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Recurrent MC--Testing and beyond--Part 5 continues here

999 replies

LAF77 · 02/05/2011 09:23

Here is the list of us on the thread and where we are in our journey through RMC. Nearly 4,000 posts in a year, so mark your place for the next thread.

Part one Part one

Part two Part two

Part three Part three

Part four Part four

STARTING TESTING
LOLA78: mc1 Dec 07 (6wks), DD Oct 08 (problem free pregnancy and natural birth), mmc2 Nov 10 6wks ERPC at 10wks, mc3 Feb 11 at 7wks - suspected ectopic but mc naturally, mc4 mar 11 at 5wks (started 75mg aspirin from a week before bfp) - hospitalised for excessive bleeding and clots. Now referred for testing at local fertility clinic, we have started having blood tests and am on 5mg folic acid.
SCOOTERCHASTER: DS Oct 08 (managed for SVT heart from 35wks), mc1 Sept 10 (7wks), mc2 Dec 10 (9 wks - hb @ 8wks), mc3 April 11 (7.5 wks, hb day b4 mc).
HAIRYLIGHTS, age 42, MC1 (Jun 10, very low HCG, suspected ectopic, methotrexate), MC 2 (Nov 22 2010, MMC,ERPC, no heart beat at ten weeks, fetus 8 week size), MC3 (MMC - Medical Management, Feb 13 2011, MMC at 7 week scan). Waiting to TTC
PANDA 3MMC, no.1 (embryonic loss - empty sac) 7weeks, no.2 at 12 weeks, no.3 at 8 weeks. Awaiting raft of tests for recurrent MC
CLAIREDELOON Age 38 1st mmc, development stopped approx 5 weeks (2007), 2nd mmc development stopped at approx 6 weeks (2009), 3rd mc development stopped at 9 weeks after seeing hb at 8+3 (2010). Bicornate uterus, starting testing Feb 2011.
NOTSOBARRENBROOK Age 35. 1st mmc @ 6 weeks (Jan 2009), 2nd mmc @ 6 weeks (Jan 2010), 3rd mmc @ 11 weeks, development stopped at 6 weeks 3 days (March 2010), 4th mmc @ 5 weeks (August 2010). Possible adenomyosis, awaiting hsg and results of testing from St Mary's.
MILKYWAY2007 Age 28 - DD age 3. 1st MC Oct 2009, 6 weeks. 2nd MMC March 2010, 11 weeks (baby passed away at 7 weeks). 3rd MC July 2010, 6 weeks. 4th MMC 24 Jan 2011, 9 weeks - no amniotic sac, baby measured 7weeks 4 days, no HB, had seen a healthy HB at 7 weeks. Blood clotting, hormone, genetic karyotype and shape and health of uterus checked and all clear. High dose folic acid prescribed.
LUCKYFOR2 Age 32 - DD age 5. DD age 3. 1st MC May 2010 found at 12 week scan passed away at 9 weeks. 2nd MC September 2010 natural at 8 weeks. 3nd MC January 2011 at 16 weeks, saw hb at 13 but no hb at 15.5. All tests have come back clear. Going to take Aspirin and Progesterone in next pregnancy (will be on Promise trial) currently ttc.
IGGI999 - Age 40, 3 year old DS. 3 MC last year, at 6, 8 and 8 weeks. Last two had hb detected. NHS blood tests came back clear, except for presence of antinuclear antibodies. To take aspirin for this. Going to see Shehata in May as think steroids are needed.
CONFU3ED - Age 35 1st MC 1998 14 weeks. DD age 11. 2nd MC July 2009 5.5 weeks. ERPC Twice. No tests. 6 months Clomid 3rd MC January 2010. The foetus sent for testing - came back fine. Been referred to recurrent MC clinic at the hospital for tests, waiting for appointment. Was told I have PCOS through a scan but never diagnosed.

