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Miscarriage/pregnancy loss

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Recurrent MC--Testing and beyond--Part 5 continues here

999 replies

LAF77 · 02/05/2011 09:23

Here is the list of us on the thread and where we are in our journey through RMC. Nearly 4,000 posts in a year, so mark your place for the next thread.

Part one Part one

Part two Part two

Part three Part three

Part four Part four

STARTING TESTING
LOLA78: mc1 Dec 07 (6wks), DD Oct 08 (problem free pregnancy and natural birth), mmc2 Nov 10 6wks ERPC at 10wks, mc3 Feb 11 at 7wks - suspected ectopic but mc naturally, mc4 mar 11 at 5wks (started 75mg aspirin from a week before bfp) - hospitalised for excessive bleeding and clots. Now referred for testing at local fertility clinic, we have started having blood tests and am on 5mg folic acid.
SCOOTERCHASTER: DS Oct 08 (managed for SVT heart from 35wks), mc1 Sept 10 (7wks), mc2 Dec 10 (9 wks - hb @ 8wks), mc3 April 11 (7.5 wks, hb day b4 mc).
HAIRYLIGHTS, age 42, MC1 (Jun 10, very low HCG, suspected ectopic, methotrexate), MC 2 (Nov 22 2010, MMC,ERPC, no heart beat at ten weeks, fetus 8 week size), MC3 (MMC - Medical Management, Feb 13 2011, MMC at 7 week scan). Waiting to TTC
PANDA 3MMC, no.1 (embryonic loss - empty sac) 7weeks, no.2 at 12 weeks, no.3 at 8 weeks. Awaiting raft of tests for recurrent MC
CLAIREDELOON Age 38 1st mmc, development stopped approx 5 weeks (2007), 2nd mmc development stopped at approx 6 weeks (2009), 3rd mc development stopped at 9 weeks after seeing hb at 8+3 (2010). Bicornate uterus, starting testing Feb 2011.
NOTSOBARRENBROOK Age 35. 1st mmc @ 6 weeks (Jan 2009), 2nd mmc @ 6 weeks (Jan 2010), 3rd mmc @ 11 weeks, development stopped at 6 weeks 3 days (March 2010), 4th mmc @ 5 weeks (August 2010). Possible adenomyosis, awaiting hsg and results of testing from St Mary's.
MILKYWAY2007 Age 28 - DD age 3. 1st MC Oct 2009, 6 weeks. 2nd MMC March 2010, 11 weeks (baby passed away at 7 weeks). 3rd MC July 2010, 6 weeks. 4th MMC 24 Jan 2011, 9 weeks - no amniotic sac, baby measured 7weeks 4 days, no HB, had seen a healthy HB at 7 weeks. Blood clotting, hormone, genetic karyotype and shape and health of uterus checked and all clear. High dose folic acid prescribed.
LUCKYFOR2 Age 32 - DD age 5. DD age 3. 1st MC May 2010 found at 12 week scan passed away at 9 weeks. 2nd MC September 2010 natural at 8 weeks. 3nd MC January 2011 at 16 weeks, saw hb at 13 but no hb at 15.5. All tests have come back clear. Going to take Aspirin and Progesterone in next pregnancy (will be on Promise trial) currently ttc.
IGGI999 - Age 40, 3 year old DS. 3 MC last year, at 6, 8 and 8 weeks. Last two had hb detected. NHS blood tests came back clear, except for presence of antinuclear antibodies. To take aspirin for this. Going to see Shehata in May as think steroids are needed.
CONFU3ED - Age 35 1st MC 1998 14 weeks. DD age 11. 2nd MC July 2009 5.5 weeks. ERPC Twice. No tests. 6 months Clomid 3rd MC January 2010. The foetus sent for testing - came back fine. Been referred to recurrent MC clinic at the hospital for tests, waiting for appointment. Was told I have PCOS through a scan but never diagnosed.

