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Miscarriage/pregnancy loss

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Original poster

Partial molar and molar pregnancy support thread - all welcome!

699 replies

MrsJohnDeere · 28/11/2012 11:06

I thought I would start this thread as a place where anyone who is going this or has gone through this in the past could share experiences, vent about life, etc.

After a MMC at 12 weeks and an ERPC a few weeks ago I've just found out the cause was a partial mole. I've been referred to Charing Cross and am waiting to hear back from them to start the monitoring etc.

I know the chances of cancer developing are about 1/100 but I'm still struggling with the 'OMG I'm going to die' feeling at the moment, plus the grief and stress of the miscarriage itself.

I haven't told anyone in RL, other than dh, even friends who know about the miscarriage. I'm worried abut how they'll react and that I'll end up blubbing.

OP posts:
NellyOC · 20/12/2013 07:55

hi ladies
Merry Christmas to you all. Igwilk and Sunshine have everything crossed for you. I hope you can enjoy your Christmas without thinking about all of this.

my HCG levels hit a plateau last week but now they are on the decline again thankfully.

I start cycle 3 today. while I wish it was a different Christmas it is one step closer to this all being over. xx

mistlethrush · 20/12/2013 09:03

Going down is good. I was VERY frustrated when mine decided to stick at 7 because by then it was SO close but not close enough!

I hope you have a peaceful Christmas and next year (later on) will find you fighting fit again.

Twym886192 · 23/12/2013 02:41

Hi to everyone here,

I'm new to mumsnet and new to the whole concept of molar pregnancies. I hope everyone is doing okay to say the least. I was reading bits and pieces of this thread but do not have any real understanding of the numbers and figures relating to the hormone levels.

I'm 33 with two children aged 11&12. I fell pregnant and was told I miscarried at our 12wk scan. Then a hour later after another scan, I was told it was a suspected molar pregnancy. I never knew a miscarriage could be so painful. So I had my first ERCP days later and weeks later, after another scan, they told me they hasn't successfully removed the entirety. This was back in the beginning of November.

I haven't sent CHX any samples (after 2nd surgery) yet as I have been very busy with my PGCE course at uni. However, after reading this thread, I suspect I should ASAP before they close over Xmas. I feel "normal" but I am till waiting for my period. I often feel a slight jolt of pain from surgery but I assume that it is normal.

I am very touched by the stories on this thread and it's amazing how a group of women with only this in common can come together so strongly - offering each other support, advice and experiences. It's very humbling.
I am wondering how Mrs.DEe and of course everyone that has been affected.

I only wanted to share my experiences with everyone here. I wish you all a happy Christmas and new year. Be strong and have faith x

mistlethrush · 23/12/2013 07:46

Twym -I'm now on 6 monthly monitoring. If I don't get the sample in quickly enough I get reminder - you do need to get it back to them, and I'm afraid that any course really needs to make time to sort this out asap (I had to put back my MA by a year).

Twym886192 · 27/12/2013 02:57

Thank you mistlethrush. I understand health comes first and I guess I have been avoiding it. I will go to UCLH to and get my blood done.
Thank for your advice x

mistlethrush · 27/12/2013 08:33

I hope you get the all-clear - but if you do need treatment, the sooner you start it the better.

NellyOC · 27/12/2013 15:30

I second that please get your bloods done. I hope they are all fine. have fingers crossed for you.

Twym886192 · 28/12/2013 16:52

THank you. UCLH blood clinic is back open on Monday. I will go then to get it done x

mistlethrush · 31/12/2013 22:03

Happy New Year to all - I hope it brings good news to all on the thread - and anyone that joins it.

NellyOC · 01/01/2014 01:43

and to you Mistlethrush. Happy new year to you all.

Purplefrogshoe · 02/01/2014 14:16

Happy new year everyone! I just got my 3rd 0hcg result! Hope your doing ok nelly

sunshineandflowers1 · 03/01/2014 18:57

Happy New Year ladies :-)

Great news purple & also glad to hear your levels are declining nelly :-) I received confirmation today that I had a complete mole so just waiting to begin monitoring now... How are you doing igwilk have you heard anything yet? Xx

Purplefrogshoe · 03/01/2014 23:05

I had a complete mole too sunshine when is your first test?

lgwilk · 04/01/2014 08:22

Hi sunshine. Glad you got your result. At least they can get on with testing now. Hope it goes well xx

i got a call from the consultant yesterday. The sample has gone to chx for second opinion but it looks likely it will be partial mole. Went into hospital yesterday aft and had scan and blood tests. Also did preg test which was negative so hcg must be below 20 which is goodnews. Scan showed there's still some stuff left behind, also a large cyst on overy. Think I will hear from him on Monday when the blood results are back. Doc suggested that they won't do anything else till results are back from chx.