UNDERGOING TREATMENT
HAVINGKITTENS Age 41 - MMC1 Nov 07 8wks (discovered due to bleeding at 10.5wks) ERPC, TOP1 for TS21 Aug 08, TOP2 for TS21 Feb 09, TOP incomplete, ERPC performed, Genetic Counselling & tests confirmed no chromosome problems with us, "just bad luck ", MMC2 Feb 10 5.5wks (seen at 8wk scan, no bleeding), MMC3 May 10 (as MMC2), RMC testing at UCH, no cause found - empirical 75mg asprin & vit D + early & regular scans for next pregnancy, MMC4 No fetal pole seen at 6.5 wks, follow up scan 10 days later, told of MMC, then "Something" spotted so instructed to wait another week before they would allow ERPC, ERPC a week later, waiting for NK Cell test results from Mr S on NHS, taking 75mg Asprin, Vit D, Pregnacare Plus (w/Omega 3), 5mg Folic Acid (been taking since 1st TOP to try & prevent TS21 or similar issues), NK Cells levels almost double what they should be. 25mg Prednisone from ovulation - CD1 or if BFP then 'til 12 wks and then weaned off 'til 14wks plus Progesterone pessaries from BFP - 16wks, Folic Acid, Omega3, Vit D - 12wks, Asprin - 20wks.
CRYSTAL5 Age 38 - DS age 4. 6 m/c 1 at 11 weeks, 5 at 5/6 weeks. Ok blood tests, under Endocrinologist for Hypothyroid
LADYBEE 37, MC1 (5wks), DS (2), MC2 blighted ovum discovered @ 8 wk scan, MC3 natural @ 9 wks following hb seen at 7 1/2 wk. PCOS previously diagnosed, Factor V Leiden heterozygote discovered in recent testing. Treatment with aspirin (from BFP) + clexane started at 6 weeks. MC4 MMC @ 8.1 wks (discovered @ 11 wk scan) following hb seen at 6+6 wks. Consultant suggests aspirin + clexane to start at 4 weeks, plus progesterone pessaries. Management of MC tbc.
DIGITALGIRL Age 32 - DS 2.8 - 4MCs since ttc#2. MC1 Nov2009 @5wks. MC2 Apr2010 @6-7wks. MC3 Oct2010 @7-8wks. MC4 Mar2011 @8wks. All natural, except MC4 managed with ERPC for karyotyping. Clotting tests normal. DH & I genetically normal. On Metformin for mild PCOS, plus 75mg aspirin, Pregnacare Plus & 25mcg VitD3. Diagnosed with high NK Cells (1.25) after MC4. Starting TTC in May with prednisolone from ovulation and will add cyclogest once pg. Under care of Mr S.
PUREEQUEEN Age 34, MC1 (7 weeks Jan 08) MC2 (6 weeks March 08), DS born (prem) 2009, MC3 (9 weeks Oct 10). MC4 Jan 2011. First 2 natural mcs latter 2 mmc/ERPCs. Chromosome test MC4 showed she had a genetic abnormality (cri du chat). Karotyping for me and DH fine but with "increase in length on satellite of short arm 13 and 15" (??) . Also have endo &septate uterus. Now TTC and will take aspirin and progesterone.
LAF77 , Age 33, MC1 (7 weeks Apr 10) MC2 (5 weeks Sept 10) MC3 (9 weeks Dec 10). All have been natural mcs and number 1 and 3 were embryonic . No children, First appointment with St. Mary's in April, second round of bloods in May, with results in June.