UNDERGOING TREATMENT
HAVINGKITTENS Age 41 - MMC1 Nov 07 8wks (discovered due to bleeding at 10.5wks) ERPC, TOP1 for TS21 Aug 08, TOP2 for TS21 Feb 09, TOP incomplete, ERPC performed, Genetic Counselling & tests confirmed no chromosome problems with us, "just bad luck ", MMC2 Feb 10 5.5wks (seen at 8wk scan, no bleeding), MMC3 May 10 (as MMC2), RMC testing at UCH, no cause found - empirical 75mg asprin & vit D + early & regular scans for next pregnancy, MMC4 No fetal pole seen at 6.5 wks, follow up scan 10 days later, told of MMC, then "Something" spotted so instructed to wait another week before they would allow ERPC, ERPC a week later, waiting for NK Cell test results from Mr S on NHS, taking 75mg Asprin, Vit D, Pregnacare Plus (w/Omega 3), 5mg Folic Acid (been taking since 1st TOP to try & prevent TS21 or similar issues), NK Cells levels almost double what they should be. 25mg Prednisone from ovulation - CD1 or if BFP then 'til 12 wks and then weaned off 'til 14wks plus Progesterone pessaries from BFP - 16wks, Folic Acid, Omega3, Vit D - 12wks, Asprin - 20wks.
CRYSTAL5 Age 38 - DS age 4. 6 m/c 1 at 11 weeks, 5 at 5/6 weeks. Ok blood tests, under Endocrinologist for Hypothyroid
LADYBEE 37, MC1 (5wks), DS (2), MC2 blighted ovum discovered @ 8 wk scan, MC3 natural @ 9 wks following hb seen at 7 1/2 wk. PCOS previously diagnosed, Factor V Leiden heterozygote discovered in recent testing. Treatment with aspirin (from BFP) + clexane started at 6 weeks. MC4 MMC @ 8.1 wks (discovered @ 11 wk scan) following hb seen at 6+6 wks. Consultant suggests aspirin + clexane to start at 4 weeks, plus progesterone pessaries. Management of MC tbc.
DIGITALGIRL Age 32 - DS 2.8 - 4MCs since ttc#2. MC1 Nov2009 @5wks. MC2 Apr2010 @6-7wks. MC3 Oct2010 @7-8wks. MC4 Mar2011 @8wks. All natural, except MC4 managed with ERPC for karyotyping. Clotting tests normal. DH & I genetically normal. On Metformin for mild PCOS, plus 75mg aspirin, Pregnacare Plus & 25mcg VitD3. Diagnosed with high NK Cells (1.25) after MC4. Starting TTC in May with prednisolone from ovulation and will add cyclogest once pg. Under care of Mr S.
PUREEQUEEN Age 34, MC1 (7 weeks Jan 08) MC2 (6 weeks March 08), DS born (prem) 2009, MC3 (9 weeks Oct 10). MC4 Jan 2011. First 2 natural mcs latter 2 mmc/ERPCs. Chromosome test MC4 showed she had a genetic abnormality (cri du chat). Karotyping for me and DH fine but with "increase in length on satellite of short arm 13 and 15" (??) . Also have endo &septate uterus. Now TTC and will take aspirin and progesterone.
LAF77 , Age 33, MC1 (7 weeks Apr 10) MC2 (5 weeks Sept 10) MC3 (9 weeks Dec 10). All have been natural mcs and number 1 and 3 were embryonic . No children, First appointment with St. Mary's in April, second round of bloods in May, with results in June.

PREGNANT
MATTSMAMA Aged 41. 1st MMC November 2004. My DS (who I love with all my heart) born 2006. 2nd MMC July 2010. 2 chemical pregnancies September and October 2010. Under Dr Shehata and got BFP on first round of treatment for high thyroid antibodies and high killer cells.
BANANA87 Age 30- 1mmc@7 weeks, DD (2), 1 mmc 6 weeks, 1 mc 7 weeks, Going to try aspirin and progesterone as per consultant. Clotting bloods normal.
MUMMYABROAD Age 36, 1DS (2.9), 1MMC Mar 2010 (@14weeks) Ashermans diagnosis and treatment Nov 2010, Started TTC Jan 2011 BFP on Cycle 2 EDD 4/11/11. Heartbeat seen at 10 weeks.
GLITTERYBITS 1 anembryonic MC (12 weeks), unexplained infertility, 1 round of clomid, currently pg and terrified!
JUSTMEE Age 21, MC1 (7 weeks), MC2 (6weeks), MC3 (5weeks) currently pregnant with 4th pregnancy using clexane injecting 20mg a day
LOVELYBUNCHOFCOCONUTS Age 23, 1 MC (13 weeks), 1 MMC (10 weeks - growth stopped at 7), 1DD born 2008, PCOS diagnosis, bi-cornuate uterus. EDD 03/10/11
LOVEMYSLEEP Age 39, 1 mmc, dd born(now 5), 2nd mc (9wks, 2days), 3rd mc (9wks, 3days) and 4th mc at 5 wks. All tests on NHS came back clear. Currently undergoing treatment with Dr.Shehata for very high natural killer cells - aspirin, progesterone, steroids, omezaprole and one intralipid infusion completed.

GRADUATES WITH BABIES!!
LUNATIC dd1(4) 2 mmc (8 wks) dd2 stillborn (32+5). Seen at St Mary's. clotting problem, pg #5 aspirin 150g daily. Ds1 born 9/2/11 c/s @ 35 wks
STILLFRAZZLED Age 35, DS1 (3.6yo), 1 mc @ 5 weeks Jan 09, 2nd mc @ 9 weeks March 09, DS2 born @ 35+3 on 04/01/11 with Intra Uterine Growth Restriction but currently home and doing well.
MUMATRON Age 28 2 dc then 4mc, 3 @9weeks 1@5weeks, tests showed possible free protein s ishoo. dd2 born 06/01/2011, aspirin, claxane and high dose folic acid through pg.
JULEZBOO Age 29 1 mc @ 14 wks, DS1 (8yo) 4 mc @ 5/6 wks, DS2 (3) 2 mc @7 wks... DS3 (14/01/11 @35 wks) Dx with Factor V Leiden and Septate Uterus. Clexane and Aspirin throughout pregnancy and progesterone with DS3.

OP posts:
igginezerscrooge · 29/12/2011 21:33

Good luck Smile I would bear in mind that your consultant may not support further/different treatment plans - I know mine didn't.

Ju1es22 · 12/01/2012 18:39

Hello everyone hope your all well

Wonder if anyones around to calm me down! Im just under 6 weeks pg (could be more I've been really irregular) found out just after xmas but im terrified of mc again, had a few pink spots mon had day at home with feet up, and thankfully stopped.

Had a scan yesterday they saw a yolk sac and all looked as it should so far small area of bleed but away from the bean. I've had a really busy day at work and come home to watery beige dis charge im really freaking out, is this. Normal?

