D&C due to incomplete MC and was told that I had a potential partial molar pregnancy. I was sent home after the surgery and that was that.
I'm worried as I've been told that with molar pregnancies you should have aftercare to make sure that HCG returns to normal levels and the womb doesn't have any abnormal cells left behind as they could potentially become cancerous.
This is more of a concern now as I've been missing periods and other symptoms and worried that it may be linked. Am I being silly to worry or should I bring it up with my GP? Many thanks in advance x

[Collins99]

@Hopewills24 yeah I've been really impressed even this early on, I got my first result today which was 1.27 ... so not normal but not high. Will know more next week to see if they go up or down. 6 months seems like such a long time doesn't it... what are your results like now ???

[SpiceGirl93]

Hi guys
I don’t know if anyone will still see this post but I finally got my results back today confirming my partial molar pregnancy
How are you all getting on?

[ploopypleepy]

@SpiceGirl93 hey! Hope your okay, sorry to hear about your diagnosis. Have you received any information from your specialist hospital yet?? Im just waiting for my final blood test to come back clear and then my follow up is over!! How are you getting on have you had surgery ? X

[SpiceGirl93]

Hi @ploopypleepy thanks so much for replying and tagging me in the other active thread :)
Yup I got it back yesterday and my surgery was 8 weeks ago lol! Been the worst wait ever! However my EPU have been amazing and have been monitoring me as my levels before surgery were so high 142,000 but the procedure was successful and my last blood came back at 17 but I’ve only literally stopped getting positive tests which is crazy!
Had a period last week which made me
Feel a bit better. I’m just dying to be preg again as it was our first and we was so excited! I’m just so scared it will happen again x

[ploopypleepy]

@SpiceGirl93 no worries! I actually joined Mumsnet when I found out about the molar pregnancy just so I had someone else who had experienced it to talk too. Wow that's really good that your results have come down so fast ... I needed two surgeries and even they didn't work, I ended up passing the tissue myself at home which was great. I'm all clear now though. I've actually just started trying again now... it was my first too, awful isn't it 😧😧 how old are you if you don't mind me asking ,if the 93 is your birth year we are the same age! X

[SpiceGirl93]

Yes me too! It’s horrible having no one else who has experienced it isn’t it. Oh no! Why did the surgery’s not work!? Do you know? How many weeks did it take for your levels to drop completely? So exciting that you can start trying again! Yes I’m 27! Are you? Was yours a partial? And do you know if there is anything you can do to prevent it happening again!? I’m honestly so paranoid now! Xx

[ploopypleepy]

@SpiceGirl93 they think it didn't work because the molar tissue was particularly adhesive ... whatever that means, I think they were worried about causing damage to the uterus too. Ermmm it took about 2 months in total, but once I'd passed the tissue it was literally weeks. Hopefully your next test will be negative! Yeah mine was a partial too... I don't think there's anything you can do to be honest I think it's just a total freak accident. I'm already anxious for my first scan even though I'm not even pregnant yet 😣😣 yeah I'm 27... at least we have youth on our side! Are you on the pill now ? Xx

[SpiceGirl93]

Well I’m glad your levels quickly dropped once it had all passed! So once your levels were normal did you wait for another month until you started trying again?
That’s exactly how I feel! How did you find out? Did you go to a scan kind of thinking everything was ok and then found out? Or did you start bleeding? I am actually so scarred by my scan lol I know that sounds stupid but it was such a horrible experience the thought of it happening again is terrifying!
Nope, just being super careful. Was you told to go back on the pill? Xx

[ploopypleepy]

Yeah once I was at normal, I just had to have a clear blood test 4 weeks from then. After that came back they discharged me so free to start trying. I had a scan at 7 weeks due to bleeding and saw a fetal pole and heart beat so presumed everything was okay. Then at my 13 week scan got told there was no heartbeat, only found out it was partially molar when I got histology back! How about you how did you find out ?? Omg no I am exactly the same ... I think back to the 'I'm really sorry' moment and it fills me with anxiety. In my opinion you make as well just stay off hormonal contraceptives because you don't want it to effect your fertility when you start trying again in hopefully a months time. I did but came off after a month of being on it .... wish I hadn't gone on it to be fair. Xx

[SpiceGirl93]

Oh that’s good!
Yeah similar to me but I never saw the heartbeat... I went to an early scan around 9 weeks and saw the baby but no heart beat, eventually was told nearer toward my 12 week scan that it was a suspected partial Molar. They wouldn’t perform the miscarriage procedure before that time as the scans were showing that something was growing but they couldn’t work out how the baby was without a heartbeat but turned out to be the molar tissues I think!
why do they say to wait 4 weeks before trying again? Do you know?
Keep me updated with how you get on! Xxx

[ploopypleepy]

@SpiceGirl93 how awful 😞 that it's dragged out without you having an answer as well. It seems like not many doctors/midwives have come across many molars too so that doesn't help! I think it's just so they can say that there is no more molar tissue. They used to say wait 6 months but there's no way I'd do that. Do you think you will start trying again next cycle then? I'll deffo keep you updated be nice to have someone in the same position! Xx