PREGNANT
MATTSMAMA Aged 41. 1st MMC November 2004. My DS (who I love with all my heart) born 2006. 2nd MMC July 2010. 2 chemical pregnancies September and October 2010. Under Dr Shehata and got BFP on first round of treatment for high thyroid antibodies and high killer cells.
BANANA87 Age 30- 1mmc@7 weeks, DD (2), 1 mmc 6 weeks, 1 mc 7 weeks, Going to try aspirin and progesterone as per consultant. Clotting bloods normal.
MUMMYABROAD Age 36, 1DS (2.9), 1MMC Mar 2010 (@14weeks) Ashermans diagnosis and treatment Nov 2010, Started TTC Jan 2011 BFP on Cycle 2 EDD 4/11/11. Heartbeat seen at 10 weeks.
GLITTERYBITS 1 anembryonic MC (12 weeks), unexplained infertility, 1 round of clomid, currently pg and terrified!
JUSTMEE Age 21, MC1 (7 weeks), MC2 (6weeks), MC3 (5weeks) currently pregnant with 4th pregnancy using clexane injecting 20mg a day
LOVELYBUNCHOFCOCONUTS Age 23, 1 MC (13 weeks), 1 MMC (10 weeks - growth stopped at 7), 1DD born 2008, PCOS diagnosis, bi-cornuate uterus. EDD 03/10/11
LOVEMYSLEEP Age 39, 1 mmc, dd born(now 5), 2nd mc (9wks, 2days), 3rd mc (9wks, 3days) and 4th mc at 5 wks. All tests on NHS came back clear. Currently undergoing treatment with Dr.Shehata for very high natural killer cells - aspirin, progesterone, steroids, omezaprole and one intralipid infusion completed.

GRADUATES WITH BABIES!!
LUNATIC dd1(4) 2 mmc (8 wks) dd2 stillborn (32+5). Seen at St Mary's. clotting problem, pg #5 aspirin 150g daily. Ds1 born 9/2/11 c/s @ 35 wks
STILLFRAZZLED Age 35, DS1 (3.6yo), 1 mc @ 5 weeks Jan 09, 2nd mc @ 9 weeks March 09, DS2 born @ 35+3 on 04/01/11 with Intra Uterine Growth Restriction but currently home and doing well.
MUMATRON Age 28 2 dc then 4mc, 3 @9weeks 1@5weeks, tests showed possible free protein s ishoo. dd2 born 06/01/2011, aspirin, claxane and high dose folic acid through pg.
JULEZBOO Age 29 1 mc @ 14 wks, DS1 (8yo) 4 mc @ 5/6 wks, DS2 (3) 2 mc @7 wks... DS3 (14/01/11 @35 wks) Dx with Factor V Leiden and Septate Uterus. Clexane and Aspirin throughout pregnancy and progesterone with DS3.

OP posts:
igggi · 02/06/2011 16:12

Hello. I'm sure you should be entitled to weekly scans, that's what I'd heard anyway. Just push them, if that's what you want.
Have just had blood drawn for hcg, at suggestion of early preg unit. They were the most negative I've ever heard them, have clearly written it off.
Do you think I will be offered medical management? It is nothing to them to say wait a couple of weeks, but it's hell for me. Does medical management mean you have to wait 3 months to ttc?

luckyfor2 · 02/06/2011 16:58

Hi milky yes I do have them every week and I can understand the torture of waiting because even weekly ones seem to take a long time to come around. As igggi has said its definately worth demanding asking if thats the support you need.

igggi sorry that the EPU department were negative, they have no right to be like that with you its hard enough as it is - God these people make me so cross! Good that they've taken your hcg levels though when will you be getting the results? I can understand you trying to prepare yourself for the worst I really wish I could say something that would give you some hope. If it does help in any way at all then no you don't have to wait to ttc at all after mm but lets really hope it wont come to that this time. x

LAF77 · 02/06/2011 21:57

Iggi I don't know how your EPU could be so dismissive of your pregnancy like that. It is such early days that I don't see how they could be so negative. I hope that Dr. S has a different view for you.

How did your scan go lucky ?

Sorry that things are not going as you want them to digital hopefully acupuncture will bring some benefits.

brownb fingers crossed that this third pg will have a better outcome. The blood clot could be producing the active bleed. I don't think it is possible to have a sense of humour during RMC, so don't feel bad that it has left the building! I'm normally full of funny things to say and laugh at, but there hasn't been much of that in my life in the last year.

Hello to glittery glad that the pg has been going well in the last few months. Hopefully, you can start to enjoy this precious time you have been given with your baby in the last few weeks.