Im also quite achey just lay with my feet up on the sofa! Please so done come cheer me up!

:(

igginezerscrooge · 13/01/2012 09:36

Hi Jules sorry you're feeling so worried. And of course, no absolute answers for you (wish we all had crystal balls - would make it all lots easier!). I think it's a very positive sign that you have a cause for the spotting (the area of bleed they saw). I have all sorts of discharge when pg, I don't think anything not browny-red or red could be significant. Get rest if you can, though I wouldn't get too hung up on that as ultimately you can't stop whatever is happening - no point in guilt. Hope everything settles down for you.

Ju1es22 · 13/01/2012 12:33

Hi iggu

Thanks for writing with your words of wisdom! Thankfully no more discharge with a brown tinge more normal cream colour now, sorry if tmi feel I'm goin mad with all the knicker checking :)

Good news is ms kicked this am and was terribly sick weds pm and awfully nauseas yesterday.

Trying not to freak out this is pg number 6 with no babies to show so far, I'm keeping positive and hoping this time it'll be alright!

MilkywaysAndBump · 13/01/2012 15:53

Hi all, I just wanted to announce the safe arrival of my baby boy on 09/01/2012 weighing 6lbs 2 1/2oz.

After my fourth miscarriage in January last year, I was completely devastated and so sure I would never have another baby ever again, but after treatment of a vitamin D deficiency and taking aspiring and a host of other vitamins, I finally have what I had been trying for, for the past 2.5 years.

I hope someone like me, who was in the depths of depression this time last year can give some of you ladies who are going through a terrible time of recurrent miscarriages a small amount of hope, that it can happen.

I never thought I would move myself to the graduated list in this thread, but will do this now!

Good luck to all of you!

MilkywaysAndBump · 13/01/2012 15:58

STARTING TESTING

ILOVEBLUE - Age 33. MC1 Oct 2010 @ 20 wks (MMC at 17 wks), MC2 Feb 2011 @ 7 wks (natural + complete), MC3 July 2011 @ 9 wks (natural + complete). Appointment with RCMC consultant (Shrewsbury) Sept 1st 2011.

UNDERGOING TREATMENT

HAVINGKITTENS Age 41 - MMC1 Nov 07 8wks (discovered due to bleeding at 10.5wks) ERPC, TOP1 for TS21 Aug 08, TOP2 for TS21 Feb 09, TOP incomplete, ERPC performed, Genetic Counselling & tests confirmed no chromosome problems with us, "just bad luck ", MMC2 Feb 10 5.5wks (seen at 8wk scan, no bleeding), MMC3 May 10 (as MMC2), RMC testing at UCH, no cause found - empirical 75mg asprin & vit D + early & regular scans for next pregnancy, MMC4 No fetal pole seen at 6.5 wks, follow up scan 10 days later, told of MMC, then "Something" spotted so instructed to wait another week before they would allow ERPC, ERPC a week later, waiting for NK Cell test results from Mr S on NHS, taking 75mg Asprin, Vit D, Pregnacare Plus (w/Omega 3), 5mg Folic Acid (been taking since 1st TOP to try & prevent TS21 or similar issues), NK Cells levels almost double what they should be. 25mg Prednisone from ovulation - CD1 or if BFP then 'til 12 wks and then weaned off 'til 14wks plus Progesterone pessaries from BFP - 16wks, Folic Acid, Omega3, Vit D - 12wks, Asprin - 20wks.

PUREEQUEEN Age 34, MC1 (7 weeks Jan 08) MC2 (6 weeks March 08), DS born (prem) 2009, MC3 (9 weeks Oct 10). MC4 Jan 2011. First 2 natural mcs latter 2 mmc/ERPCs. Chromosome test MC4 showed she had a genetic abnormality (cri du chat). Karotyping for me and DH fine but with "increase in length on satellite of short arm 13 and 15" (??) . Also have endo &septate uterus. Now TTC and will take aspirin and progesterone.

CONFU3ED - Age 35 1st MC 1998 14 weeks. DD age 11. 2nd MC July 2009 5.5 weeks. ERPC Twice. No tests. 6 months Clomid 3rd MC January 2010. The foetus sent for testing - came back fine. Been referred to recurrent MC clinic at the hospital for tests, waiting for appointment. Was told I have PCOS through a scan but never diagnosed.

SCOOTERCHASER: Age 32. 3yr old DS Oct 2008 (managed for SVT heart from 35wks), mc1 Sept 2010 (7wks), mc2 Dec 2010 (9 wks - hb at 8wks), mc3 April 2011 (7.5 wks, hb day b4 mc). Mr S diagnosed high activity NK cells and advised to start prednisolone & cyclogest when next TTC.
PEBSPOP - Age 31. MC1 Nov 10 @ 11 weeks ERPC, MC2 July 11 @ 20 weeks medically managed labour (was MMC at 16/17 weeks). Found blood clots in placenta and have been prescribed 5mg folic acid, 75mg asprin and herapin. will ttc at xmas.