Feel so much better knowing. The waiting for results is the worst.

mistlethrush · 04/01/2014 08:37

Glad that there are so many low results.

sunshineandflowers1 · 04/01/2014 14:09

Glad you are feeling better igwilk :-) not sure yet purple they said they need to register me at charring cross and that they will be in touch with me hopefully next week to get things started xx

mrsramskill · 07/01/2014 13:10

I had a pm pregnancy back in 2010.
First pregnancy, found out at 13 weeks during first scan there was no baby, which was bloody awful. Booked in for an ERPC the following week which went fine. Was told that they would be sending a sample away for 'some tests' and if I didn't hear anything in 2 weeks the coast was clear.
3 months, yep 3 MONTHS later, got a phone call to say my test results were back, and they were positive. I had just found out I was pregnant again. Needless to say I was furious with the hospital. Apparently results were borderline so they kept needing more opinions which had caused the delay. Just didn't bother to let us know. We had scans at 5, 7 and 10 weeks to check progress and all was fine. DD born March 2011.
Had to send off sample to CHX after the birth, but no further treatment was needed.
Am 7 weeks pregnant again, and despite the odds being against anything, I am terrified that there will be nothing there on the scan. GP suggested turning up at my local EPAU and asking for an early scan citing previous history. Am too chicken at the moment to even do that.
Sorry to read the struggles some people have had with this condition, but glad that there are so many positive outcomes.
Best of luck to everyone.

mistlethrush · 07/01/2014 14:27

Mrsr - the hospital I had my ERPC at (same circs broadly) didn't bother to tell my home hospital or Dr - and it was only because I kept on going back to the Dr that I got rescanned after 3 months and they confirmed that there was a problem... The fear that it will come back is the thing that overshadowed each pregnancy (DS plus two further mc) so I quite understand where you're coming from - in fact, it was the 3 months of not even being able to grieve about the mc because of the horrendous 'what if' scenario that meant we didn't try again (my levels took ages to drop each time).

NellyOC · 08/01/2014 08:18

I really feel for you mrsramskill. I've not been where you are, but I think I would want to have an early pregnancy scan. I have everything crosses for you as I know what a worrying time this is (2 miscarriages and a complete molar). xx

Thanks for all your thoughts. I'm now halfway through cycle 4 of chemo. Feeling pretty rubbish this time. Really sick, achy etc. But my levels are coming down nicely now 448. Back to Charing X for an appointment on Monday. It feels like the end is in sight. x

NellyOC · 15/01/2014 07:30

Had a hairy moment. My levels started to go up. so when I went to charing x on Monday they were thinking of giving my the stronger chemo. They did a rapid turnaround blood test and thankfully the levels came down a little and I was spared. hurrah. how's everyone doing?

mistlethrush · 15/01/2014 07:31

i had a frustrating session where mine levelled off - at 7 and didn't come down... They certainly didn't come down in a smooth curve.

lgwilk · 15/01/2014 15:18

Glad it's going well nelly.

I got my first testing kit today in the post. Feel a bit scared.

Can anyone advise what their first period was like after dandc please? Sorry tmi. Had light bleeding for 5 weeks or so. Then it stopped for a week and have been bleeding quite heavy for 3 days. It's almost like a normal period though heavier and some small lumps which I assume is the rest of it coming away. Hoping it goes soon and is just first period. Xx

Purplefrogshoe · 15/01/2014 23:56

Good your levels came down nelly how are you feeling? Hi mistle
igwilk my first AF was really heavy and clotty but I felt so much better afterwards, I felt really scared too and I still feel anxious when I phone for my results

NellyOC · 16/01/2014 07:42

hi ladies, going to phone Charing x for advice. I've started bleeding. but my hcg was over 400 on Monday. I didn't think I could get an af until under 50. so I suppose it could have dropped or could it be the mole? start cycle 5 chemotherapy tomorrow.

Purplefrogshoe · 16/01/2014 16:01

How are you doing nelly? My first AF was when my levels dropped to 27 but I had months of bleeding