Hope that you are feeling better pureequeen waves to milkyway and kittens

Not much to report from me, about 2.5 weeks until I see the consultant at St. Mary's to find out my blood results. I've got 2 busy weeks coming up at work, so hopefully time will fly by. Hopefully, we will get the go ahead TTC for my next cycle. I've ordered a jumbo pack of clear blue fertility monitors and pg test from Amazon in the hope that we'll get the green light on the 21st. I've been on the sidelines for so long...

OP posts:
luckyfor2 · 03/06/2011 10:02

Scan was good thank you Laff measuring 12 weeks but certainly don't feel safe by any means. Lost last one at 15 weeks in Jan so I think I would need to get to 20 to start feeling slightly safe. Thank you for asking. I feel a little uncomfy posting news on here as I know some of you are going through a really bad time at the moment. Thinking of you all. xx

Hope the 2 weeks passes quickly and you can start getting use out of that monitor. I remember when you were saying ages ago that it would be in June when you would have your results - it seemed like such a long time to wait and I can't believe it is almost here. I know it has been a long time for you but I'm so pleased that the wait is almost over.

milkyway07 · 03/06/2011 12:29

iggi I'm sorry for the EPU's negativity - you still have another hcg test to go so I don't know why they acted like that. If it helps, my consultant told me that bleeding can just be a side effect of taking aspirin, so try to remain positive. I know Mr S is world renowned, and you are in safe hands with him.

lucky I will definitely be asking for a weekly scan - if it comes to that. Congratulations on the scan, just keep positive and I am sure things will work out fine this time, but I understand how you feel about passing different time-points to feel safe.

LAF77 Good luck with the test results and I hope you can start TTC soon. I remember waiting 4 months last year to get my results and it was an excruciatingly hard time. Glad your wait is nearly over.

igggi · 03/06/2011 13:16

Lucky that is really good news. I know you will probably no completely relax till you are in labour! Hearing that things go well for other "people like us", with our problems, really keeps me going so on my behalf please don't avoid talking about the good news.
I am so sick of the bad. EPU phoned with yesterday's blood results, HCG is only at 33 which is game over. Somehow I thought that a pregnancy complete with steriods etc would be the one to make it, so is very hard to accept I have failed again. Hasn't sunk in really.

LAF77 · 03/06/2011 13:39

Oh Iggi I'm so sorry....will you still see Dr S tomorrow?

OP posts:
igggi · 03/06/2011 13:43

Thanks Laf. Yes, I will. I have a lot of time on the train to think of what to ask him!
Toying with the idea of not ttc straight away and instead trying to lose a shed-load of weight, as that's the only thing I haven't tried.
Glad you're going to be able to get started soon.

KnitterNotTwitter · 03/06/2011 13:57

Just poking my head round the door and saying "hello"... I'm Knitter and I was wondering if I could ask you ladies for advice and help....

Quick bit of history:

Age 34 (DH age 41)
DS1 born Aug 2008 (natural conception, easy, happy pregnancy, natural birth 10lb 6oz!)
MC1 19 March 2010 - ruptured ectopic and left tube removed
MC2 22 July 2010 - discovered on spotting at 12 weeks but 8 weeks sized foetus found... ERPC 26 July 2010
TOP 15 April 2011 - T21 and hydrops

Currently TTC and because of the three losses have been referred to St Georges, Tooting, Repeat Miscarriage Clinic - my first appointment is on the 9th of June...

I was wondering what I should expect from that appointment (I've been told to go alone - no need for DH apparently) and what i should be asking for in terms of tests etc...

thanks in advance

and to people I know from the common room / freak out room etc!

LAF77 · 03/06/2011 17:29

iggi have you had ERPC in your previous miscarriages? Perhaps getting the karyotyping back would provide some answers? Thinking of you, it is totally crap to have this happen again.

lucky I'm glad to read positive stories, I hope that I can share something positive one day too.

knitter Sorry, you have joined us here. I had a letter come through from St. Mary's RMC confirming the tests that they have run on me. They are:

*Antiphospholipid antibodies

  • activated protein C resistance
  • Factor V Leiden *Prothrombin gene mutation *Thromboelastogram (TEG)

I'm 34 now (still getting used to saying that) and my DH is 42. I only had blood taken at the first appointment, and my second appointment last week involved a blood test and ultrasound scan. Maybe your clinic will do the same. DH came to the first appt because they wanted a blood sample to use from him for future genetic research into miscarriage, but he wasn't needed otherwise.