MIA
LOLA78: mc1 Dec 07 (6wks), DD Oct 08 (problem free pregnancy and natural birth), mmc2 Nov 10 6wks ERPC at 10wks, mc3 Feb 11 at 7wks - suspected ectopic but mc naturally, mc4 mar 11 at 5wks (started 75mg aspirin from a week before bfp) - hospitalised for excessive bleeding and clots. Now referred for testing at local fertility clinic, we have started having blood tests and am on 5mg folic acid.
PANDA 3MMC, no.1 (embryonic loss - empty sac) 7weeks, no.2 at 12 weeks, no.3 at 8 weeks. Awaiting raft of tests for recurrent MC
CLAIREDELOON Age 38 1st mmc, development stopped approx 5 weeks (2007), 2nd mmc development stopped at approx 6 weeks (2009), 3rd mc development stopped at 9 weeks after seeing hb at 8+3 (2010). Bicornate uterus, starting testing Feb 2011.
NOTSOBARRENBROOK Age 35. 1st mmc @ 6 weeks (Jan 2009), 2nd mmc @ 6 weeks (Jan 2010), 3rd mmc @ 11 weeks, development stopped at 6 weeks 3 days (March 2010), 4th mmc @ 5 weeks (August 2010). Possible adenomyosis, awaiting hsg and results of testing from St Mary's.
CRYSTAL5 Age 38 - DS age 4. 6 m/c 1 at 11 weeks, 5 at 5/6 weeks. Ok blood tests, under Endocrinologist for Hypothyroid

PREGNANT

MATTSMAMA Aged 41. 1st MMC November 2004. My DS (who I love with all my heart) born 2006. 2nd MMC July 2010. 2 chemical pregnancies September and October 2010. Under Dr Shehata and got BFP on first round of treatment for high thyroid antibodies and high killer cells.

LOVEMYSLEEP Age 39, 1 mmc, dd born(now 5), 2nd mc (9wks, 2days), 3rd mc (9wks, 3days) and 4th mc at 5 wks. All tests on NHS came back clear. Currently undergoing treatment with Dr.Shehata for very high natural killer cells - aspirin, progesterone, steroids, omezaprole and one intralipid infusion completed.

HAIRYLIGHTS, age 42, MC1 (Jun 10, very low HCG, suspected ectopic, methotrexate), MC 2 (Nov 22 2010, MMC,ERPC, no heart beat at ten weeks, fetus 8 week size), MC3 (MMC - Medical Management, Feb 13 2011, MMC at 7 week scan). Waiting to TTC.

LUCKYFOR2 Age 32 - DD age 5. DD age 3. 1st MC May 2010 found at 12 week scan passed away at 9 weeks. 2nd MC September 2010 natural at 8 weeks. 3nd MC January 2011 at 16 weeks, saw hb at 13 but no hb at 15.5. All tests have come back clear. Going to take Aspirin and Progesterone in next pregnancy (will be on Promise trial) currently ttc.

LAF77 , Age 34, MC1 (7 weeks Apr 10) MC2 (5 weeks Sept 10) MC3 (9 weeks Dec 10). All have been natural mcs and number 1 and 3 were embryonic . No children, Confirmed high MA levels in TEG, on 150mg daily, also was on PROMISE trial. EDD 21st March 2011

DIGITALGIRL Age 32 - DS 2.8 - 4MCs since ttc#2. MC1 Nov2009 @5wks. MC2 Apr2010 @6-7wks. MC3 Oct2010 @7-8wks. MC4 Mar2011 @8wks. All natural, except MC4 managed with ERPC for karyotyping. Clotting tests normal. DH & I genetically normal. On Metformin for mild PCOS, plus 75mg aspirin, Pregnacare Plus & 25mcg VitD3. Diagnosed with high NK Cells (1.25) after MC4. Starting TTC in May with prednisolone from ovulation and will add cyclogest once pg. Under care of Mr S.

LADYBEE 37, MC1 (5wks), DS (2), MC2 blighted ovum discovered @ 8 wk scan, MC3 natural @ 9 wks following hb seen at 7 1/2 wk. PCOS previously diagnosed, Factor V Leiden heterozygote discovered in recent testing. Treatment with aspirin (from BFP) + clexane started at 6 weeks. MC4 MMC @ 8.1 wks (discovered @ 11 wk scan) following hb seen at 6+6 wks. Consultant suggests aspirin + clexane to start at 4 weeks, plus progesterone pessaries. Management of MC tbc.

KNITTERNOTTWITTER - Age 34 (DH age 41) DS1 born Aug 2008 (natural conception, easy, happy pregnancy, natural birth 10lb 6oz!) Loss 1: MC1 19 March 2010 - ruptured ectopic and left tube removed. Loss 2: MC2 22 July 2010 - Foetus seen at 5 weeks and HB at 7 weeks, no HB on spotting at 12 weeks, 8 weeks sized foetus found... ERPC 26 July 2010. Loss 3: April 2011 TOP - HB seen at 6 weeks and 9 weeks, large Nuchal measurement and bad bloods at 12 week scan - CVS - confirmed T21 and hydrops, no chromozonal translocation - removed by ERPC 15 April 2011 . Currently TTC and because of the three losses have been referred to St Georges, Tooting, Repeat Miscarriage Clinic - my first appointment is on the 9th of June...

IGGI - Age 41, 3 year old DS. 3 MC last year, at 6, 8 and 8 weeks. Last two had hb detected. NHS blood tests came back clear, except for presence of antinuclear antibodies. To take aspirin for this. Tests with Mr Shehata confirmed high natural killer cells - to take progesteron and steroids for this. 4th MC in May, at around 5 1/2 weeks. Waiting a month or so before trying again.

