Partial Molar Pregnancy and aftercare

[stillhangingon]

I'm not sure if I've posted this in the right place or not. In August 2018 I had a D&C due to incomplete MC and was told that I had a potential partial molar pregnancy. I was sent home after the surgery and that was that.
I'm worried as I've been told that with molar pregnancies you should have aftercare to make sure that HCG returns to normal levels and the womb doesn't have any abnormal cells left behind as they could potentially become cancerous.
This is more of a concern now as I've been missing periods and other symptoms and worried that it may be linked. Am I being silly to worry or should I bring it up with my GP? Many thanks in advance x

@Defyingstars that's brilliant news!! I hope mine have come down. Will you try again soon or wait?
I finally had my bloods today so I should hear Thursday.... I really want them to be normal but I am telling myself not to get my Hope's up! We are keen to try again as soon as we are given the all clear. All most 100% I ovulated last month as I had such bad ovulation pain (first time ever) and then my AF arrived right on time.

We will try again as soon as we get the all clear - hopefully next month 🤞.

Periods and ovulation sound very promising!! Good luck with results, will be thinking of you!

@Defyingstars called today... urine is now normal 🥳🥳🥳🥳 bloods are being re run for some reason so I need to call again tomorrow to find out. Praying they are normal!!!! However trying not to get to excited....
I really want to be trying again soon!!

Woohoo! Do you need to wait 4 weeks or can you start again straight away?

@Defyingstars we have to wait 4 weeks for one more follow up then I can be discharged! We will start trying again straight away. Very happy

Hello I don't know if anyone is still on this thread but will post incase and hope you don't mind me jumping in.

I'm 2.5 weeks post erpc and my nausea has come back the last few days and just feeling a bit worried. I've yet to send any samples off so no levels to compare yet. Did anyone else have sickness come and go after the surgery?

@Leaf87 so great to hear a positive story hope all is still going well for you!

@Hopewills24 sorry to hear your feeling sick again maybe contact your local EPU and see if they can take bloods?

I personally didn't get any sickness back but I didn't have the worst sickness during my partial mole either.

I am ok thank, I was discharged in July fell pregnant that month but unfortunately had a miscarrage at 6 weeks..... i think I am chalking 2020 up a bad year!

@Leaf87 oh I'm so sorry to hear that it just seems so unfair after all you've been through. Definitely 2020 is not the one! Hope you are coping OK.

I called Sheffield and she said symptoms can come and go. My levels were 210,000 before erpc so I guess even if they have gone down it's still enough for symptoms. That's what I keep telling myself anyway!

Are you doing anything nice or treating your self to anything after all this. Desperate for a holiday now!

I didn’t get sickness either but also didn’t have a sicky pregnancy. Do you know when your first test will be? Fingers are crossed that your levels are normal.

@Leaf87 I’m so sorry to hear that. So unfair xx

@Defyingstars they said they will send the urine pots ASAP as I'm having symptoms so hopefully this week. I was very very nauseous by the time it got to the erpc but like I say levels were pretty high. I did a test this morning which was a strong positive. Not sure what I was expecting really just want to have some kind of control! Do you know what yours were at to start with? Are you all clear now? 🤞

@Defyingstars @Hopewills24
I am getting a puppy and having some time away from TTC! How are you getting on @Defyingstars?

@Hopewills24 it took it took 5 months for my hormoes to become normal as mine were supper high, can't remember what they were now. Its rubbish have a postive test and knowing its wrong!!

@Leaf87 a puppy!! This sounds glorious. Such a great idea 😍

I am pregnant again, I conceived in July after I got my all clear from Charring Cross. After 3 miscarriages in the past year, I am very anxious but trying to take each day as it comes. I am currently 9 weeks, previous losses have been around the 11/12 week mark so still some way to go.

@Hopewills24 my last ERPC was April and I was contacted in June to tell me about the partial mole (sigh!). Luckily my levels had returned to normal but had to wait 4 weeks for the all clear.

As hard as it was at the time, I think I am thankful for that 4 weeks when i wasn’t allowed to try again as it gave me a bit of time to breathe (and drink wine!!). Really hoping your levels have come down 🤞🤞🤞

@Leaf87 a puppy sounds like a brilliant idea! What type? I'm a dog groomer so love all things dog 😊

@Defyingstars congratulations! I will keep everything crossed for you. Will they do an early scan for you?