I had a bit of a scare at work today. All of my clearblue stuff turned up and they brought it to me with another box from Amazon that didn't have a name on it. He asked me to open it and check to see if it was for me. It wasn't, it was for someone else. That could have been so embarrassing if someone else in the office had opened my box with pregnancy tests and OPKs!

OP posts:
digitalgirl · 03/06/2011 18:34

knitter in addition to LAF's list you and your dh will probably be karyotyped to rule out balanced translocation.

igggi oh god, I'm so so sorry Sad. I agree that an hcg count of 33 at this stage isn't great Sad. This really is so terribly unfair. I'm hoping for some sort of low-rising hcg miracle for you but know better than to dangle carrots after everything we've all been through. What did Mr S say today - were you scanned?

hairylights · 03/06/2011 18:41

So sorry iggi

Has anyone here come to the point of giving up? I am very fearful of a fourth miscarriage - haven't had any scans yet - and feel that I simply can't go on . If this fails I feel I will have two choices - donor eggs (I know bit simple) or to just give up. At present I feel Luke I will literally go crazy at another loss.

LAF77 · 04/06/2011 15:22

oh hairy I hope that things don't end in MC for you. When is your first scan?

IKWYM about giving up. I'm scared to try again because I don't know how I could possibly cope with another loss. That's what pg is to me, miscarriage. I want a baby though so I have to find a way to be strong. I want to be on the graduates list here!

How did it go today iggi ? thinking of you.

OP posts:
LunaticFringe · 04/06/2011 20:16

This reply has been deleted

Message withdrawn at poster's request.

ALovelyBunchOfCoconuts · 04/06/2011 22:45

STARTING TESTING
LOLA78: mc1 Dec 07 (6wks), DD Oct 08 (problem free pregnancy and natural birth), mmc2 Nov 10 6wks ERPC at 10wks, mc3 Feb 11 at 7wks - suspected ectopic but mc naturally, mc4 mar 11 at 5wks (started 75mg aspirin from a week before bfp) - hospitalised for excessive bleeding and clots. Now referred for testing at local fertility clinic, we have started having blood tests and am on 5mg folic acid.
SCOOTERCHASTER: DS Oct 08 (managed for SVT heart from 35wks), mc1 Sept 10 (7wks), mc2 Dec 10 (9 wks - hb @ 8wks), mc3 April 11 (7.5 wks, hb day b4 mc).
HAIRYLIGHTS, age 42, MC1 (Jun 10, very low HCG, suspected ectopic, methotrexate), MC 2 (Nov 22 2010, MMC,ERPC, no heart beat at ten weeks, fetus 8 week size), MC3 (MMC - Medical Management, Feb 13 2011, MMC at 7 week scan). Waiting to TTC
PANDA 3MMC, no.1 (embryonic loss - empty sac) 7weeks, no.2 at 12 weeks, no.3 at 8 weeks. Awaiting raft of tests for recurrent MC
CLAIREDELOON Age 38 1st mmc, development stopped approx 5 weeks (2007), 2nd mmc development stopped at approx 6 weeks (2009), 3rd mc development stopped at 9 weeks after seeing hb at 8+3 (2010). Bicornate uterus, starting testing Feb 2011.
NOTSOBARRENBROOK Age 35. 1st mmc @ 6 weeks (Jan 2009), 2nd mmc @ 6 weeks (Jan 2010), 3rd mmc @ 11 weeks, development stopped at 6 weeks 3 days (March 2010), 4th mmc @ 5 weeks (August 2010). Possible adenomyosis, awaiting hsg and results of testing from St Mary's.
MILKYWAY2007 Age 28 - DD age 3. 1st MC Oct 2009, 6 weeks. 2nd MMC March 2010, 11 weeks (baby passed away at 7 weeks). 3rd MC July 2010, 6 weeks. 4th MMC 24 Jan 2011, 9 weeks - no amniotic sac, baby measured 7weeks 4 days, no HB, had seen a healthy HB at 7 weeks. Blood clotting, hormone, genetic karyotype and shape and health of uterus checked and all clear. High dose folic acid prescribed.
LUCKYFOR2 Age 32 - DD age 5. DD age 3. 1st MC May 2010 found at 12 week scan passed away at 9 weeks. 2nd MC September 2010 natural at 8 weeks. 3nd MC January 2011 at 16 weeks, saw hb at 13 but no hb at 15.5. All tests have come back clear. Going to take Aspirin and Progesterone in next pregnancy (will be on Promise trial) currently ttc.
IGGI999 - Age 40, 3 year old DS. 3 MC last year, at 6, 8 and 8 weeks. Last two had hb detected. NHS blood tests came back clear, except for presence of antinuclear antibodies. To take aspirin for this. Going to see Shehata in May as think steroids are needed.
CONFU3ED - Age 35 1st MC 1998 14 weeks. DD age 11. 2nd MC July 2009 5.5 weeks. ERPC Twice. No tests. 6 months Clomid 3rd MC January 2010. The foetus sent for testing - came back fine. Been referred to recurrent MC clinic at the hospital for tests, waiting for appointment. Was told I have PCOS through a scan but never diagnosed.