GRADUATES WITH BABIES!!
LUNATIC dd1(4) 2 mmc (8 wks) dd2 stillborn (32+5). Seen at St Mary's. clotting problem, pg #5 aspirin 150g daily. Ds1 born 9/2/11 c/s @ 35 wks

STILLFRAZZLED Age 35, DS1 (3.6yo), 1 mc @ 5 weeks Jan 09, 2nd mc @ 9 weeks March 09, DS2 born @ 35+3 on 04/01/11 with Intra Uterine Growth Restriction but currently home and doing well.

MUMATRON Age 28 2 dc then 4mc, 3 @9weeks 1@5weeks, tests showed possible free protein s ishoo. dd2 born 06/01/2011, aspirin, claxane and high dose folic acid through pg.

JULEZBOO Age 29 1 mc @ 14 wks, DS1 (8yo) 4 mc @ 5/6 wks, DS2 (3) 2 mc @7 wks... DS3 (14/01/11 @35 wks) Dx with Factor V Leiden and Septate Uterus. Clexane and Aspirin throughout pregnancy and progesterone with DS3.

GLITTERYBITS 1 anembryonic MC (12 weeks), unexplained infertility, 1 round of clomid, currently pg and terrified!
JUSTMEE Age 21, MC1 (7 weeks), MC2 (6weeks), MC3 (5weeks) currently pregnant with 4th pregnancy using clexane injecting 20mg a day EDD 24/09/11

LOVELYBUNCHOFCOCONUTS Age 23, 1 MC (13 weeks), 1 MMC (10 weeks - growth stopped at 7), 1DD born 2008, PCOS diagnosis, bi-cornuate uterus. EDD 01/10/11

MUMMYABROAD Age 36, 1DS (2.9), 1MMC Mar 2010 (@14weeks) Ashermans diagnosis and treatment Nov 2010, Started TTC Jan 2011 BFP on Cycle 2 EDD 4/11/11. Heartbeat seen at 10 weeks.

BANANA87 Age 30- 1mmc@7 weeks, DD (2), 1 mmc 6 weeks, 1 mc 7 weeks, Going to try aspirin and progesterone as per consultant. Clotting bloods normal.

MILKYWAYS Age 28 - DD age 4. 1st MC Oct 2009, 6 weeks. 2nd MMC March 2010, 11 weeks (baby passed away at 7 weeks). 3rd MC July 2010, 6 weeks. 4th MMC 24 Jan 2011, 9 weeks - no amniotic sac, baby measured 7weeks 4 days, no HB, had seen a healthy HB at 7 weeks. Blood clotting, hormone, genetic karyotype and shape and health of uterus checked and all clear. High dose folic acid prescribed and treated for Vitamin D deficiency. Low dose aspirin through to 36 weeks. Taking Magnesium, Selenium, Vit D, CoEnzyme Q10 extra supplements. EDD 08/01/12. Baby son born 09/01/12.

igginezerscrooge · 13/01/2012 16:25

Hi Milky what wonderful, wondeful news! Congratulations Grin
The end of a long (and crap) journey and the beginning of a much nicer one!

GreenOlives · 15/01/2012 14:26

Massive congratulations Milky! You have given me hope that maybe I will get DC2 one day too as we have very similar stories. Enjoy every second of these precious early days with your new son. Grin xx

Ju1es22 · 15/01/2012 20:49

Congratulations Milkyway that's fantastic news. Thank you for sharing your good news really gives me hope I've had a similar journey to you so far and I'm currently in the early stages of pg, keeping my fingers and toes crossed this ones gonna stick around xx

farfallarocks · 16/01/2012 17:56

huge congrats milky that is a lovely story and very reassuring indeed.

jules congrats on the pregnancy, have you managed to get a treatment plan from your consultant?

Ju1es22 · 16/01/2012 18:15

Hi farfallarocks, thanks still early days ms/constant nausea which I know is quite a good sign!

Im on 75mg aspirin and 5mg folic acid and I've got a scan next week when I'll be about 8 weeks! Got caught accidentally this time before any further treatment so fingers crossed it'll all be ok this time.

X

holldoll · 17/01/2012 14:44

Hi all,I am 35 and I have a DS who is 2yrs but have had 3 miscarriages in the last 12 months, losing them all around 5.5 - 6 wks, so very early. I have been referred to the above unit and had my initial clinic appt where my anatomy was deemed normal and bloods taken which take 6-8 weeks to come back. I forgot in the panic to ask if you would be followed up if all is normal.
I wonder has anyone had experience of this clinic and if so what was their follow-up? I am considering going down the private route if this fails to answer the question of why I have miscarried.
I am so sorry to hear of all your losses but also heartened to read about the grads too. I hope my question does not seem to silly to ask.

igggi · 19/01/2012 06:55

Hi Holldoll, sorry about your experiences. I'm not sure which clinic you are referring to?
My experience is that a RMC will write to you with results, they will do that either way though possibly with more urgency if there's something wrong. After testing at local RMC I then saw someone privately to test for natural killer cells - I have been happy with my treatment for that so far as am currently 20 weeks pg (similar to you, I've had one child and then 4 mc).

holldoll · 21/01/2012 13:49

Thanks Igggi, it was the RMC at Kings hospital in London. I am waiting to hear from them now. I am thinking if all normal which i suspect the tests will be, i will try and see Dr Shehata privately for the same reason that you did, i.e. the natural killer cells. Congrats on your current pregnancy and best wishes for a happy and healthy one.