I just started with some red bleeding which I haven't had throughout the whole thing. My period would be tomorrow but can't possibly be with such a strong positive 🥴 I feel like this is going to turn out to need more treatment but we will see. Hate the waiting and guessing.

@Hopewills24 I have had 2 scans already and have one more before I have my dating scan (which is at nearly 14 weeks rather than 12). All scans have been NHS - after a molar pregnancy you have to have a scan at 8-10 weeks pregnant, the others are because I have a sympathetic GP who referred me on the grounds of anxiety and due to my miscarriage history.

I didn’t get a negative test until 3 weeks after ERPC and didn’t stop bleeding until 2.5 weeks after. It’s so frustrating it takes so long doesn’t it. The amount of money I have wasted on pregnancy tests!!

@Defyingstars that's amazing! We must have got pregnant almost the same time, i would have been 9 weeks now. My EPU refused to scan me when I phoned concerned due to covid!! So glad you having wonderful care. We are moving so i won't try again till the new year i don't think.

@Hopewills24 we are looking at a burnadoodle on Saturday 😍😍 so excited!! My periods took about 10 weeks to return but then even with higher than normal hormone levels they returned to 27 day cycles so you never know. I will keep everything crossed and hope for the best for you

@Leaf87 that’s awful - go via your GP next time and see if they can refer you. Wishing you all the luck for the new year. I have found the past year the hardest of my life so totally understand the desire to take a break. It can be all consuming xxx

Hi everyone I'm so glad I came across this post even though it's a bit old. I have been diagnosed with a partial mole. I have sent my first urine test off and should get my results tomorrow. It's been 2 months since my ERPC and my blood levels were in the 500's three weeks ago.... praying they have gone down. How are you all doing now. @Hopewills24 are your levels back to normal now ?

@Collins99 Noticed you posted here, sorry to hear this i hope tomorrow your results come back with a low results. I had a complete molar and with gods grace my levels cleared up and im ok. I can assure you that eitherways your in very very good safe hands and in very worse cases the outcomes very very positive because of the treatment available. Yours is a partial so greater chance of it lowering quickly without issues.

@Nerdy123 thank you so much I have everything crossed! Im 27 so have age on my side even if worst comes to worst I have to have treatment and wait another year to try again. Trying to look positively for a change 😂 really glad your levels cleared up quickly!! Hope your doing okay x

@Collins99 well done thats the way to look at it. Thankyou for that yes im ok i actually stressed out so much over this that when this cleared i had other health issues that im recovering from now that is why in hindsight i realised even if it was bad i had all the care and treatment and shouldnt have stressed that bad. Your attitude is right stay that way and age is on your side!

@collins99 thank you for asking. Unfortunately my levels never really went down from the 200k mark after two erpcs and I'm in the middle of chemo. Mine was complete so more likely to need chemo.

Brilliant you're staying so positive fingers crossed your levels going down nicely! Most people's do.

Happy to answer any questions I am a seasoned pro by now 😊

@Nerdy123 it is a really awful time though... first the loss of the baby and then having to deal with molar side of everything. And yes your right, we're lucky that we have such good molar pregnancy specialists to look after us. I hope everything works out for you.

@Hopewills24 gosh what a nightmare for you. How do you feel off the chemo? Did they start you off on methotrexate? I hope your numbers are coming down. I'm suspecting my levels have either plateaued or are rising slightly as my last two blood tests went up from 530 to 590. However tomorrow will be my first urine test result.

@collins99 I did start on methotrexate but then it stopped working so I've just changed to carboplatin. It's been OK. I've felt better on the chemo that I did before the surgery because I was just so sick. It's just the emotional toll it takes. Which hospital are you with? I've learnt to try not to second guess what your levels are going to do becuase suer you just never know. Although I'm a worrier and not very good at that!

I'm not surprised you felt so bad before with your hcg so high!! Glad that it's it totally wiping you out though. I'm with Weston park Sheffield, which one are you at ? No your right, I would never know so I don't know why I try and guess. It makes me so anxious waiting to hear. How many cycles do you think you have left ?

@Collins99 I'm with weston park too. They are so brilliant you couldn't be in better hands! They predict 6 months of treatment which is sooo long and that's hard to get my head around but just got to remember it's going in the right direction. It's just such a cruel unfair thing to happen to anyone.

Wishing you so much luck with your results! Let me know how you get on