UNDERGOING TREATMENT
HAVINGKITTENS Age 41 - MMC1 Nov 07 8wks (discovered due to bleeding at 10.5wks) ERPC, TOP1 for TS21 Aug 08, TOP2 for TS21 Feb 09, TOP incomplete, ERPC performed, Genetic Counselling & tests confirmed no chromosome problems with us, "just bad luck ", MMC2 Feb 10 5.5wks (seen at 8wk scan, no bleeding), MMC3 May 10 (as MMC2), RMC testing at UCH, no cause found - empirical 75mg asprin & vit D + early & regular scans for next pregnancy, MMC4 No fetal pole seen at 6.5 wks, follow up scan 10 days later, told of MMC, then "Something" spotted so instructed to wait another week before they would allow ERPC, ERPC a week later, waiting for NK Cell test results from Mr S on NHS, taking 75mg Asprin, Vit D, Pregnacare Plus (w/Omega 3), 5mg Folic Acid (been taking since 1st TOP to try & prevent TS21 or similar issues), NK Cells levels almost double what they should be. 25mg Prednisone from ovulation - CD1 or if BFP then 'til 12 wks and then weaned off 'til 14wks plus Progesterone pessaries from BFP - 16wks, Folic Acid, Omega3, Vit D - 12wks, Asprin - 20wks.
CRYSTAL5 Age 38 - DS age 4. 6 m/c 1 at 11 weeks, 5 at 5/6 weeks. Ok blood tests, under Endocrinologist for Hypothyroid
LADYBEE 37, MC1 (5wks), DS (2), MC2 blighted ovum discovered @ 8 wk scan, MC3 natural @ 9 wks following hb seen at 7 1/2 wk. PCOS previously diagnosed, Factor V Leiden heterozygote discovered in recent testing. Treatment with aspirin (from BFP) + clexane started at 6 weeks. MC4 MMC @ 8.1 wks (discovered @ 11 wk scan) following hb seen at 6+6 wks. Consultant suggests aspirin + clexane to start at 4 weeks, plus progesterone pessaries. Management of MC tbc.
DIGITALGIRL Age 32 - DS 2.8 - 4MCs since ttc#2. MC1 Nov2009 @5wks. MC2 Apr2010 @6-7wks. MC3 Oct2010 @7-8wks. MC4 Mar2011 @8wks. All natural, except MC4 managed with ERPC for karyotyping. Clotting tests normal. DH & I genetically normal. On Metformin for mild PCOS, plus 75mg aspirin, Pregnacare Plus & 25mcg VitD3. Diagnosed with high NK Cells (1.25) after MC4. Starting TTC in May with prednisolone from ovulation and will add cyclogest once pg. Under care of Mr S.
PUREEQUEEN Age 34, MC1 (7 weeks Jan 08) MC2 (6 weeks March 08), DS born (prem) 2009, MC3 (9 weeks Oct 10). MC4 Jan 2011. First 2 natural mcs latter 2 mmc/ERPCs. Chromosome test MC4 showed she had a genetic abnormality (cri du chat). Karotyping for me and DH fine but with "increase in length on satellite of short arm 13 and 15" (??) . Also have endo &septate uterus. Now TTC and will take aspirin and progesterone.
LAF77 , Age 33, MC1 (7 weeks Apr 10) MC2 (5 weeks Sept 10) MC3 (9 weeks Dec 10). All have been natural mcs and number 1 and 3 were embryonic . No children, First appointment with St. Mary's in April, second round of bloods in May, with results in June.