MilkywaysAndBump · 24/01/2012 15:21

Hi all...today its been 1 whole year since I found out my baby girl had died at the 9 week scan. Even holding my precious son in my arms right now I can't help but cry and remember how utterly shit that day was.

igggi · 25/01/2012 09:29

Hi Milkways, sorry you're having such a sad day Sad. Of course you're right to still feel bad about what has happened to you, even with your "happy ending", you still have grief to deal with.

Dunnitt · 27/01/2012 08:58

Hello everyone. I'm new to this forum. I have had 3 pervious MCs. Had a pos test on Sunday. NHS consultant that I am with was rubbish just said congrats, hope it works out and keep taking the low asprin. I was booked in anyway on Feb 8th with a private clinic in order to do the tests that the NHS don't do. They have been brilliant, they pulled my appt forward to yesterday - they did want me in on Tuesday but I was typically out of the country with work.

My blood leves have been done. HCG and PG good, no sign of clotting platelets. They have put me on Prog pesseries and Clexlane (blood thinning) injections as a precaution. Also testing for natural killer cells, results come back next week.

Having my HCG levels done again tomorrow and am completely bricking it as 2 of my MCs have been delayed/missed.

Stomoach in knots.

igggi · 27/01/2012 16:27

Hi Dunnitt, I know it's gone wrong for you over and over, but this is a different pregnancy and you are on a good selection of treatment now. After 4 mc I started treatment, and am so far 22 wks pg. I think you've done the right thing by seeing someone privately - just being told "hope it works out this time" doesn't really help does it!

Dunnitt · 27/01/2012 17:23

Thanks iggi. You give us all hope!

On a separate note - have anyone else used the Progesteron pessaris up the 'back passage'. Don't want to give TMI, but not sure they are reacting with me in the right way. I think I may even have seen the tiniest spec of blood.

I will tell the clinic tomorrow but just wondering if this is normal?

igggi · 27/01/2012 18:01

Yes, and yes to the blood as well. I think the 'insertions' led to scratches that bled - or maybe the dreaded piles! But the front door approach irritated me too much. Oh what fun!

cher31 · 27/01/2012 18:57

Please can I join? I've had 3 mc at 10, 9 and 12 weeks the last two were blighted ovums. I'm due to be seen at Leeds RMC clinic next week and would love to hear from anyone who has been there and what to expect from the first visit. I've already had all the bloods done so what next? Thank you for the positive stories. Looking forward to getting to know you all better

hairytaleofnewyork · 28/01/2012 14:08

I am just very quickly popping on to tell you that on 22nd Jan I had a beautiful baby girl after 3 recurrent miscarriages.

I have been through some really hard times and I just wanted to share some good news.

Also for older ttcers all of my pregnancies - including this one - have been "natural" (rather than assisted). For this one I was on 150mg aspirin.

I sincerely wish everyone good luck and good outcomes. Hang in there.

Dunnitt · 28/01/2012 15:46

Hello. Just an update as my HCG and prog levels done again today.

HCG up from 1420 to 3100. So am delighted about that. And my prog went from 99 to 109, but they would like it to be higher so i have to up my pessari intake from twice to 3 times a day. All the prog charts i have found say 109 is off the scale at thsi stage! So clinic must be using a different unit of measurement.

Back again monday to do it all again. At £70 a pop they know how to make their money!

igggi · 29/01/2012 10:45

Hairy, how lovely! So glad it has worked out for you Smile. Enjoy your wee one.
Welcome Cher, I guess hearing back about your results is the next step, then deciding if they have tested you for everything available if it comes back negative.
Dunnitt, that's great that you are going in the right direction!

LAF77 · 29/01/2012 16:46

milky we will always carry our losses with us, time will always stop on anniversary days when we remember the babies that didn't make it.

I'm happy that both you and hairy have had your babies.

Welcome to all of the new ladies. I am sure that you will find plenty of support here in your journey.

I have updated the list for hairy and moved mattsmama and lovemysleep into the graduates with babies category. Lucky may also have had her baby, but I don't think she has been on MN for awhile.

If anyone wants to add themselves to the list, go right ahead!

STARTING TESTING

Feel free to add yourself here!

UNDERGOING TREATMENT

HAVINGKITTENS Age 41 - MMC1 Nov 07 8wks (discovered due to bleeding at 10.5wks) ERPC, TOP1 for TS21 Aug 08, TOP2 for TS21 Feb 09, TOP incomplete, ERPC performed, Genetic Counselling & tests confirmed no chromosome problems with us, "just bad luck ", MMC2 Feb 10 5.5wks (seen at 8wk scan, no bleeding), MMC3 May 10 (as MMC2), RMC testing at UCH, no cause found - empirical 75mg asprin & vit D + early & regular scans for next pregnancy, MMC4 No fetal pole seen at 6.5 wks, follow up scan 10 days later, told of MMC, then "Something" spotted so instructed to wait another week before they would allow ERPC, ERPC a week later, waiting for NK Cell test results from Mr S on NHS, taking 75mg Asprin, Vit D, Pregnacare Plus (w/Omega 3), 5mg Folic Acid (been taking since 1st TOP to try & prevent TS21 or similar issues), NK Cells levels almost double what they should be. 25mg Prednisone from ovulation - CD1 or if BFP then 'til 12 wks and then weaned off 'til 14wks plus Progesterone pessaries from BFP - 16wks, Folic Acid, Omega3, Vit D - 12wks, Asprin - 20wks.