PREGNANT
MATTSMAMA Aged 41. 1st MMC November 2004. My DS (who I love with all my heart) born 2006. 2nd MMC July 2010. 2 chemical pregnancies September and October 2010. Under Dr Shehata and got BFP on first round of treatment for high thyroid antibodies and high killer cells.
BANANA87 Age 30- 1mmc@7 weeks, DD (2), 1 mmc 6 weeks, 1 mc 7 weeks, Going to try aspirin and progesterone as per consultant. Clotting bloods normal.
MUMMYABROAD Age 36, 1DS (2.9), 1MMC Mar 2010 (@14weeks) Ashermans diagnosis and treatment Nov 2010, Started TTC Jan 2011 BFP on Cycle 2 EDD 4/11/11. Heartbeat seen at 10 weeks.
GLITTERYBITS 1 anembryonic MC (12 weeks), unexplained infertility, 1 round of clomid, currently pg and terrified!
JUSTMEE Age 21, MC1 (7 weeks), MC2 (6weeks), MC3 (5weeks) currently pregnant with 4th pregnancy using clexane injecting 20mg a day EDD 24/09/11
LOVELYBUNCHOFCOCONUTS Age 23, 1 MC (13 weeks), 1 MMC (10 weeks - growth stopped at 7), 1DD born 2008, PCOS diagnosis, bi-cornuate uterus. EDD 01/10/11
LOVEMYSLEEP Age 39, 1 mmc, dd born(now 5), 2nd mc (9wks, 2days), 3rd mc (9wks, 3days) and 4th mc at 5 wks. All tests on NHS came back clear. Currently undergoing treatment with Dr.Shehata for very high natural killer cells - aspirin, progesterone, steroids, omezaprole and one intralipid infusion completed.

GRADUATES WITH BABIES!!
LUNATIC dd1(4) 2 mmc (8 wks) dd2 stillborn (32+5). Seen at St Mary's. clotting problem, pg #5 aspirin 150g daily. Ds1 born 9/2/11 c/s @ 35 wks
STILLFRAZZLED Age 35, DS1 (3.6yo), 1 mc @ 5 weeks Jan 09, 2nd mc @ 9 weeks March 09, DS2 born @ 35+3 on 04/01/11 with Intra Uterine Growth Restriction but currently home and doing well.
MUMATRON Age 28 2 dc then 4mc, 3 @9weeks 1@5weeks, tests showed possible free protein s ishoo. dd2 born 06/01/2011, aspirin, claxane and high dose folic acid through pg.
JULEZBOO Age 29 1 mc @ 14 wks, DS1 (8yo) 4 mc @ 5/6 wks, DS2 (3) 2 mc @7 wks... DS3 (14/01/11 @35 wks) Dx with Factor V Leiden and Septate Uterus. Clexane and Aspirin throughout pregnancy and progesterone with DS3.

Here is the list, which has not been posted since the opening of this thread!