PUREEQUEEN Age 34, MC1 (7 weeks Jan 08) MC2 (6 weeks March 08), DS born (prem) 2009, MC3 (9 weeks Oct 10). MC4 Jan 2011. First 2 natural mcs latter 2 mmc/ERPCs. Chromosome test MC4 showed she had a genetic abnormality (cri du chat). Karotyping for me and DH fine but with "increase in length on satellite of short arm 13 and 15" (??) . Also have endo &septate uterus. Now TTC and will take aspirin and progesterone.

SCOOTERCHASER: Age 32. 3yr old DS Oct 2008 (managed for SVT heart from 35wks), mc1 Sept 2010 (7wks), mc2 Dec 2010 (9 wks - hb at 8wks), mc3 April 2011 (7.5 wks, hb day b4 mc). Mr S diagnosed high activity NK cells and advised to start prednisolone & cyclogest when next TTC.
PEBSPOP - Age 31. MC1 Nov 10 @ 11 weeks ERPC, MC2 July 11 @ 20 weeks medically managed labour (was MMC at 16/17 weeks). Found blood clots in placenta and have been prescribed 5mg folic acid, 75mg asprin and herapin. will ttc at xmas.

ILOVEBLUE - Age 33. MC1 Oct 2010 @ 20 wks (MMC at 17 wks), MC2 Feb 2011 @ 7 wks (natural + complete), MC3 July 2011 @ 9 wks (natural + complete). Appointment with RCMC consultant (Shrewsbury) Sept 1st 2011.

MIA
LOLA78: mc1 Dec 07 (6wks), DD Oct 08 (problem free pregnancy and natural birth), mmc2 Nov 10 6wks ERPC at 10wks, mc3 Feb 11 at 7wks - suspected ectopic but mc naturally, mc4 mar 11 at 5wks (started 75mg aspirin from a week before bfp) - hospitalised for excessive bleeding and clots. Now referred for testing at local fertility clinic, we have started having blood tests and am on 5mg folic acid.
PANDA 3MMC, no.1 (embryonic loss - empty sac) 7weeks, no.2 at 12 weeks, no.3 at 8 weeks. Awaiting raft of tests for recurrent MC
CLAIREDELOON Age 38 1st mmc, development stopped approx 5 weeks (2007), 2nd mmc development stopped at approx 6 weeks (2009), 3rd mc development stopped at 9 weeks after seeing hb at 8+3 (2010). Bicornate uterus, starting testing Feb 2011.
NOTSOBARRENBROOK Age 35. 1st mmc @ 6 weeks (Jan 2009), 2nd mmc @ 6 weeks (Jan 2010), 3rd mmc @ 11 weeks, development stopped at 6 weeks 3 days (March 2010), 4th mmc @ 5 weeks (August 2010). Possible adenomyosis, awaiting hsg and results of testing from St Mary's.
CRYSTAL5 Age 38 - DS age 4. 6 m/c 1 at 11 weeks, 5 at 5/6 weeks. Ok blood tests, under Endocrinologist for Hypothyroid

PREGNANT

LUCKYFOR2 Age 32 - DD age 5. DD age 3. 1st MC May 2010 found at 12 week scan passed away at 9 weeks. 2nd MC September 2010 natural at 8 weeks. 3nd MC January 2011 at 16 weeks, saw hb at 13 but no hb at 15.5. All tests have come back clear. Going to take Aspirin and Progesterone in next pregnancy (will be on Promise trial) currently ttc.

LAF77 , Age 34, MC1 (7 weeks Apr 10) MC2 (5 weeks Sept 10) MC3 (9 weeks Dec 10). All have been natural mcs and number 1 and 3 were embryonic . No children, Confirmed high MA levels in TEG, on 150mg daily, also was on PROMISE trial. EDD 21st March 2011

DIGITALGIRL Age 32 - DS 2.8 - 4MCs since ttc#2. MC1 Nov2009 @5wks. MC2 Apr2010 @6-7wks. MC3 Oct2010 @7-8wks. MC4 Mar2011 @8wks. All natural, except MC4 managed with ERPC for karyotyping. Clotting tests normal. DH & I genetically normal. On Metformin for mild PCOS, plus 75mg aspirin, Pregnacare Plus & 25mcg VitD3. Diagnosed with high NK Cells (1.25) after MC4. Starting TTC in May with prednisolone from ovulation and will add cyclogest once pg. Under care of Mr S.

LADYBEE 37, MC1 (5wks), DS (2), MC2 blighted ovum discovered @ 8 wk scan, MC3 natural @ 9 wks following hb seen at 7 1/2 wk. PCOS previously diagnosed, Factor V Leiden heterozygote discovered in recent testing. Treatment with aspirin (from BFP) + clexane started at 6 weeks. MC4 MMC @ 8.1 wks (discovered @ 11 wk scan) following hb seen at 6+6 wks. Consultant suggests aspirin + clexane to start at 4 weeks, plus progesterone pessaries. Management of MC tbc.

KNITTERNOTTWITTER - Age 34 (DH age 41) DS1 born Aug 2008 (natural conception, easy, happy pregnancy, natural birth 10lb 6oz!) Loss 1: MC1 19 March 2010 - ruptured ectopic and left tube removed. Loss 2: MC2 22 July 2010 - Foetus seen at 5 weeks and HB at 7 weeks, no HB on spotting at 12 weeks, 8 weeks sized foetus found... ERPC 26 July 2010. Loss 3: April 2011 TOP - HB seen at 6 weeks and 9 weeks, large Nuchal measurement and bad bloods at 12 week scan - CVS - confirmed T21 and hydrops, no chromozonal translocation - removed by ERPC 15 April 2011 . Currently TTC and because of the three losses have been referred to St Georges, Tooting, Repeat Miscarriage Clinic - my first appointment is on the 9th of June...

IGGI - Age 41, 3 year old DS. 3 MC last year, at 6, 8 and 8 weeks. Last two had hb detected. NHS blood tests came back clear, except for presence of antinuclear antibodies. To take aspirin for this. Tests with Mr Shehata confirmed high natural killer cells - to take progesteron and steroids for this. 4th MC in May, at around 5 1/2 weeks. Waiting a month or so before trying again.

CONFU3ED - Age 35 1st MC 1998 14 weeks. DD age 11. 2nd MC July 2009 5.5 weeks. ERPC Twice. No tests. 6 months Clomid 3rd MC January 2010. The foetus sent for testing - came back fine. Been referred to recurrent MC clinic at the hospital for tests, waiting for appointment. Was told I have PCOS through a scan but never diagnosed.

GRADUATES WITH BABIES!!
LUNATIC dd1(4) 2 mmc (8 wks) dd2 stillborn (32+5). Seen at St Mary's. clotting problem, pg #5 aspirin 150g daily. Ds1 born 9/2/11 c/s @ 35 wks

STILLFRAZZLED Age 35, DS1 (3.6yo), 1 mc @ 5 weeks Jan 09, 2nd mc @ 9 weeks March 09, DS2 born @ 35+3 on 04/01/11 with Intra Uterine Growth Restriction but currently home and doing well.

MUMATRON Age 28 2 dc then 4mc, 3 @9weeks 1@5weeks, tests showed possible free protein s ishoo. dd2 born 06/01/2011, aspirin, claxane and high dose folic acid through pg.

JULEZBOO Age 29 1 mc @ 14 wks, DS1 (8yo) 4 mc @ 5/6 wks, DS2 (3) 2 mc @7 wks... DS3 (14/01/11 @35 wks) Dx with Factor V Leiden and Septate Uterus. Clexane and Aspirin throughout pregnancy and progesterone with DS3.

GLITTERYBITS 1 anembryonic MC (12 weeks), unexplained infertility, 1 round of clomid, currently pg and terrified!

JUSTMEE Age 21, MC1 (7 weeks), MC2 (6weeks), MC3 (5weeks) currently pregnant with 4th pregnancy using clexane injecting 20mg a day EDD 24/09/11

LOVELYBUNCHOFCOCONUTS Age 23, 1 MC (13 weeks), 1 MMC (10 weeks - growth stopped at 7), 1DD born 2008, PCOS diagnosis, bi-cornuate uterus. EDD 01/10/11

MUMMYABROAD Age 36, 1DS (2.9), 1MMC Mar 2010 (@14weeks) Ashermans diagnosis and treatment Nov 2010, Started TTC Jan 2011 BFP on Cycle 2 EDD 4/11/11. Heartbeat seen at 10 weeks.

MATTSMAMA Aged 41. 1st MMC November 2004. My DS (who I love with all my heart) born 2006. 2nd MMC July 2010. 2 chemical pregnancies September and October 2010. Under Dr Shehata and got BFP on first round of treatment for high thyroid antibodies and high killer cells.

LOVEMYSLEEP Age 39, 1 mmc, dd born(now 5), 2nd mc (9wks, 2days), 3rd mc (9wks, 3days) and 4th mc at 5 wks. All tests on NHS came back clear. Currently undergoing treatment with Dr.Shehata for very high natural killer cells - aspirin, progesterone, steroids, omezaprole and one intralipid infusion completed.

BANANA87 Age 30- 1mmc@7 weeks, DD (2), 1 mmc 6 weeks, 1 mc 7 weeks, Going to try aspirin and progesterone as per consultant. Clotting bloods normal.

MILKYWAYS Age 28 - DD age 4. 1st MC Oct 2009, 6 weeks. 2nd MMC March 2010, 11 weeks (baby passed away at 7 weeks). 3rd MC July 2010, 6 weeks. 4th MMC 24 Jan 2011, 9 weeks - no amniotic sac, baby measured 7weeks 4 days, no HB, had seen a healthy HB at 7 weeks. Blood clotting, hormone, genetic karyotype and shape and health of uterus checked and all clear. High dose folic acid prescribed and treated for Vitamin D deficiency. Low dose aspirin through to 36 weeks. Taking Magnesium, Selenium, Vit D, CoEnzyme Q10 extra supplements. EDD 08/01/12. Baby son born 09/01/12.

HAIRYLIGHTS, age 42, MC1 (Jun 10, very low HCG, suspected ectopic, methotrexate), MC 2 (Nov 22 2010, MMC,ERPC, no heart beat at ten weeks, fetus 8 week size), MC3 (MMC - Medical Management, Feb 13 2011, MMC at 7 week scan). Waiting to TTC.

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