If anyone needs to update themselves, add any info to their piece or move themselves please go ahead :)

lunatic lovely to hear from you :) Always welcoming positive endings :)

iggi sorry to hear your news, never gets easier Sad

Hello to everyone else :)

igggi · 05/06/2011 07:57

Hello, well I stopped the progesterone on friday night and by Saturday am I was bleeding. Lots of large clots in the toilets in Kings Cross, so I suspect it is over or almost over. A good appt with S, he says I have aggressive immune system and just to stick with his treatment. To him 4 mc is not very many! I don't want to join the poor folk into double figures Sad
It is easier not being pg, as I have nothing to fear.

igggi · 05/06/2011 07:57

Hello, well I stopped the progesterone on friday night and by Saturday am I was bleeding. Lots of large clots in the toilets in Kings Cross, so I suspect it is over or almost over. A good appt with S, he says I have aggressive immune system and just to stick with his treatment. To him 4 mc is not very many! I don't want to join the poor folk into double figures Sad
It is easier not being pg, as I have nothing to fear.

ALovelyBunchOfCoconuts · 05/06/2011 09:59

Oh iggi so sorry. It just isn't fair Sad

hairylights · 05/06/2011 10:01

So sorry Iggi

I am marking the due date of the only baby who really even grew.
"She" lived to eight weeks inside me and had she lived, she would have been due to have been born today. :(

igggi · 05/06/2011 10:17

Oh Hairy I hope you have some time and space today to just do whatever you need to. A sad time.
I don't think about this often but I do believe in life after death and sometimes I think about holding all my babies when I get there.

digitalgirl · 05/06/2011 11:10

igggi sorry to hear it's all over Sad. I know exactly how you feel about it being easier not being pregnant. Almost a relief. But so glad Mr S was reassuring. He really does help with that long-term optimism.

hairy thinking of you on this due date. I have one coming up this week too. For my third lost baby.

Still no ovulation here (cd30 or thereabouts) so haven't started the steroids yet. I am currently sitting in the waiting room of a reiki healer. Will report back.

BagofHolly · 05/06/2011 11:19

I'm sorry to crash this thread, but wondered if any of you are on clexane and cyclogest and are having to pay for it yourselves?

ALovelyBunchOfCoconuts · 05/06/2011 11:41

digi my mum is a reiki healer. I am a skeptic but there have been so many stories about success after a reiki treatment. It was through reiki that my mum discovered a hernia she had. Her GP was Shock Grin

Really hope it can bring you some peace. Expect a few tears as it really brings out the emotional side of things. Hope it goes well for you.

iloveblue · 05/06/2011 12:01

Hello everyone

Firstly - just wanted to say I'm sorry for all the losses and heartbreak held in this thread, I've just skimmed through and its so unfair.

I think I might be about to join you, if thats ok.

I'm currently 6ish weeks pregnant - but started bleeding lightly this morning and am cramping. This is how my last mc started so I'm pretty sure its over.

My history so far:
DS 1 aged 6 (problem-free pregnancy)
DS 2 aged 4 (problem-free pregnancy)
Late loss at 20 weeks in Oct 2010 (baby boy died at 17 wks)
7/8 wk mc Feb 2011

I had some tests done after our late loss which all came back clear and they found nothing wrong with the baby.

What I really want to know - is what happens next?
I'm assuming I will be referred for RMC testing now - but how long will that take? I'm in Shropshire if that makes any difference.

I'm going to ring my GP tomorrow who will hopefully refer me to the EPU.
I just can't continue to believe that its just down to bad luck - not now.
I know how lucky I am to have 2 children and they are the light of my life - but I'm not quite ready to give up hoping for a third just yet.

ALovelyBunchOfCoconuts · 05/06/2011 13:07

Hello Iloveblue. Firstly, sorry you find yourself here. It is unfair and nobody deserves the heartache of losing a baby, let alone more than one.

I can't offer much advice as I never went down the RMC route (as I 'only' had 2 mcs) but plenty of ladies here have a wealth of information and knowledge to help you ask the right questions at your appointments, if you do go down the testing route.

We have a list of everyone on this thread, just a few posts up from this. When you feel ready, feel free to add yourself on to whichever section you feel is best.

Make yourself comfy here, this is a great support thread to be on. :)